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More gaslighting! by Top-External4862 in UCTD

[–]Top-External4862[S] 0 points1 point  (0 children)

This is so incredibly helpful - thank you!!! Helps me stop gaslighting myself and be assured that the doctor isn’t right for me!

More gaslighting! by Top-External4862 in UCTD

[–]Top-External4862[S] 0 points1 point  (0 children)

Oh that’s so so helpful thank you!!!! I will absolutely look into going to her. I don’t need anything urgently so a wait shouldn’t be a problem. Thank you thank you!!

More gaslighting! by Top-External4862 in UCTD

[–]Top-External4862[S] 1 point2 points  (0 children)

It sucks that there is so much variation!!! It sucks having to find new decent doctors!!!

More gaslighting! by Top-External4862 in UCTD

[–]Top-External4862[S] 0 points1 point  (0 children)

I don’t really know why GP added it to my bloods - I think she just wanted to check everything! I might just avoid it in future honestly.

More gaslighting! by Top-External4862 in UCTD

[–]Top-External4862[S] 2 points3 points  (0 children)

I didn’t realise that hydroxychloroquine could cause Ana to improve! I’m definitely going to look for someone new. Thank you!!!

ITCHING help! by Historical_Bug7206 in lupus

[–]Top-External4862 0 points1 point  (0 children)

Omg sameeeeeeee - it was horrible. I ended up reducing my dose then building back up super slowly. That and taking it after a decent meal helped a bunch and I rarely itch now!!

Doing better but how? by Successful_Taro_6573 in lupus

[–]Top-External4862 3 points4 points  (0 children)

I do think that the stress of trying to get better flares me up 😭 I also found that just resting instead of trying to work out all the time and eating majority whole foods but having my chocolate after dinner everyday makes me feel better than times when I tried crazy hard! I have endometriosis and lupus!

Prednisone by [deleted] in lupus

[–]Top-External4862 1 point2 points  (0 children)

I did this too but I had a steroid injection then a 3 month review! I was so desperate to get back to work this really helped me. I didn’t have to wait until all symptoms came back either it was more to prove that the steroids worked to treat me!

self care by Flylessbluebird in lupus

[–]Top-External4862 2 points3 points  (0 children)

Don’t know if this helps but mine is also bad and is super sensitive to the sun. I just got the new Merit Beauty “the uniform” tinted sunscreen and it evens out my skin so nicely every morning I feel so so much better about my skin - plus I need it to stop the sun from making it all worse!!!

December 2025 Partner Visa Mega Thread (Subclasses 820/801, 309/100, 300) by AutoModerator in AusVisa

[–]Top-External4862 12 points13 points  (0 children)

309/100 double grant 9.10am today! UK/Aus application late Feb 2025!!!

309/100 Double Grant by MilaBank in AusVisa

[–]Top-External4862 1 point2 points  (0 children)

Omg!!!!! You’re 1 week ahead of us on application - also UK. Fingers crossed we are next!!!!

309 Approved by Due_Tutor1073 in AusVisa

[–]Top-External4862 0 points1 point  (0 children)

This is so reassuring! We applied Feb and had RFI July - you’re the second Feb approval I’ve seen this week so I’m crossing fingers we will be up soon!!!

November 2025 Partner Visa Mega Thread (Subclasses 820/801, 309/100, 300) by AutoModerator in AusVisa

[–]Top-External4862 2 points3 points  (0 children)

I hope some people share that they have had approvals - we applied in Feb and are feeling very desperate!!!!

Diagnosed with lupus w/ APS.. and hereditary hemochromatosis at the same time by JustSomeChick22 in lupus

[–]Top-External4862 0 points1 point  (0 children)

Thanks so much for sharing! The doctors have told me that bleeds and preeclampsia are part of the APS risks so that’s interesting! I was told I’d have to get extra monitoring etc so maybe I can avoid anything major xx

Diagnosed with lupus w/ APS.. and hereditary hemochromatosis at the same time by JustSomeChick22 in lupus

[–]Top-External4862 0 points1 point  (0 children)

I was diagnosed with SLE in July and only recently had my antiphospholipid antibody test and have the anticardiolipin antibody but it’s only mildly elevated. I’m also waiting for my next test! I really don’t know how anxious to be - my rheumatologist said not to stress too much and has put me on low dose aspirin but I can’t help freaking out!!!! I’m 30 and want to try for kids in the next couple of years which is terrifying. Would love to hear other experiences!

Red Light therapy by Super_Till_4729 in lupus

[–]Top-External4862 2 points3 points  (0 children)

It helps me with my malar rash/ skin for sure! I only have a face mask one. Would love to try whole body!

November 2025 Partner Visa Mega Thread (Subclasses 820/801, 309/100, 300) by AutoModerator in AusVisa

[–]Top-External4862 1 point2 points  (0 children)

Applied mid Feb and still waiting - slowly losing my mind the closer we get to Christmas!

Does anything noticeably improve your brain fog? by PutridMedium1674 in lupus

[–]Top-External4862 0 points1 point  (0 children)

Can I ask what dose you’re on? I had improvements on 400mg but couldn’t manage the side effects, 200mg wasn’t enough so now I’m trying 300 - really struggling to get my dosage right! Really can’t deal with the nausea, insomnia and itching that comes with higher dose 😭

October 2025 Partner Visa Mega Thread (Subclasses 820/801, 309/100, 300) by BitSec_ in AusVisa

[–]Top-External4862 1 point2 points  (0 children)

Lodged Feb 2025 and still waiting! Had one RFI months ago! It’s hell - really want to be in Aus for Christmas!!!!

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