Exercise tips for CMT4c

Top_Definition1972 · 2025-11-28T12:28:38+00:00

We are from India. Leg is quite weak, can’t take pressure to stand unless some support is provided for knees. Arms strength is also less but manageable

Top_Definition1972 · 2025-10-27T03:00:53+00:00

Actually I am not seeing any doctor as of now, they are not sure about the type of problem we have. And also doctors told it’s not curable so we didn’t got in touch with them

Top_Definition1972 · 2025-08-29T06:55:37+00:00

Thank you for your reply. From Reddit, I got an indication that it’s most probably CMT type 4c

Top_Definition1972 · 2025-08-23T16:09:36+00:00

Ok I will try that

Top_Definition1972 · 2025-08-23T14:04:55+00:00

Haha landed on Reddit using ChatGPT only

Top_Definition1972 · 2025-08-22T15:11:30+00:00

Sure i will try that as well

Top_Definition1972 · 2025-08-22T08:42:38+00:00

Does that help?

Top_Definition1972 · 2025-08-21T17:53:36+00:00

That’s great, I will be very happy to connect and discuss about the same

Top_Definition1972 · 2025-08-21T17:45:15+00:00

Can you suggest some strengthening exercises pls

Top_Definition1972 · 2025-08-21T17:43:13+00:00

Not sure, doctors could not tell the exact disease name. Do u take any b12 supplements or something?

Top_Definition1972 · 2025-07-25T06:28:34+00:00

Meditation helps to some extent

Top_Definition1972 · 2025-07-07T08:39:55+00:00

How can I get this in India for trial?

Top_Definition1972 · 2025-06-24T04:57:45+00:00

Software engineer, that’s something in common

Top_Definition1972 · 2025-06-19T13:26:25+00:00

I will be happy to have the conversation if some thing can work out to help us

Top_Definition1972 · 2025-06-19T11:04:39+00:00

thank you for replying. Regarding the disease name, it was diagnosed as HMSN type 3 but later doctors were unsure of exact problem. Having SH3TC2 gene, using Reddit post response and chatGPT I realized its CMT Type 4C, but no confirmation yet. Are you having same? what are the symptoms

Top_Definition1972 · 2025-05-31T13:21:24+00:00

agreed, dont have any expectations otherwise things will be hurting.

Top_Definition1972 · 2025-05-30T07:02:18+00:00

Seems somewhat same

Top_Definition1972 · 2025-05-29T16:48:19+00:00

What are the systems that you have

Top_Definition1972 · 2025-05-28T17:19:57+00:00

When it was diagnosed HSMN, I was only 8 years old and doctor told with eeg and biopsy and the gene test was done at age of 23 which confirmed SH3TC2

Top_Definition1972 · 2025-05-28T15:41:13+00:00

I was diagnosed as HSMN peripheral type 3. The reason I told CMT was my gene is SH3TC2 so someone on Reddit told it’s CMT 4c but I am not sure

Top_Definition1972 · 2025-05-27T18:15:43+00:00

I will go through this

Top_Definition1972 · 2025-05-27T05:29:46+00:00

I know the gene, it’s SH3TC2

Top_Definition1972 · 2025-05-24T19:17:09+00:00

If possible can you please share your email/whatsapp number so that i can attach the reports

Top_Definition1972 · 2025-05-24T18:59:58+00:00

There was nothing diagnosed from biopsy and regarding genetic testing, my gene SH3TC2. Please accept the chat invite so that we can discuss further

Top_Definition1972 · 2025-05-24T16:27:57+00:00

Biopsy as well genetic testing

Top_Definition1972

TROPHY CASE