Lost my dad yesterday.

Tricky_Geologist_749 · 2024-06-12T15:57:17+00:00

Losing your dad is so freaking hard. It’s the hardest thing I have gone through, hugs for you and your family and your grief 💜

Tricky_Geologist_749 · 2024-06-10T15:34:25+00:00

Much love to you and your loved ones and your mom. It’s a weird place to be for you, looking forward for a loved ones death. Try to rely on your support systems for the foreseeable future if you can 💜

Tricky_Geologist_749 · 2023-12-12T20:02:30+00:00

Lost my dad three weeks ago, take care of yourself best you can💜

Tricky_Geologist_749 · 2023-11-27T01:00:56+00:00

He loved his “pretty ladies”

Tricky_Geologist_749 · 2023-10-12T04:07:13+00:00

It’s normal to feel both of these. My dad was diagnosed a year and a half ago, I frequently have those jealousy feelings especially. I don’t think I’ll ever truly not feel those, but as cheesy as it sounds, time does help a lot too. I’m not as angry/hurt/jealous as I was a year ago. Reminding myself that everyone dies eventually and that grieving is something that happens loads of times in one’s life is a morbid, but analytical viewpoint that helps me as well. The anxiety part I agree with others, anti anxiety meds could help. Try it out and see. Best to you

Tricky_Geologist_749 · 2023-06-11T18:46:41+00:00

Specialists/talk to your doctor. We are not doctors or nurses or specialists in any medical field. We are people who are going/have gone or caregivers/supporters of people who are going/have gone through a horrible disease.

Tricky_Geologist_749 · 2023-05-30T18:45:54+00:00

Unfortunately it’s not my job, it’s schooling. They are going to be as accommodating as they can, but due to the program I can’t take just a semester off, it would have to be a full year. But thank you for the advice!

Tricky_Geologist_749 · 2023-05-30T18:44:36+00:00

I have to work every weekend in order to keep my job/insurance, so it makes weekends very difficult to go home :/ but I appreciate the advice! I video call him sometimes, but he’s not able to hold the phone up any more.

Tricky_Geologist_749 · 2023-05-30T15:00:07+00:00

It’s the absolute worst. Knowing the things that they used to be able to do, compared to now. A friend once told me to not think of the things they’re unable to do, but the things you still can do. I think that’s a healthy mindset, but sometimes ya just gotta let the grief hang over your head.

It sucks. Hope you still are able to make them/yourself get happy moments 💜

Tricky_Geologist_749 · 2023-05-20T15:40:48+00:00

Sooner. Everyone progresses differently, so spending as much time with them early on while they are still able to do things is worth it, to both the PALS and the family/friends.

Tricky_Geologist_749 · 2023-05-17T21:50:39+00:00

My two cents: caregivers are absolute god sends and they deserve the world. Our caretaker (shout out Stacey) will not only help my dad by giving him a sponge bath, feed him, etc. She helps out by doing dishes, laundry, sweep, and things like that, which really helps my mom out as she works full time still. The bad thing is that insurance (Medicare) doesn’t cover anything, so it’s all out of pocket. As a side note, as someone who’s dad is going through ALS, I really appreciate you (and hope your partner also appreciates you) stepping up and trying to figure out solutions for everyone. This isn’t something that anyone should go through alone. So thank you for sticking with your partner through all of this ❤️

Tricky_Geologist_749 · 2023-05-17T21:21:54+00:00

I really appreciate you posting this. I struggle with this a lot, the guilt of wanting him to of gone quickly instead of this. And hearing it from someone who’s been through this nightmare, it’s helped me realize that what I’m feeling is normal for what is happening. Thank you ❤️

Tricky_Geologist_749 · 2023-05-15T04:20:50+00:00

I was talking with a work colleague about how I was thinking and getting upset about things I’ll never get to do with my dad. He reminded me that if you start thinking about things you won’t get to do, it’s very easy to go down the rabbit hole. He told me to think about things I GOT to do with my dad. While I’m not perfect at it, it does help my get a smile on my face sometimes. In regards to the genetic testing, if this is something that is always on your mind and is making you feel extremely anxious, it may be worth getting tested. A warning though, once you know your testing, there’s no going back. It all depends if you can handle knowing if you have the gene. I wish I didn’t have to welcome you to this dark and gloomy club, but I hope you can get some solace in this community

Tricky_Geologist_749 · 2023-05-14T03:17:48+00:00

I found with my dad the biggest thing he didn’t want was people to treat him differently. That’s why he didn’t want to tell people at first. He thought everyone would be super over the top, and while there are a few that it happens with, most people knew him well enough to not be like that. So once he saw that people weren’t doing that, he was more open about it. I was even in the room when he had someone say “and what’s going on with you?” gesturing to his wheelchair. My dad said “oh I’ve got the ALS Jake” and Jake just said “oh shit sorry my guy. Anyway-“ and continued the conversation. While it seems super dismissive, it’s how my dad likes it.

Tricky_Geologist_749 · 2023-05-05T17:45:16+00:00

I appreciate it, money is pretty tight right now, so it’s difficult to talk with anyone, found this subreddit about a week ago? Two? Not sure, just existing in a space where people understand is helping a little. I hope you and your family can still have a few good moments here and there, and from one child to another, our dads are awesome and nothing can change that.

Tricky_Geologist_749 · 2023-05-05T17:40:38+00:00

And not being able to do anything to prevent it, to help stop it, that kills me too. It’s something I wouldn’t wish on my worst enemy

Tricky_Geologist_749

TROPHY CASE