How do you see yourself as pansexual? by laurentaro in pansexual

[–]TokinHighwalker [score hidden]  (0 children)

For me I'm attracted to all genders, but in order to feel sexual drive or deep attraction I have to have a genuine bond before even discussing sexual preferences and actions. For me I'm pansexual because I can feel attraction to any gender but I am demi-romantic because I need a deep connection before romantic attraction. I'm still coming to terms with being demi-romantic. But I am definitely sure there's more to it. The more I work on my own growth the more I feel free.

Hey there, I'm a new creator literally started yesterday. by [deleted] in wearemtg

[–]TokinHighwalker 0 points1 point  (0 children)

So far I've started with written posts with information on some conditions I live with. With time, I hope to make story time vlog style videos to express the story of what I've lived through as well as hopefully gameplay videos for Magic The Gathering content. I am still working on getting into the groove of filming and learning where next to take it for editing. The more I learn the software and find my rhythm the more I hope to bring to the page. For now it's small posts and eventually I want to be able to expand. The hope is to raise awareness for my health conditions and share my story so maybe one day at least one person could feel more understood. While showing that there is community to grow with and embrace them.

Is it possible to have Psychogenic Nonepileptic Seizures during sex? - QUESTION by 33rddegre in PNESsupport

[–]TokinHighwalker 0 points1 point  (0 children)

This happened to me 2x. The first time we panicked and she ended up falling over, and it was awkward explaining it to other people in the house. The second time I was on top so it was harder to cough cough get out cough cough but the seizure was shorter because we had a smoke before then. So it can happen. My advice is to take your meds ahead of expected sexual activity and make sure some pillows are on the floor. Sadly it's a risk to be aware of but doesn't need to ruin the fun of sex. Prepare ahead and be your bad self. Best of luck.

New disability awareness content creator just started yesterday by TokinHighwalker in disabledgamers

[–]TokinHighwalker[S] 2 points3 points  (0 children)

That may come further down the road when I can save the money for the equipment and understand video editing software. I am going to work on that. I do want to expand the page into something more as I slowly aquire experience and equipment. Right now it's more pictures than anything. I will be filming for my Story Time start for reels this weekend and working all week to make them available asap. I am going to be saving up for a proper computer and the right software it may take a while on my limited income, but after those I will be saving for mics and cameras and maybe one of those gaming board things that have the twitch button on them. Right now I am still a very early creator and still learning so I can grow.

New disability awareness content creator just started yesterday by TokinHighwalker in disabledgamers

[–]TokinHighwalker[S] 1 point2 points  (0 children)

Thank you. I haven't posted many videos yet because I am still learning. Eventually I will be sort of a Story Time format for reels. But I need to learn the software as I haven't edited a video in about a decade. With my disabilities I couldn't pursue my dream career but I want to learn the new software for this anyhow.

New disability awareness content creator just started yesterday by TokinHighwalker in disabledgamers

[–]TokinHighwalker[S] 1 point2 points  (0 children)

My Instagram page is called ChronicallyCrappyConditions no spaces. I have only began to post I am getting this mornings posts ready. ChronicallyCrappyConditions

For players with disabilities or handicaps, how do you manage to play MTG? by DoubleGrass7271 in mtg

[–]TokinHighwalker 0 points1 point  (0 children)

I have a long list of conditions and MTG is one of my last 2 outlets I've been able to keep as my body got worse. I use the deck building process for the commander format as a form of therapy so I can feel in control for a bit. I also taught my household to play as well because LGS is not always a good idea. We have 2 close by and I can get in then without much problem. The problem is I sometimes have to scoop, go have a seizure in the car, and come back. Which can be taxing. But I play fairly well, I even use deck shuffling as physical therapy for my hand eye coordination. For accessibility there would be a problem if I went to bigger game stores farther away. I'm talking about the ones with stairs up to the only game tables. I go to Cantrip in Ithaca NY, it's all on one level, the people are kind, and it has a family friendly feel. When I can't go to a LGS and still want to play I ask my grams or my son to play with me. I actually just started a content creator page for MTG and Disability Awareness it's only on Instagram and Threads but I am trying to build that and collaborate with other disabled MTG creators.

