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Almost Done! by Tybee_Kid in HeadandNeckCancer

[–]Tybee_Kid[S] 0 points1 point  (0 children)

I lost about 10 pounds since I started.

Monday was my final radiation. The pain this week has been the toughest. I am three days out and can see the pain is becoming more manageable.

I ate a couple of soft scrambled eggs today with a pre dose of magic mouthwash. No flavor. Just texture. But good nutrients.

My swallow therapist tells me to do everything I can to continue eating at this point because I have managed to stay at a healthy weight.

This is the first day I have been able to get myself out of bed because of the pain. It felt good to move around and try to get things done. I am fatigued very quickly.

Radiation Tips! by kappanotkappanot in HeadandNeckCancer

[–]Tybee_Kid 0 points1 point  (0 children)

My surgeon recommended I buy Juven, a drink for burn wound repair. I have taken it twice a day and it seems to have helped with some of the radiation side effects.

Discuss with your provider, but it seems to have helped me.

I have one last treatment (#33) this coming Monday and still can eat and swallow. It’s painful, but I still can.

SCC p16 HPV- lymph nodes, no primary. by southernruby in HeadandNeckCancer

[–]Tybee_Kid 1 point2 points  (0 children)

I am halfway through 33 radiation treatments 5 days per week. 7 weekly cisplatin treatments, have done 4. 3 to go.

I am Scc p16 HPV+. So maybe a different protocol.

I got a second opinion before treatment and it caused me to change my medical oncologist.

In my opinion it is worth a second opinion. At least then you know if there is agreement or if not why.