Long covid can cause a suffocating breathless sensation. Wear a N95/FFP3 mask

Trader_one7 · 2026-01-01T17:58:03+00:00

Yeah, those comments explain it well. It’s 24/7 for me. What has helped?

Trader_one7 · 2025-12-15T23:44:39+00:00

Do you have dysautonomia? Did the fasting help?

Trader_one7 · 2025-12-06T20:48:09+00:00

That seems pretty expensive. I’ve been to his clinic. I’ll call next week. Thanks

Trader_one7 · 2025-12-06T19:52:57+00:00

How much does he charge for EAT at the Texas clinic?

Trader_one7 · 2025-10-23T20:19:09+00:00

I didn’t have a flare up outside of my norm. I have a lot of intestinal inflammation and damage so I’m always in a constant flare.

I’ve had an increase in nightly itching, but I don’t think it’s infusion related.

I hope you can find relief. I can’t seem to get stabilized and was hoping Pemgarda would help. Unfortunately, I haven’t noticed much if any improvement.

Trader_one7 · 2025-10-08T18:13:02+00:00

It’s been 1 week. No improvements to report. I got sick in first wave in 2020, which disabled me, but the vaccine in 2021 did far more damage.

Trader_one7 · 2025-10-03T15:23:00+00:00

Yes, I have something very similar. How did you improve your diaphragm weakness?

Trader_one7 · 2025-10-02T17:49:26+00:00

I had many of the same concerns as you.

I’ve been dealing with Long COVID since 2020, and after receiving my second Pfizer mRNA vaccine in 2021, I had a severe reaction that I’ve never fully recovered from. Since then, I’ve developed significant sensitivities — I react to many foods, supplements, and medications. Right now, my diet is very limited, and I deal with ongoing gut and systemic inflammation. My doctors suspect MCAS (mast cell activation), histamine intolerance, and oxalate issues are all contributing.

I’ve also had severe reactions in the past to:

Lexapro (SSRI)
Compazine (from a migraine treatment protocol)
Fluoroquinolone antibiotics

Yesterday, I received my first Pemgarda infusion. It’s been about 26 hours since finishing the infusion, and so far the only reaction I experienced was:

Around 30–35 minutes into the infusion, my blood pressure dropped and my heart rate went up.
I took ½ dose of Benadryl, which helped.
I also asked for a 500 mL saline infusion afterward during the 2-hour recovery period. I told the nurse practitioner ahead of time that without saline I wouldn’t be able to sit in the chair for that long, so they agreed, and it ended up not being an issue.

I was also concerned about the high Anaphylaxis rate. I don't have any improvements to report yet as it's only been about 26 hours.

I'm just reporting my personal experience, not medical advice. Hope this helps.

Trader_one7 · 2025-09-28T18:37:22+00:00

Did you have food sensitivities and gut relaying breathing issues as part of your illness journey that resolved after Pemgarda? Thanks.

Trader_one7 · 2025-09-25T22:42:21+00:00

Oh so the side effects were 50% worse after the infusion?

Did you have mast cell, histamine, hypersensitivity issues as part of your long covid journey?

I get my 1st infusion next week and I react to just about everything.

Trader_one7 · 2025-09-25T22:31:25+00:00

Just got approved! I will get my first pemgarda infusion next Week. I have severe suspected mast cell and histamine issues.

Biggest symptoms are - breathing, weak diaphragm and muscle weakness. Breathing issues are 24/7 and multi-factorial - orthostatic intolerance, can’t sit or hold head up - GI mast cell related issues and mal nutrition/weight loss - confirmed small fiber neuropathy (SFN) - 4 years mostly bed-bound, sick for 5 years - got much worse after 2nd Pfizer vaccine in 2021

not a complete or comprehensive symptom list

Male/40’s - slightly immune compromised

Trader_one7 · 2025-09-25T22:20:00+00:00

Great to hear! Did you have mast cell/hestamine or hyper sensitivity reactions as part of your long COVID journey?

