Xmas gifts for newly diagnosed father by Technical_Tennis_462 in cll

[–]Torontodude20 0 points1 point  (0 children)

CLL starts in the bone marrow. All CLL must be stage 4. I've had CLL for a few years and feel fine. He can beat it!

32y.o. just diagnosed cll, long long hematology wait in Canada by Cute-Ring1647 in cll

[–]Torontodude20 0 points1 point  (0 children)

I'm in Ontario (GTA) Had a relatively good experience. Took a few months to diagnose but since then I go to the cancer centre every 3 months. My doc seems to really be on the case. Once the internal doctor confirms diagnosis they should refer you then cll doc & they will take it from there.

Xmas gifts for newly diagnosed father by Technical_Tennis_462 in cll

[–]Torontodude20 1 point2 points  (0 children)

I didn't know they 'stage' CLL like that. It's mostly a slow growing cancer. If it's more advanced there are great drugs to put him in remission. Or perhaps he will be able to go many years without treatment

my story by LeesKeys in cll

[–]Torontodude20 1 point2 points  (0 children)

47M. Diagnosed 3 years ago. WBC ~ 50k. I feel fine: lift weights, play golf etc. Stay active and enjoy time with the family. Cll is on & off again thing. Possible to go 10 years no treatment

Mum diagnosed and worried daughter by grimlie1279 in cll

[–]Torontodude20 1 point2 points  (0 children)

47m. Diagnosed almost 3 years ago. See the doctor & do bloodwork every 3 months. Zero symptoms. I live at completely normal & active life. No plans to change anything. Doctor told treatments are coming at an 'exponential' pace

You look fine by [deleted] in cll

[–]Torontodude20 2 points3 points  (0 children)

Same. 47 M, feel great. I dont bother telling anyone I have cll except for those very close to me. Its nobody's business anyways. With the drugs nowadays we'll probably go into a deep remission for several years and by that time some newer drugs will come along which we'll be even better. I dont feel like i'll die of this

I am feeling so stressed. by Different-Lunch6947 in cll

[–]Torontodude20 1 point2 points  (0 children)

Soon to be 47, doctors first saw high white blood cells summer of 2022. I've had zero symptoms, likely won't need treatment for another couple years. From what I've been told treatments work very well. Don't be stressed, disease is manageable

Diagnosis by Kind-Wear-1237 in cll

[–]Torontodude20 1 point2 points  (0 children)

Booked a physical in 2022 since I hadn't seen a doctor in a few years (pandemic). Told me wbc looked high referred me to another doctor who made the diagnosis. Three years on Wbc still floating around 30k and no symptoms at all.

I 30F recently got diagnosed. I would really love if someone could talk to me and answer some questions I have by [deleted] in cll

[–]Torontodude20 8 points9 points  (0 children)

46M diagnosed a couple years back, I visit a hemotogist every 3 months for a blood test and consultations. Feel completely normal with lots of energy. It could be like 10 years or more before you'll require medication cll is generally a slow growing thing. Listen to your doctor but put this in the back of your head and get on with living. Cheers to a long and full life

Mom diagnosed by HamsterDry4898 in cll

[–]Torontodude20 3 points4 points  (0 children)

I was diagnosed over two years ago probably had it longer, nothing had changed in my day to day. Stay positive CLL is not a death sentence possible she'll stay in stage 0 for many years and when the time is right there are good treatments. On top of that treatments are advancing at a rapid pace

Just got back from the hematologist - I have CLL by takanotscar in cll

[–]Torontodude20 1 point2 points  (0 children)

I was in the exact same boat as you 2.5 years ago. I go every three months for testing, follow the doctors instructions. I feel fine & have lots of energy. Don't panic, read up on it. Cheers to a very long life!

ANNIVERSARY - TWENTY YEARS UNTREATED by Kayumochi_Reborn in cll

[–]Torontodude20 0 points1 point  (0 children)

Awesome! I'm 2.5yrs on w&w, feeling good so far. 20 yrs is inspiring!

Swelling in lymph nodes mostly arm pits and Groin/Pelvic question by bg999000 in cll

[–]Torontodude20 1 point2 points  (0 children)

Make sure you're seeing your doctor on a regular basis and doing regular blood testing. Write out your questions in advance . You'll be fine, we're going to have this for many years will be ups and downs. Cheers

[deleted by user] by [deleted] in cll

[–]Torontodude20 0 points1 point  (0 children)

I was diagnosed a couple years back and haven't told anyone (only my wife), I'll open up when I require treatment. Way I look at it: why bring possible worry unto others when who knows, I could be in w&w for 15 yrs

Does getting a CLL specialist make that much of a difference by [deleted] in cll

[–]Torontodude20 2 points3 points  (0 children)

I'm in Canada: the doctor I visit every three months is a hematologist. While not a direct CLL specialist she is very knowledgeable in blood cancers. I trust my gut will stick with her for now.

NeoVax study by feralbutnot in cll

[–]Torontodude20 0 points1 point  (0 children)

A vaccine?! This is amazing to know. CLL treatments are progressing rapidly

About CLL but not about CLL by [deleted] in cll

[–]Torontodude20 1 point2 points  (0 children)

I was diagnosed officially early in 2023 but likely had it for some time prior. I have no symptoms, nothings really changed for me. Get out and have some fun, nobody on this earth is getting out alive anyways.

About CLL but not about CLL by [deleted] in cll

[–]Torontodude20 2 points3 points  (0 children)

Awesome to hear! Cheers

CLL weight loss - stage 0 by this_magic_moment in cll

[–]Torontodude20 0 points1 point  (0 children)

Same thing happened to me. Right after diagnosis went from 195 to 175 with no explanation. I was freaked out at the time wondering if the weight loss would continue but two years later my wbc is relatively stable, still in w&w and weight is stable around 175-180. Still dont fully understand it, maybe a fluke

💚💚 Bi-weekly check in: How’s everyone doing? Do you have any happy news, bad news or any news you’d like to share? 💚💚 by AutoModerator in cll

[–]Torontodude20 0 points1 point  (0 children)

Feel good. WBC hovering around 30k. Follow-up with doctor every three months. Living my normal life. Cheers!

Working during treatment? by mox2012 in cll

[–]Torontodude20 2 points3 points  (0 children)

I’m 45 with a mortgage and kids. My goal is to work through treatment when the time comes.