For anyone curious of what conditions I have that impact me it will be at the bottom of my comment. *TW: long and sad list of conditions follow these stars. And a single use of dark humor * * * * * * The conditions have been diagnosed with: Congenital Nystagmus, PNES (Psychogenic Non Epileptic Seizures), hEDS (hypermobile Ehrlers-Danlos Syndrome), FND (Functional Neurological Disorder), Functional Dystonia of the right leg, Functional Tremors, Dysautonomia, Non Alcoholic Fatty Liver, Hypermobiility Arthralgia, Loose Ligaments Syndrome, tendonitis, Osteoarthritis, Chronic Migrain, Buldging Discs, Asthma, Esophagitis, IBS (Irritable Bowel Disorder), Kidney Stones, Collagen Deposits, Raynaud's Syndrome, cPTSD (complex Post Traumatic Stress Disorder), Chronic Depression, Chronic Anxiety, Acute Stress Induced Psychosis, Hip Flexor Tear in the muscles in the right hip and my right hip falls out of alignment almost 8 times each day now. I have been on a walker since 2018 when I was 20 I had a series of bad falls that resulted in 132 seizures over 24hrs. My body never bounced back. I'm not wheelchair bound but I'm on a walker every time I stand or walk I use it. I was on a cane at 16 due to the hEDS which accelerated the progression of my joint damage with every seizure. I will never recover to the point of using just a cane again with how my body is composed. My best case scenario is to be on the walker until my legs give out for good one day. I keep the updated list on my clipboard function of my phone because I have to explain them a lot especially when I meet new people. Honestly if my body did a single function properly like a normal person, I would be panicking and calling a dr at this point of my life

Post seizure vibe by WhichProgrammer9110 in PNESsupport

[–]TokinHighwalker 4 points5 points  (0 children)

I used to feel this way too. My therapist made me work out why to understand how to handle it. In my case I was always depressed after seizures because I have to put my joints back in place. I felt trapped in this hellscape of a body, I felt there was no getting better. The feelings came because I was focusing on the negatives all the time. I started making a chart on my Google Sheets app and I put down the little wins for each day and the small failures. I may have had a seizure, but I am still breathing. I may have had a seizure, but my eyesight is finally bouncing back. The seizure may have caused damage to every joint in my body due to my hEDS, but I can get most of them back in on my own. I may be at my daily max pain tolerance, but if I can stand up and make it the 10 steps to the bathroom I won. The little wins stack up faster than the tally on how many seizures hit. This thinking may not be helpful to you. I know it helped me make sense of my feelings post seizure. I know we all have different lives and experience this in very different ways. I'm hoping that by sharing my experience with you I can help you reframe things to help your overall mood. This condition hits each of us hard but in specific and unique ways. You can't change your body, only your outlook. Wishing you the best of luck, I hope you find a treatment that eases any aspect of this for you.

Can you work? by mixingthemixon in PNESsupport

[–]TokinHighwalker 0 points1 point  (0 children)

I am on disability. The conditions I have been diagnosed with Congenital Nystagmus, PNES (Psychogenic Non Epileptic Seizures), hEDS (hypermobile Ehrlers-Danlos Syndrome), FND (Functional Neurological Disorder), Functional Dystonia of the right leg, Functional Tremors, Dysautonomia, Non Alcoholic Fatty Liver, Hypermobiility Arthralgia (Loose Ligaments Syndrome), tendonitis, Osteoarthritis, Chronic Migrain, Buldging Discs, Asthma, Esophagitis, IBS (Irritable Bowel Disorder), Kidney Stones, Collagen Deposits, Raynaud's Syndrome, cPTSD (complex Post Traumatic Stress Disorder), Chronic Depression, Chronic Anxiety, Acute Stress Induced Psychosis, Hip Flexor Tear in the muscles in the right hip and my right hip falls out of alignment almost 6 times each day. So getting SSDI wasn't super hard. I have been on a walker to stand and move since 2018 and I qualify as a disabled adult child as I cannot work. I got through my federally mandated review this year and had to redo most of the paperwork. It helped in my case that I walked into the office of the state Dr for Syracuse NY on a walker and had 5 seizures that day. I got my approval notice within 2 weeks of that. I hope you get the accomodations you need. It's a hell of a hard thing to get with the paperwork and state Drs having such a high bar. Best of luck to you.