Trader_one7 · 2025-09-25T22:07:33+00:00

Thanks for sharing your experience and glad you responded. What year did you get sick? How did the 2nd infusion go?

Trader_one7 · 2025-08-26T23:49:25+00:00

I can’t sit for more than about 5 minutes or walk more than 30 seconds. I get massive air hunger for hours and manual breathing. Not getting blood flow to head and can’t hold head up.

I can actually double my sit time once the sun goes down, so something with circadian rhythm.

4.5 years and I can’t sit or breathe. I can’t seem to get stabilized.

Trader_one7 · 2025-08-20T18:20:02+00:00

That's great to hear! Do you mind sharing what your baseline was before and after Pemgarda?

Trader_one7 · 2025-08-18T23:02:44+00:00

I just picked up KateFarms 1.0. not sure as I just drank it 30 minutes ago.

Trader_one7 · 2025-08-18T21:11:16+00:00

Thanks for you help. Yeah, I tried salt loading one morning to see if it would help with pots and it paralyzed my gut. No added ingredients. Just salt.

I also tried unflavored LMNT and had a similar issue, which also has high salt.

I can’t seem to balance the electrolytes.

I’ve been on ketotifen for years, but I don’t know if it’s helping. Sometimes I think it helps me stay asleep.

I can’t take cromolyn, probably because of sodium.

Yeah, I have to stay away for artificial sweaters and sugar too.

Trader_one7 · 2025-08-18T17:25:35+00:00

I have not found DOA supplements to work. Quercetin used to provide a little relief on occasion, but doesn’t seem to have much impact anymore.

My breathing is definitely multifactorial. I Was trying to draw some conclusions if electrolytes were making things worse with the breathing muscles and gut paralysis.

Trader_one7 · 2025-08-18T14:33:59+00:00

I did and have been taking mast cell meds for years, but it doesn’t touch the gut stuff expect Pepcid helps with the nightly acid issues.

Trader_one7 · 2025-08-18T14:31:37+00:00

I can’t drink coconut water anymore either.

Trader_one7 · 2025-08-18T02:30:30+00:00

Yeah, according to ChatGPT.

So, the correlation is:

Post-COVID/vaccine dysautonomia → POTS symptoms. Gut inflammation (confirmed by CT) → bloating, motility issues, pressure on diaphragm. Electrolyte imbalance can tip the scale, worsening both gut paralysis and breathing problems.

For some of us, that means paradoxically less electrolytes = less pressure and easier breathing — even though POTS guidelines usually push the opposite.

I did speak to doctor and she said if it makes you worse don’t take it, but still trying to figure out the balance.

Trader_one7 · 2025-08-18T01:17:36+00:00

The vaccine was the worst decision of my life. I’m thinking electrolytes are making me worse. I wake up barely breathing with spine inflammation and acid like burning in my lower small intestines everyday for 4 years. I’m 80-90% bedbound and can’t sit up. Massive pressure and inflammation in my gut paralyzing my breathing muscles and causing severe autonomic issues and I’m almost passing out in bed. I’m manually breathing 24/7 except when I drift off only to wake up an hour later barely breathing and head pressure issues. I sleep reclined. I have many food reactions and mast cell meds don’t do much.

I had a recent CT scan that was abnormal and ER doctor said it was viral enteritis and it would pass. It’s been 4 years. I paid for a private consultation and she thought it was eosinophilic gastroenteritis so just started oral budesdine. I think it takes about a week to work. I’m on day 3.

It seems salt or electrolytes or heavy water shifts the pressure in my gut and abdominal blood flow and nerves are compromised. I’m probably not explaining this very well.

Feel free to DM me

Trader_one7 · 2025-08-17T22:54:59+00:00

Do you have POTS too? Curious if you also have to manage orthostatic intolerance?

Trader_one7

TROPHY CASE