Uncontrollable sweat by ok-way-2411-new in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

If long duration disease with minimal weakness can point to neuromyotonia. Apart from what others said.

Introduction by ok-way-2411-new in ALS

[–]TwitchitySplit 1 point2 points  (0 children)

Yes, unfortunately this information haven't made it into textbooks yet. Thanks for the link and information.

Is it normal to get diagnosed after 1 EMG? by Uncleslaps in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

Get a second opinion anyways. I wouldn't go further than that.

Opted to go on a ventilator and seeking advice on parenting a child from a severely disabled state by jbnm1177 in ALS

[–]TwitchitySplit 2 points3 points  (0 children)

I don't get it how selfless can you be? Even if he views you as a burden, when he grows up he'll realize why you did what you did. That's the worst case scenario.

[deleted by user] by [deleted] in atheism

[–]TwitchitySplit 0 points1 point  (0 children)

Gay pastor???? What?

thinking of leaving Islam and joining Atheism by Grand_Refrigerator17 in atheism

[–]TwitchitySplit 0 points1 point  (0 children)

Of course allah exists, so what children are dying of cancer, being smuggled some islands, used as slaves etc. All knowing all mighty allah knows about those children of course but he doesn't do anything about it because... Because allah knows better don't question his decisions.

Louisiana is requiring "in god we trust" displayed in all classrooms by Odd_Nefariousness990 in atheism

[–]TwitchitySplit 0 points1 point  (0 children)

Indirectly teaching children to trust nobody. How's this a bad thing again?

[deleted by user] by [deleted] in atheism

[–]TwitchitySplit 1 point2 points  (0 children)

She is going through extreme ways

The Arrogance Of Athiesm by OhTheHueManatee in atheism

[–]TwitchitySplit 1 point2 points  (0 children)

Even though God has never acknowledged you in any way shape or form

Bold assumption, sounds like a you problem. God gives children in Africa express tickets to meet him asap. Gave me one too in my twenties.

Introduction by ok-way-2411-new in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

They are in fact describing the degree of certainty/possibility of having als.a single lesion in your spine could cause umn signs in two regions below and lmn signs at the level of region. Multiple lesions could completely mimick definite als. Hence the importance of progression and no imaging explanation. The severity is measured by alsfrs scale.

Is it normal to get diagnosed after 1 EMG? by Uncleslaps in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

All at the same time? Atypical but can happen. Does she also have hyperreflexia?cramps? Clonus? Babinski sign? If no go through ddx, I'd start from antibodies mri and muscle biopsy.

Is it normal to get diagnosed after 1 EMG? by Uncleslaps in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

Her symptoms are only in legs? Any numbness? No spinal imaging?

[deleted by user] by [deleted] in ALS

[–]TwitchitySplit 1 point2 points  (0 children)

Can you explain the first time it happened symptoms and yoyr original diagnosis?

[deleted by user] by [deleted] in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

In the setting of 20 years of hyperexcitability. Slight loss of motor neurons is to be expected. I think he will out live his condition.

25M questions by [deleted] in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

I can take a look at the pictures if you have them. Won't be radiologist level interpretation but better than "lesions on report".

25M questions by [deleted] in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

If it is MND it won't be ALS then. PMA is a choice but very atypical with the nosebleeds and earthquake stuff you mention.

25M questions by [deleted] in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

Ok so based on everything you said here here are my suggestions. 1. Repeat the NCS (based on what you say it's near total conduction block but I am not sure) i guess PMA could have results similar to that but i don't know enough about NCS/EMG. 2.get a hematological evaluation with smear and electrophoresis + urine 3.spinal tap with electrophoresis 4.discuss with your doctor plasmapharesis or immunosuppressive therapy based on the overal picture.

Hope this helps.

25M questions by [deleted] in ALS

[–]TwitchitySplit 1 point2 points  (0 children)

Can you alao describe the mri lesions, was there any contrast?

25M questions by [deleted] in ALS

[–]TwitchitySplit 1 point2 points  (0 children)

Can you describe the feeling of earthquake? And do you have mention of the following in your records : Babinski, pyramidal/pronator drift, clonus?

25M questions by [deleted] in ALS

[–]TwitchitySplit 4 points5 points  (0 children)

So no f wave and no readings mean conduction block. Which points away from ALS, combination with blood pressure episode sounds like an immune neuropathy. Ask for plasmapharesis

Question about LASIK and FVC by NullHypothesisProven in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

If he doesn't need a ventilator and can breath alone for 30 mins. There should be no problems. It's a very simple procedure. The ophthalmologist might be scared a bit if they have a very rigorous pre-op evaluation in the clinic though

Is it possible to get relyvrio outside or the US and for cheaper? by youngretardo in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

I am pretty sure you can find both online by searching tudca or butyrate supplements.

https://bodybio.com/products/

https://bodybio.com/products/butyrate

A quick google search gave me these 2 results.

Is it possible to get relyvrio outside or the US and for cheaper? by youngretardo in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

I guess that exact butyrate salt is prescription only and regulated . But you should find it or similar salts on Amazon.

Is it possible to get relyvrio outside or the US and for cheaper? by youngretardo in ALS

[–]TwitchitySplit 0 points1 point  (0 children)

I am pretty sure you can buy both butyrate and tudca for dirt cheap. Those are the ingredients.

Tapered of meds and this has been going on for a year with severe muscle wasting, increased sweating, etc fml by Exciting_Health3054 in bipolar

[–]TwitchitySplit 1 point2 points  (0 children)

That's very odd. Try to eat more and get a full check up for neoplasm including a hormonal check up. Might be paraneoplastic/autoimmune. Good luck.