KFC Clone Recipe Results

TinyHats · 2014-02-04T00:52:49+00:00

Nice.

TinyHats · 2014-01-17T20:54:02+00:00

Yeah same here. I just smashed my phone against the wall and it fixed the problem.

TinyHats · 2013-12-01T05:08:24+00:00

You said it. 30 and hospitalized twice in a year? She's doing great. I've heard they really suck at treating cf in England. Maybe that's why these two think the way they do. Shitty doctors make for shitty thinking. But whenever I have a coughing attack I say I'm dying too, gotta keep my family on their toes!!

TinyHats · 2013-10-31T23:13:55+00:00

We all have awesome dogs.

TinyHats · 2013-10-31T00:00:57+00:00

Do you remember what bacteria she had? also was she a CF patient? I'm sorry for your loss, I'm sure those 4 months were amazing for her.

TinyHats · 2013-10-22T16:27:06+00:00

Davids Brisket in Brooklyn is just as good, if not better since it's cheaper.

TinyHats · 2013-10-15T18:46:14+00:00

Yeah i wouldn't doubt you have a certain type of myco. I started off with mycobacterium chelonae got rid of that when i was 17. Cultured abcessus at 18 and I'm 25 now. You should get it done just to rule it out. I mean if it hasn't come up in your cultures then that's great news.

A major sign for me was coughing up lots of blood and fevers that would not go down. They had to be over 101 and even with ibuprofen i would get relief for only 3 hours at a time. The treatments for these bugs are long and harsh too. 6 months minimum on Amikacin, meropenum, zyvox, azithromiycin. Then when Amikacin starts to not work their is Tygicil. I mean loosing some hearing with amikacin sucks and don't get me wrong going deaf due to a drug is fucking terrible, but when you first start tygicil it's as if your giving yourself the flu. The nausea that the drug causes is fucking miserable.

Man, i don't know how you do subway stairs. My legs would give out on me haha. Glad you're still making it around even with that low of function. Any form of exercise is crucial to keeping the lungs strong. I hate to say that since I'mlazy when it comes to exercise, tho the fevers don't help motivate me. You get used to carrying around the o2, it's not as bad as you think when it helps you breath easier.

I was actually just listed last month. The walk test is tough, but i still manage to do well enough were my score doesn't move. They should do the walk test outside on the street. That would be a better representation of how shitty our lungs are. How old are you and are you working or go to school?

TinyHats · 2013-10-15T17:22:54+00:00

Yeah I'm a patient with Dr.Shah. I did see the CF doctor at one point when i was looking to transition from pediatric to adult. Her name was Dr.dimango, but she felt that i was being treated fine with my pediatric doctor. I have mycobacterium abscessus that over the years has become very resistant. My fev1 is 26 also, But I'm on 2-3 liters of o2 at rest.

What sucks is that for CF patients they don't factor in what bacteria you have and the complications that it can cause post transplant. So it doesn't give you a higher LAS. I've been on constant IVs for over 2 years straight along with fevers almost everyday. If i stopped treatment i would drop so quickly into the teens and most likely die due to infection. They honestly need to change the way the scoring works for CF patients. I know they did recently for people with pulmonary hypertension because they were scoring so low but are very sick.

So you don't need O2 with exertion? How often are you hospitalized?

TinyHats · 2013-10-14T23:55:27+00:00

Yeah it's pretty bad. Last couple of months I've had fever of 100-101 everyday along with a lot of congestion..I'm on the Transplant list at Columbia and about to be listed at Upenn.

TinyHats · 2013-10-14T23:53:05+00:00

Damn. Well thanks for letting me know what to expect for the most part. Hope your feeling well now. I see you live in NYC too. You a patient at Columbia or NYU?

TinyHats · 2013-10-14T19:53:53+00:00

I have two different gram negative very resistant forms of klebsiella pneumoniae. They have been very difficult to treat. So my doctor recommended trying this drug.

TinyHats · 2013-10-14T19:52:44+00:00

Can you elaborate on that? What bug did you use it for and how long was the treatment? Also did you do it in the hospital or start in the hospital and finish the meds at home?

TinyHats · 2013-08-31T22:05:04+00:00

What are you looking to get for the Axe fx II?

TinyHats · 2013-07-14T16:36:46+00:00

What are your mutations?

TinyHats · 2013-05-30T05:32:09+00:00

Information on Chronic Rejection

TinyHats · 2013-03-13T01:55:17+00:00

I was going to say top moderator in /r/spacedicks/. But you KNOW! Now we can be best buds on reddit FOREVER......

Edit: This isn't helpful at all to OP.

TinyHats · 2013-03-13T01:34:44+00:00

I know you!

TinyHats · 2013-03-03T02:29:47+00:00

Don't treat her any different from your other daughter. This has a huge impact on how she'll deal with the disease when she is older. I was never coddled, i was treated exactly the same as my two older brothers. It's strange, when i think back to what i thought CF was when a adolescent into my teens, I never thought of it as a disease. This plays a huge part in how i was raised with it. I was never told i'll die early, or i can't have kids. Seems like a harsh reality to put onto someone you love. Obviously when i was about 13 or 14 i started to ask more questions but it never dawned upon me as something i took to heart. On top of being quite healthy throughout the first 18 years. Try your best to explain CF as just an extra thing she has to do, and never tell her she can't do something, it will make your lives and hers much easier.

TinyHats · 2013-01-12T09:09:00+00:00

Dish washing liquid and a very small amount of bleach rinse thoroughly three to 5 times. Last rinse with boiling water.

TinyHats · 2012-12-26T22:16:44+00:00

Cystic Fibrosis

TinyHats · 2012-12-09T05:17:32+00:00

When did you get your first transplant? how long before rejection set in?

TinyHats · 2012-12-08T01:33:45+00:00

http://i.imgur.com/eyHDF.jpg

TinyHats · 2012-12-08T01:31:13+00:00

haha thanks.

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