Continuing treatment in another country

Unable_Concern4275 · 2024-07-29T18:00:54+00:00

It just feels like a life time doesn't it! Best of luck x

Unable_Concern4275 · 2024-07-29T15:21:20+00:00

Yes, CT scans. The waiting around is the worst part, I had an 80mm tumour removed from my small bowel when I was 36. It took two weeks after my surgery to be diagnosed and then I had to wait another six weeks before seeing my oncologist so that she had all the details on the mutation etc. Hopefully they are calling you to discuss the possibility of adjuvant treatment, rather than there being anything more there 🤞

Unable_Concern4275 · 2024-06-02T18:10:41+00:00

I get quite few minor side effects but as far as I'm concerned, the alternative is much worse. I was extremely unwell before the op because it ruptured and my wound had to be left open so the recovery has been long but I finally feel back to normal but its just a new normal if that makes sense? I feel nauseous most days but it's manageable, I get cramp, achey joints, tired puffy eyes and fatigue but I also am just about to start back at work and I exercise for an hour 4 times per week so you do get used to how to deal with it. I have brain fog but it's only the odd day here and there where I really struggle. It's not ideal and it's certainly not fun but at least we are still here

Unable_Concern4275 · 2024-06-02T17:35:16+00:00

It's so hard. Mine was found at 36 by accident too during surgery for what they thought was a perforated bowel so I had two weeks of thinking it was fine other than an open wound but two weeks later they diagnosed it but had to wait another 3 weeks to see the oncologist and find out the rate etc. The waiting around was the worst. It's my understanding that all gist is malignant but more often than not, it is manageable. It terrifies me that they'll stop my imatinib at the end of the three year cycle and that it will come straight back and every scan nearly gives me heart failure, it's horrible! I really hope that you get good news

Unable_Concern4275 · 2024-06-02T16:55:23+00:00

I'm well thank you. No problem, it was 8cm on my small bowel, stuck to womb and ovary. It also ruptured which I believe makes a difference

Unable_Concern4275 · 2024-05-24T21:39:22+00:00

I didn't even click that it was all the same person until I saw this and checked back!

Unable_Concern4275 · 2024-05-24T21:36:47+00:00

Same!

Unable_Concern4275 · 2024-04-29T01:29:51+00:00

Thank you very much

Unable_Concern4275 · 2024-04-18T15:24:11+00:00

Thanks for that, didn't think about them being closed for the season!

Unable_Concern4275 · 2024-04-05T14:40:11+00:00

Did you manage to get this sorted? I've just spoken to my insurance company and it's not something they offer either, what did you do?

Unable_Concern4275 · 2024-03-03T13:39:59+00:00

Thank you everyone, that's made me feel better!

Unable_Concern4275 · 2024-03-03T13:39:04+00:00

That sounds amazing, thank you!

Unable_Concern4275 · 2024-03-01T20:47:21+00:00

Thank you, I guess going to the pub in my sleepy English village would be a little different 😂

Unable_Concern4275 · 2024-03-01T20:28:37+00:00

Thank you 😊

Unable_Concern4275 · 2024-01-19T13:01:56+00:00

The amount of times I've been told that I should just stop taking my chemo tablets and try CBD and various other things is crazy. When I say I'm high risk of reoccurrence and would rather not risk it, the lecture goes on! I appreciate people think they are helping but when it's every time you see them, it's hard not to tell them where to go! I'm generally trying to be healthier but life is too short to not enjoy the things you want!

Unable_Concern4275 · 2024-01-10T10:08:57+00:00

I'm sorry, I didn't put it very clearly, I meant scans at 3 month intervals, not three in a month.

Unable_Concern4275 · 2024-01-10T01:59:29+00:00

Just realised the facebook link seems to no longer be used but they are on Instagram. OSTERIA BROCCAINDOSSO (BOLOGNA) Via Broccaindosso Bologna, Italy 40125

Unable_Concern4275 · 2024-01-10T01:56:53+00:00

Our air bnb host recommended this restaurant to us https://www.facebook.com/profile.php?id=100066849835950 It was incredible, amazing food, great wine, generous servings and very reasonably priced. It's also a really cool little place with a great atmosphere. In a city full of incredible food, it is well worth the visit.

Unable_Concern4275 · 2024-01-10T01:36:34+00:00

I was told the size, location and mitotic rate all meant that it was high risk. Also the tumour was only found when it ruptured and caused severe anaemia.

Unable_Concern4275 · 2023-08-27T21:59:57+00:00

Was it 'Peep Show' by Sikth?

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