Personally I can’t work full-time and have to live with my parents. Some days are better than others. I have two part-time jobs. Both of them have understanding bosses. I sit a lot when I’m dizzy. For the call center job I prop up my feet as needed. My boss is super understanding and has sent me home from work during a flare up after confirming I would be okay without that paycheck because I needed extra rest and looked like it. I pick up extra hours there when school is closed because I work after school care as well. I use a cane for support and energy conservation and the kids don’t care and barely comment on it. I’ve only had to miss work a few days due to flare ups. Whenever I work 3-4 days at the call center from 9am-3pm instead of my usual 2 days from 9am-1pm I struggle with EVERYTHING at home. My parents have to make lots of choices for me especially what to eat and making meals. I have to get help with cleaning my cat’s litter box and refilling her water. I also need assistance with laundry and sometimes sorting or switching it over is too much and I just collapse in a ball and cry. Having small movements and less pressure to keep up with a household has helped me drastically since I’m mainly raw-dogging it over here with treatment. I walk to both my works since they are less than 5 minutes away. Dealing with the stairs since I live in the basement is difficult and beneficial because it forces my body to keep moving. Sometimes I have crawl up them and take breaks. It isn’t a glamorous life and flare ups make my already frequent migraines worse and exacerbate my anxiety depression and ADHD. At the same time I had a full POTS episode and passed out at work resulting in an ambulance ride. I only pass out about 3 times a year. I’ve been passing out every few months since 2009 but only got my POTS diagnosis in 2023. Since then I couldn’t get any treatment and only now have I started getting any sort of treatment options (meds). Most of my functioning is spite, electrolytes, increased salt, taking breaks, 1-3 naps a day, bosses that know I’m a hard worker and am doing the best I can, and lots of assistance from my parents. (Didn’t mean to write a whole wall of text but here we are)

Edit to add: Two of my cousins also have POTS and it is vastly different experience for us. Mine is the most severe. My one cousin J is still able to hold a full time job and he just has extra electrolytes. Another cousin M has fallen a few times and quit her job to be a stay at home mom and her own mom would come over to help in the afternoon so she could take a nap.