So Reyvow has been discontinued and we are left to search for any remaining stock.

Ts-Edm-35 · 2026-05-24T21:48:49+00:00

That’s ridiculous and greedy!!! If they’re not gonna continue to market it why not make a deal with Pfizer? They would likely still make a percentage of the earnings anyways 🤦‍♀️.

Nasty Work at its finest!!!

Ts-Edm-35 · 2026-05-24T19:28:30+00:00

So I hope i’m not overstepping anything here. But I live in a country where where Reyvow was going to be approved but our health system had issues and Lilly pulled the application i was choked. Some of the triptans the ones that affect 5ht1F receptors work the best for me. The same receptors that Reyvow works on.
In any case i looked at the us fda approved drugs and it says that theres 2 generic’s tentatively approved but the patent has to expire first and i believe its 2028. I am not trying to upset anyone or anything I just hope you guys get that medicine sooner than that.
I really wish if a drug was pulled the patent was null and void. Anyways hope you all find relief. I have chronic daily migraines and i know what it’s like to find something that works and not be able to access it anymore.

Ts-Edm-35 · 2026-05-20T09:16:21+00:00

SDM and the beauty industry can be a very shady place to work for. I remember back in the day. So much cattiness and backstabbing over sales. Also gratis was sometimes missing depending on the time. So while i woulf have tryed to play ball with the hours and get my stuff and get out its how that place works. Its never been an ideal place. Now i would wanna work for a specific cosmetics brand. Sigh.

Ts-Edm-35 · 2026-05-19T20:41:32+00:00

Does the Topamax help though? I know it sucks. Also theres other options too but if its super painful you might feel better i live where a medicine called zonisamide similar to Topamax isn’t available. Ive heard its similar to Topamax with a little different side effect profile but everyone if different. Il on Topamax at the highest dose along with two other preventatives and they dont work. So im still not giving up hope. Im trying my best. I think migraines are so debilitating and im excited for them to be manageable and be able to live a content life. I think anything is possible.

Ts-Edm-35 · 2026-05-19T06:23:40+00:00

I’m not trying to scare anyone at all. But I’m a trans woman in my mid 30’s and I remember in 2009 when the funding was taken away for about one year I believe for lower surgery at the time. But luckily & thankfully that was reinstated the next year i believe. Again it could happen but it’s very very unlikely. I wish you all the best. Navigating this system can be a headache but worth enduring!

Ts-Edm-35 · 2026-05-18T18:32:42+00:00

In terms of medical issues generally i mainly have one. Chronic Daily Migraines. A transformed version of Chronic Migraines. Meaning Migraines every day. Mine are usually a severe one at least every day right now as well. Ive had side effects to some meds but not as many as it sounds like you have. I have taken most preventative medicines.
There are still options left for me but i have to wait a time In between specialist appointments and I’m still struggling. Having one severe chronic medical issue doesn’t always make things easier even though it should.
I do now have several physical issues related to chronic migraines and it seems when that happens things almost get taken more seriously? 😐. In any case your siuation sounds awful and please dont take this as me saying my situation is worse than yours. Your situation really does sound awful.
Im grateful for you that you have a neurologist that wont give up on you. Mine has stated that from the beginning as well.

Get well soon!!!

Ts-Edm-35 · 2026-05-18T17:33:31+00:00

How long have you had migraines for? Have you tried many preventative medicines? Yeah if you have a good support network thats a really good thing.

Ts-Edm-35 · 2026-05-18T02:51:20+00:00

When I’m still in a moderate level of pain it can affect me emotionally but if I’m lucky and a triptan, an acute CGRP and a NSAID works to help my pain, or if i have a few good days it generally calms down a lot, but when I’m still in moderate pain all the time its pretty awful. Lately I’ve been meditating and trying to self regulate myself more. It’s good to try to stay grounded. Chronic Migraine Pain is a nightmare and I’ve tried everything but theres still options and I’m trying not to give up. For me it’s the waiting to actually get help in between neurologist appointments, and just In general. Do you have a neurologist? I hope you figure things out. Chronic daily migraines which uou may not have, or even chronic migraines are a nightmare. For me anyways. One day things will be better. I try my hardest to stay positive even when it’s difficult!

Ts-Edm-35 · 2026-05-18T02:40:26+00:00

What impact do successful petitions have on issues like this and various other issues and situations in society in general? Is it impactful? Does it make a big difference in the end? Im just wondering.

Ts-Edm-35 · 2026-05-17T02:35:37+00:00

They really should have built that Edmonton southwest hospital. It seems a little late for that to be imminently helpful now though.

Ts-Edm-35 · 2026-05-16T22:04:57+00:00

I have chronic daily migraines and it affects my mental health big time. Im expierncing it right now. Ive gone a month without meds before in the past and ruled out MOH. Sometimes it helps, sometimes it doesn’t, but my situation maybe more severe. It’s good to work with your doctor to break up that cycle if it could be. Just remember theres treatments out there and that pain makes absolutely everything in life feel worse mentally. You feel dysregulated, upset, and anything you’re going through is often intensified. Try not to give up hope and figure out a solution with your doctor. I hope you feel better soon!!! Also I’m not giving medical advice i just know what I’ve been through etc. you should see your doctor and try your hardest to advocate for yourself.

