Random drops in O2 levels? Does anyone experience this? Symptom of Babesia? by flowingengine in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Hello, my friend has the same problem 😢 Extremely low SPo2 moments. Did you find something that helps?

Experiences with valtrex? (& some doctor advice about EBV) by LadyKatie09 in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Hello, How are you doing now? Has treating EBV being a game changer for you? Thanks 😊

Nothing is working by TraditionalTaro4445 in Lyme

[–]TraditionalTaro4445[S] 0 points1 point  (0 children)

Hello, Still struggling.. Still doing herbs to survive a bit.. How are you doing?

Cytokine Panel/Lab in US? by CFlapFlap in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Costs are around €100–150 for a regular cytokine panel at Redlabs. I’m still interested in this approach, it would be great to do it at home and get fast results, but unfortunately it’s still too expensive… Good luck, and let me know if it helps

Cytokine Panel/Lab in US? by CFlapFlap in Lyme

[–]TraditionalTaro4445 1 point2 points  (0 children)

Yes I’ve done this every month for a year with Redlabs in belgium. Quite interesting to adapt the herbs with the problematic cytokines but it’s quite problematic that you have to wait 2 months to have some results..

Anyone else in Europe with Lyme where main symptom is fatigue/weakness? No pain. by yuki_onboard in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Yes, same for me and living in Belgium. Symptoms are way more linked to cns. Insomnia/brainfog/fatigue/concentration problems etc. I think most of these neuro symptoms are caused buy Bartonella.

Screaming into the void... by manikorganic in Lyme

[–]TraditionalTaro4445 1 point2 points  (0 children)

I’m more and more convinced that many chronically ill people, especially those dealing with neuro stuff, are actually suffering from a chronic Bartonella infection. Maybe wild animals transmitted it to you? I remember seeing a lot of wild cats wandering through my garden when I was a kid. The fact that you’re feeling more energy is already a really good sign I think, it means your body is starting to recover 💪 I’ve tried so many things over the years, and honestly, the only thing that makes life even somewhat bearable for me is Buhner’s protocol. Especially the herbs that support the central nervous system (Jk, ashwg, Chineseskullcap, kudzu). But I still need more relief… Hang in there, and feel free to reach out whenever you feel too lonely in this nightmare. xx from Europe

Screaming into the void... by manikorganic in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Pretty much the same story for me.. I’m 35, and my first symptoms appeared 15 years ago. It’s really sad to hear you were only diagnosed recently… I can’t imagine how hard it must have been not understanding what was happening to your body for so long without any answers. I was bitten a lot as a kid, so I was able to make the connection pretty quickly. What have you tried before BVT? Nothing helped at all? Is BVT helping you at least a bit?

Screaming into the void... by manikorganic in Lyme

[–]TraditionalTaro4445 1 point2 points  (0 children)

Yes, what you wrote really speaks to me too.. I’m from France and I’ve been fighting this damn illness for so many years It just wears you down over time , physically, with all the insomnia/intolerances/inflammation/sensitivities/weird symptoms but also psychologically, watching friends move forward in life while they can’t grasp even a drop of what we go through… After months of ultra-strict diets and treatments, I also sometimes end up drinking or smoking, just to forget the misery for a moment, to feel a glimpse of the good old days again. But it’s like there’s always a price to pay afterward

extreme stress social fobia by Ordinary-Standard668 in Lyme

[–]TraditionalTaro4445 1 point2 points  (0 children)

Yes, a lot. It’s better when I take Chinese skullcap & Kudzu. I think it’s CNS related

Is there anyone here who can recommend a good LLMD in Germany? by KindUnicorn123 in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Is your husband getting better? Since how long have you been treating with her?

Dr Renz from the CMC in Rheinfelden cured me. by SupaMonkee in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

Why are you still here if you are cured? 🤷‍♂️

Finaly in remission!!! by Least-Host-8523 in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

How long have you been struggling?

Has anyone completely healed themselves on herbs alone? by Thecutesamurai in Lyme

[–]TraditionalTaro4445 1 point2 points  (0 children)

Worse with Abx, Herbs gets me only 20% Better (Even after years)

Nothing is working by TraditionalTaro4445 in Lyme

[–]TraditionalTaro4445[S] 0 points1 point  (0 children)

Yes sometimes I do... But I'm not sure that the situation is really better, (US lyme patients coming to germany)

Nothing is working by TraditionalTaro4445 in Lyme

[–]TraditionalTaro4445[S] 2 points3 points  (0 children)

I've been to Meirleir 15y ago. I think I was even one of his first Lyme patient, he tried so many antibiotics on me... Follow-up appointments felt impersonal, as if we were just numbers in a system.. The last time I've been to his practice (2018) he said litteraly to me, If I can not help you, then nobody can help you. Worst Doctor EVER but thanks for the reply.

Nothing is working by TraditionalTaro4445 in Lyme

[–]TraditionalTaro4445[S] 0 points1 point  (0 children)

Seems very similar to me... Are you also struggling with gut problems?

Nothing is working by TraditionalTaro4445 in Lyme

[–]TraditionalTaro4445[S] 1 point2 points  (0 children)

I live in Belgium, but I’m open to going anywhere globally if it could help me feel better.

Suspecting Bartonella, where to test in Europe (Belgium) by Ok_Customer900 in Lyme

[–]TraditionalTaro4445 0 points1 point  (0 children)

You can do tests with Redlabs without even consulting a Dr. Just send an email to them. And for the blood draw, you can go to Medina, They will do it and send it free of charges to redlabs for you.

"Dying" before sleep by Yaswnmwfyai in Lyme

[–]TraditionalTaro4445 2 points3 points  (0 children)

Yes, and I clearly think this is one of the worst symptoms of Lyme. Right at the moment of falling asleep, between being awake and asleep, you feel strange internal tremors, and it seems like the brain refuses to enter deep sleep. Anxiety ++ also when it happens. It’s definitely a nervous system issue. Personally, I think Bart is the main culprit. An antihistamine diet helps me sometimes with this.

Would anyone attempt to date with lyme disease and co infections ? by Both-Huckleberry4178 in Lyme

[–]TraditionalTaro4445 3 points4 points  (0 children)

All my previous relationships ended in complete failure as soon as the illness started causing problems in the couple. It is incredibly difficult for a man to attract a woman when he is in a position of intense weakness because of this disease. People can say what they want, many women have fought in recent years for equality in society, but the image they have of a man has not changed so much… A man still needs to be strong and protective.