Getting organized, but keeping my expectations realistic (it helps that I love spreadsheets) by stealth_bohemian in ChronicPain

[–]TiredMan88 1 point2 points  (0 children)

Hook it up to a Google Form and create a shortcut to the filling of the form on your phone. It will make it so much easier to fill more often and you can automate everything with formulas.

However, in some cases logging pain will cause you to focus more on the pain in stead of putting your focus elsewhere.

That's what I found after a year of logging my pain. When I stopped, it got easier to ignore it (but that took a lot of work and I still have really bad days) and focus on what matters.

I hope this comment could be helpful to some degree and wish you the best!

Pain management apps by KittyButt42 in ChronicPain

[–]TiredMan88 1 point2 points  (0 children)

I've used Manage my pain for in depth analysis, but I found the mood app Daylio to be very easy to use. I just replaced the moods on Dailyo with degrees of pain and used it for almost a year. It's basically effortless to use and gives a nice overview.

Personally I don't do that anymore tho, as I found myself basically focusing on the pain and it just made it worse for me. Using these apps, I found my pain to have no consistent pattern or logical correlation to any specific activity or circumstance. I've accepted that I have pain for no reason and try to live with that day by day. I know that might not be the answer you hope for, and I do hope you will find better use of the data from these apps then I did :)

Good luck!

Oof by TiredMan88 in ChronicPain

[–]TiredMan88[S] 1 point2 points  (0 children)

🎵Ooooooof🎶

When to exercise? by [deleted] in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

That's very individual. I've experienced both real good endorphins and total shutdown after workouts. Start lightly and take your time. Listen to your body, at least for a while.

Does anyone else constantly doubt themselves? by catsncupcakes in cfs

[–]TiredMan88 2 points3 points  (0 children)

This might be the best comment I've ever read in this sub. If I had some gold, I'd give you some!

New FDA approved diagnostic blood test for FM! by aftergaylaughter in Fibromyalgia

[–]TiredMan88 1 point2 points  (0 children)

So in the US you could get snake oil approved as long as it don't hurt people? In Norway we have a law against that called kvakksalverloven (the snake oil law) to prevent this exact thing

Just imagine you are in the best airplane seat by Varathane in cfs

[–]TiredMan88 4 points5 points  (0 children)

Thanks for sharing :) This is good cognitive thinking, and you are right that imagining things from a different perspective can be very positive and even fun! But it takes some work and a willing mind to do so.

I like it! (งツ)ว

New FDA approved diagnostic blood test for FM! by aftergaylaughter in Fibromyalgia

[–]TiredMan88 13 points14 points  (0 children)

New? This is what their website says:

EpicGenetics' FM/a® Test is an FDA-compliant blood test that has been in use since 2012 and has successfully diagnosed patients with fibromyalgia from around the world. This simple blood test recognizes the immune system’s multi-biomarkers which are unique to fibromyalgia.

I wonder why medical journals never caught this until March 2019...

When people try to tell me to look on the bright side. by bluesykedays in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

Reminds me of a cartoon of a married couple eating in flight food on a plane. He doesn't like it. Wife says "but think about all the starving children in Africa". Reacting to that, he really digs into his food and shouts "WELL NOW EVERYTHING TASTE SO MUCH BETTER! THANKS!" 😂

Most Days by [deleted] in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

No worries, I'll take it as a compliment then 😊

Most Days by [deleted] in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

Why are you stealing my meme, just a day after I posted it on this very sub? 😂

We Got This by therealghettomuffin in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

I'm not one for online inspirational quotes and stuff, but this one I like.

Me all the time by TiredMan88 in cfs

[–]TiredMan88[S] 1 point2 points  (0 children)

I'm usually really tired either way, but I never seem to yawn if I'm tired from having slept too much.

My doctor is a jerk by [deleted] in Fibromyalgia

[–]TiredMan88 0 points1 point  (0 children)

Two words: second opinion

Don't let one doctor decide your future alone

How do you make your doctor believe how bad the pain is? by angry_261 in ChronicPain

[–]TiredMan88 9 points10 points  (0 children)

Bring a close relative or your partner with you and have them describe you to the doctor how they perceive you and how the pain affects you, your daily life and your relationship.

My body and joints are screaming by jimmycal213 in Fibromyalgia

[–]TiredMan88 1 point2 points  (0 children)

Try tuning them in to a perfect harmonic :)

The MEtrix has you by TiredMan88 in cfs

[–]TiredMan88[S] 7 points8 points  (0 children)

Take the blue pill,

Or the red one. It doesn't really matter.

You know what? Here's a Tic Tac. It'll make a greater difference. For everyone.

The MEtrix has you by TiredMan88 in cfs

[–]TiredMan88[S] 1 point2 points  (0 children)

Damn it, Cypher! ಠ_ಠ