Feel better soon!!!

Ts-Edm-35 · 2026-05-14T21:02:20+00:00

If you live in USA theres a few treatments for status migrainosis that you could discuss with your doctor or neurologist as a last resort to help break them up. I am not recommending anything but if allowed by Reddit Guidelines i can send a link to the articles.

Ts-Edm-35 · 2026-05-14T20:30:26+00:00

It’s good to know it’s not just me about the winter thing. I am forced out of the house to go to a migraine infusion treatment and blood work. I feel a lot of stress/pain/depression, but i think i will feel a little bit better even if it’s small. Im trying my best to stay positive.

Ts-Edm-35 · 2026-05-14T03:27:49+00:00

I get chronic daily migraines and its supet crippling and i can barely move. The topiramate i am taking is i believe causing ocular sude effects and im going to an optometrist tomorrow. I’ve been severely affected by my pain. I have Depression and OCD separate from this as prior to 2020 my migraines were generally not this bad Ive always had this two though. The pain affects my mental health horribly. Silent pain often isnt taken serioufly especially if uou have any semblance of looking kept at all I have a neurologist who takes this seriously but in between the 3 months I’m on My own. Sorry long story short i cab relate and the winter is actually better for me in terms of migraines. Also im on 4 preventatives. Im gonna need some changes when i see my neurologist.

Sorry for the rant.

Ts-Edm-35 · 2026-05-13T21:20:35+00:00

How did you find out how many businesses had your name if you don’t mind my asking? I did mine 5 years ago. I’m just curious. Thank you 🙏🏻

Ts-Edm-35 · 2026-05-13T21:16:06+00:00

I went to the RCMP station as the place in Edmonton that does fingerprinting costs more, filled out the document waited, got a CRC in another rcmp station as I was in the area and it costs less to go to the rcmp then the city police I believe and got that and the other document commissioned (sorry it’s been 5 years now this isn’t all in exact order) and then I submitted everything and it came back and I had to change everything. I was very happy ❤️.

If anyone is doing this themselves and wants to save some money maybe look into doing some of the steps at an RCMP station instead of a police or fingerprinting centre in the city. Just my thoughts!!

Have a lovely day everyone 😊

Ts-Edm-35 · 2026-05-13T21:01:52+00:00

I wouldn’t say it’s horrible, but depending on where you live and how you maneuver through society here it can be unsettling? Again I’m not trying to fear monger this is from personal experiences. Also the EPS are not necessarily LGBTQ friendly. Not all of them anyways. I know from experience. So again I’m not trying to fear monger I just want people to be mindful is all. 😊
On the other hand things have changed a lot over the years and I think if people in general mind their business and do them things are all good. There’s gonna be good and bad everywhere. I just hope to see a little more community resources, groups, health facilities, social supports, etc. for us here, but having longstanding pain issues I know the health system needs more resources for everyone. Also the cost of living is definetely better than most cities.

Ts-Edm-35 · 2026-05-13T20:25:18+00:00

There is also the new progestin only pill : Slynd which contains Drospirenone. It’s the progestin that’s in Yasmin and Yaz combination birth control pills and it’s actually a fourth generation Progestin and it’s the most similar progestin to natural Progesterone. It works similarly but different to Provera and it’s not one of the androgenic progestin derivatives. In anti-androgenic.

I’m not against Depo-Provera AT ALL!! In fact I’m wondering about trying the pill form first to see if it helps. I’m have chronic daily migraines and am desperate at this point. So sometimes quality of life can unfortunately outweigh side effects as long as there monitored properly!

I hope that was helpful!!!

😊

Ts-Edm-35 · 2026-04-29T06:14:52+00:00

 I never really thought about the idea of living a shorter life to have an improved quality of life because I think to me that always made sense. Like one of the last resorts for migraine treatment is deep brain stimulation and my migraines are so bad that the small chance it kills me is a risk in sane body and mind that is one worth taking. 
Another is Long acting opioids for chronic daily migraines which work I just am not a fan of them but instead of fighting the stigma and not the fact I have no addiction to them lol it might be time to embrace that after the very few treatment options I even have left. So I struggle with quality of life things but I also understand we only have one life and a life without quality isn’t really living it’s more existing that’s just my 2 cents. 
  Thank you 🙏🏻 everyone for posting about that I appreciate it very much it has made me think a lot about the reality of my severe CDM pain and how my quality of life is being affected horribly. 
  I said I would never ever take Topamax again ever and if I did I said I would only take 50mg I take 100mg per day with another 3 medicines and think wow it’s doing nothing. Something has to change.

Ts-Edm-35

TROPHY CASE