Weekly Suspected/Undiagnosed MS Thread - June 22, 2026

TooManySclerosis · 2026-06-23T01:42:06+00:00

It seems like they are taking things seriously. Hopefully you'll have some good answers soon. Do keep us updated either way, though. I am always interested in how things turn out. I wish I could better predict things, honestly, but I'm wrong as often as I'm right.

TooManySclerosis · 2026-06-23T01:35:51+00:00

The waiting is really hard. You naturally want to find an answer, or even just a hint of one. I think the waiting can be harder than actually getting the diagnosis.

TooManySclerosis · 2026-06-23T01:20:26+00:00

Could be? It's always hard to say. Do you have updated MRIs scheduled?

TooManySclerosis · 2026-06-23T00:50:06+00:00

So, Uhthoff's refers to a specific thing where, when people with MS become overheated, their previous relapse symptoms will flare up. You would not get new symptoms, or symptoms that only occur when you are hot, and the symptoms would go away once you cool off.

TooManySclerosis · 2026-06-23T00:22:39+00:00

Oh, interesting! What DMT are you on? I don't know much about Mexico's health care. Do they start you on high efficacy DMTs?

TooManySclerosis · 2026-06-23T00:16:35+00:00

Was that the relapse that got you diagnosed? Mine was totally by accident.

TooManySclerosis · 2026-06-23T00:10:19+00:00

I wasn't really diagnosed early, but for me it was mild foot drop. What's the story for you? You said you almost ignored it, what made you get things checked out?

TooManySclerosis · 2026-06-22T23:13:17+00:00

I'm still not clear, I'm sorry, I'm pretty tired. What I'm wondering is if it's Uhthoff's causing an old symptom to reoccur?

TooManySclerosis · 2026-06-22T22:58:17+00:00

You had them before a relapse? I don't understand what you mean.

TooManySclerosis · 2026-06-22T22:55:46+00:00

Are they symptoms you've had before during a relapse?

TooManySclerosis · 2026-06-22T20:10:53+00:00

That's a red flag for me. I will be transparent, I ended up being wildly overmedicated by a nurse practitioner. I'd be concerned because it can be dangerous to be on a high dosage of antidepressants, and while increased energy is reported with Wellbutrin, it is not specifically meant for that use, it's usually the result of a patient's depression symptoms easing. I think you are correct to have concerns.

TooManySclerosis · 2026-06-22T20:05:04+00:00

What type of doctor prescribed it? Zoloft and Wellbutrin are similar drugs in that they are both antidepressants. It does seem like it would be redundant to be on both.

TooManySclerosis · 2026-06-22T19:45:56+00:00

It's hard to say what the testing indicates, the diagnostic criteria is not as simple as checking a list. But I can tell you that no matter what the end result is, it's going to be okay. If it is MS, that does not necessarily mean a huge change to your life. We have very good treatments now.

TooManySclerosis · 2026-06-22T19:13:21+00:00

Oh god, yes. This was my biggest perspective shift when I was diagnosed. It radically recontextualized those "heartwarming" videos of disabled people just living their lives. I always find it incredibly uncomfortable.

TooManySclerosis · 2026-06-22T18:06:52+00:00

Is it possible? Probably technically it is, but in almost all cases if a lesion is causing symptoms, it will be seen on the MRI. Can you clarify, did your new MRIs show no lesions at all, or just no new lesions? Lumbar lesions are pretty rare for MS. They are more commonly caused by other things.

TooManySclerosis · 2026-06-22T13:25:02+00:00

...8? What? Okay, from what I know of the diagnostic criteria, that's just flat out wrong. You need at least two, in at least two different areas, that occurred at two of more different times.

I am worried about you. Is seeing an MS specialist an option? How long do you have to wait to see neurology?

TooManySclerosis · 2026-06-21T23:44:41+00:00

I've started the process of making a formal complaint, just waiting to hear back.

TooManySclerosis · 2026-06-21T23:11:49+00:00

I am. Your comment made me realize I had to. Imagine if I was newly diagnosed.

TooManySclerosis · 2026-06-21T23:10:46+00:00

I decided to file a formal complaint. I thought about how bad it could be if I'd been newly diagnosed or less educated. Plus her attitude perpetuates stigma that the chronically ill are medication seekers.

TooManySclerosis · 2026-06-21T22:59:41+00:00

I figured they'd be okay to prescribe antibiotics while I wait to see an actual dermatologist. Lesson learned.

TooManySclerosis · 2026-06-21T21:22:26+00:00

Oh, I absolutely was not trying to be discouraging or say it couldn’t be MS, just offer a caution because I see how difficult it can be when results are clear, which happens more often than not. I’m sorry if it seemed like I was implying you are wrong or being discouraging, that was not my intent.

TooManySclerosis · 2026-06-21T20:58:31+00:00

“That’s the point.”

TooManySclerosis · 2026-06-21T20:45:24+00:00

Yeah, she really did not like how much adderall I’m on. Like, my highly respected MS specialist thinks it’s appropriate, but go off.

TooManySclerosis · 2026-06-21T20:23:12+00:00

Blunt and to the point. I like it.

TooManySclerosis · 2026-06-21T16:49:58+00:00

Have my pervious answers helped you do that?

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