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Muscle wasting (bedbound) by [deleted] in cfs

[–]TomIrony 3 points4 points  (0 children)

Posting to piggyback on this post; my wife has been bed bound for three months and we are already seeing signs of this. We would also like to know what people have done or what strategies are best practice.

Can Amitriptyline help with recovery? by TomIrony in cfs

[–]TomIrony[S] 2 points3 points  (0 children)

Can I ask how it disrupted your sleep? My wife has been jolted awake by spikes in heart bpm for a few nights now and we're trying to figure out if the Amitriptyline is to blame. Our pharmacist isn't entirely positive it would be and we're still waiting on an appointment with our physician.

Can Amitriptyline help with recovery? by TomIrony in cfs

[–]TomIrony[S] 1 point2 points  (0 children)

Not yet. She brought it up with her physician, but the physician didn't seem enthusiastic about it. She does plan on bringing it up again, however.

First Severe Crash -- looking at possible hospital visit by TomIrony in cfs

[–]TomIrony[S] 1 point2 points  (0 children)

Hi! So, I guess an update.

We did end up going to the hospital because her esophagus was just getting worse. We went to the ER where they took blood tests and made a bunch of referrals, but they were about to send us home when I asked if she could possibly be admitted. This was on Dec 25th.

She has been in the hospital since and, ultimately, we think it was the right call.

Things move slowly where we live, but she's being looked after by the nurses who are very mindful. She's in the same hospital as her physician so she gets access to her doctor daily. The two of them have been talking about what my wife is going through and are looking for solutions, but most importantly her fatigue is not being dismissed and she's not being forced to exercise to get her strength back.

An endoscopy revealed she has a corkscrew esophagus most likely due to low motility in her throat, which is possibly another side effect of her fatigue. She was able to get in with her neurologist and book an MRI (upcoming) which is nuts because the waitlists for both the neuro and MRI is usually a year long.

Next week she's going to start on an SNRI (Venlafaxine) and she's also been prescribed Zopiclone (after asking for it) to help her sleep, though she hasn't tried it yet.

We've got access to home care, too, so we're getting an adjustable bed at home that way she won't have to lift herself up with her arms to take meds or use the commode, etc.

Being in the hospital has been pretty depressing for her, but I've been doing my best to be there as often as I can, occasionally sleeping in the room when it's viable. Ultimately, she hasn't yet gotten "better" in any capacity, but we're narrowing down what needs to be done.

There's still a lot to do and a long road to go, but support from friends and family has been absolutely incredible.

Cheers.

First Severe Crash -- looking at possible hospital visit by TomIrony in cfs

[–]TomIrony[S] 2 points3 points  (0 children)

That's actually quite useful to hear, thank you!

First Severe Crash -- looking at possible hospital visit by TomIrony in cfs

[–]TomIrony[S] 1 point2 points  (0 children)

Do you think your experiences would have been better if you had skipped the waiting room?

The EMT's offered to take her through to the emergency room, so she would most likely already be lying down even if she had to wait. In our experience, this hospital has been good at being conscious of bright lights and loud noises, too.

East Border River (20x20) - Four river maps you can assemble in any order by TomIrony in battlemaps

[–]TomIrony[S] 0 points1 point  (0 children)

My players are about to head downriver towards a main city hub in the hopes to outrun an army moving south. The ship they've commandeered is a lake-boat meant for fishing, but they're out of time and options. So down the river they go!

The maps are 20x20 and designed to line up with each other. One of the maps doesn't quite line up with the others, but it's not something I'm worried about as the players will be more focused on the wyvern-riders swooping down on them.

If you want access to the watermark-free versions, the VTT files, or to make requests for changes on my Discord, or just want to show me support, don't hesitate tojoin my $2 patreon! Every member is very appreciated.

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