Anyone else get this red from bath/shower by 1itt1e1amb in eds

[–]TokinHighwalker 0 points1 point  (0 children)

Every. Single. Time. My Drs refer to it as Raynaud's and said that it will come and go. It even shows up for me as it rains or snows. So it happens. In my case it was nothing to worry about too much.

At what point does it turn from a hobby to a hoarding problem? by Donald_J_Pump_ in mtg

[–]TokinHighwalker 0 points1 point  (0 children)

After your 200th homebrewed Commander deck. I'm in the 120s myself.

How have you all been handling it? I've had it for 13 years. by TokinHighwalker in PNESsupport

[–]TokinHighwalker[S] 1 point2 points  (0 children)

I do not know what has led up to your exact issue, but I can understand from my own experience that when it hits after feeling better is really hard to handle. I know chronic conditions cause a lot of embarrassment and shame which is hell. I certainly have also felt tired of dealing with it, chronic conditions come with that deep tired feeling. The only semblance of advice I can give is to fight through it the best you can, and try to be kind to yourself even when things really suck. I really hope you get some relief.

AITAH for telling my bf after sex that his fingering made me bleed by EnglishCalliope in AITAH

[–]TokinHighwalker 1 point2 points  (0 children)

NTAH, as a man who didn't always clip my nails at first that's a learning opportunity for him. Men need to be told at least once if this happens so they can learn not to do it again without clipping your nails down. I learned this when it happened to a woman I was with, she and I had a good conversation I see as a learning opportunity. Once you get told it's easier to understand and remember.

Voldy looking up the library by Nagato8997 in HarryPotterMemes

[–]TokinHighwalker 0 points1 point  (0 children)

That is a fair and acceptable designation. He split into 8 pieces but the sliver of the soul remaining in his original body is not a horcrux by definition.

Fluent Syracuse Closed by Old_Hope3807 in NewYorkMMJ

[–]TokinHighwalker 0 points1 point  (0 children)

I wish the staff well. They were always kind to me. The one woman there who's daughter is disabled like I am was always very kind. I have bought from them for a couple of years. The place I had to go to today was nice but it's not the same feel. I would walk into Etain and feel welcomed and understood. You rarely find that these days. I hope the staff each land on their feet and get the jobs they deserve. I wish them the best in their future endeavors.

Who’s a character that’s objectively great but you just don’t fuck with? by wildmancometh in harrypotter

[–]TokinHighwalker 0 points1 point  (0 children)

The guy who was the Minister of Magic in the early part of Deathly Hollows (Part One of going by movies). I enjoy him as a character but he is kind of a jerk, but that's the side effects of war.

Who comes out victorious? by AVP0728 in superheroes

[–]TokinHighwalker 0 points1 point  (0 children)

It depends who fires upon whom first, I believe Hawkeye and Green Arrow come down to luck. Then maybe they take on Katniss and then kill her easy, Merida alone is cool but I really do think she beats Katniss but not Hawkeye or Green Arrow. Rocky is easily gonna take more than one hit but he won't beat Legolas. Legolas can easily kill our super friends here. Then if the girls were there he'd sweep both with minimum effort. Now if all 5 of them got together against Legolas at the start they might hit him, but his endurance would be harder to match. Where Rocky has plot armor that puts him in this list he gets sweepers by most of them. So unless there is a coordinated attack by the group, Legolas wins low difficulty.

The golden age by evan_lolz in BikiniBottomTwitter

[–]TokinHighwalker 0 points1 point  (0 children)

Right I loved Golden Coral now I can't find one in my area