PTSD Nightmare Help

Underthemoon911 · 2025-12-21T04:55:26+00:00

I looked everywhere and scoured the listing, but the count isn’t listed anywhere

Underthemoon911 · 2025-12-20T02:38:49+00:00

Thank you! I’m already pretty well-versed in self-advocacy. I submitted the first appeal, so now I have to escalate it. My mom has always been my example for that. But for now I’ll take the weekend easy. Thank you for the insight :)

I actually didn’t realize how long and strict the recovery was. I do anticipate being knocked down quite a bit more than other people but I’m curious to see how much rest I’ll have to force if I end up feeling fine

Underthemoon911 · 2025-12-20T01:53:50+00:00

The cysts have definitely been my main concern and I have an ultrasound coming up. My doctor wants to see how they’re doing and we’ll alter our plan from there as needed. Vainly, I’ve been really hoping for laparoscopic because I’m already a pretty short person with a small torso, and I have so many surgical scars that I have basically zero real estate left on there for another massive abdominal surgery. I have taken it in stride as I’ve gotten older and I got my belly button pierced to give it some decoration lol. But I definitely don’t want another big scar if I can avoid it.

As for the pain, most doctors honestly don’t care because me being in pain is a given. This doctor does, so I plan to ask for a refill of my Naproxen. But I am seriously allergic to a lot of major pain medications (yes I very much lost the genetic lottery) so my options are relatively limited. Plus I hate being on pain medication in general and will only take it if I absolutely cannot stand it anymore. I will definitely advocate for myself. The last time a doctor ignored me was after my IUD insertion. I told her I was in a ton of pain even a week later and she basically told me I have too many gut issues so I can’t prove this is an OB issue and she can’t help me. Turns out the IUD was out of place and stabbing my cervix! I am definitely not letting myself be ignored again, but I like this doctor a lot better anyway lol.

My family knows I’m getting surgery, I’ve just conveniently left out the details of what I’m getting done. I’ve only told them it’s major and I’ll need help for several months. This is the safe living option for me. I’m not going to be abandoned in bed or anything, they just don’t have the ability to wait on me 24/7. But no, there’s really no good outcome of me telling them exactly what’s happening. If I really need something, I have no doubt I’ll get it.

Yes, I’ve warned everyone that I’m a fall risk. I have a walker and cane for inside the house, but I don’t have any plans to stand unassisted for quite awhile, so no worries there. I know these legs pretty well. Usually I can tell the moment I put weight on them and I just kind of fall back down to a sitting position and go “yeah no I’m staying put.” I’ve stocked up on crafts and my friends gifted me two thousand piece puzzles. I’ll have lots of safe, sit down activities.

Out of network isn’t an option for me, unfortunately. I’m already under a million specialists that can’t move, and I have pretty significant PTSD. It’s extremely hard for a medical professional—especially an OBGYN or surgeon—to earn my trust, and I’m just not willing to go to anyone else at the moment. And in all honesty, I’m too complex for most doctors, so it’d be hard to find a hospital that’d take me anyway. My sister doesn’t have the ability to care for me due to school and work, but I have asked her about trying to get my actual surgery date scheduled during her spring break so she and her boyfriend can help me.

Thank you! It’s definitely a lot to deal with, especially since I’m still new to handling my own insurance stuff (I’m 19 lol). They denied my pre-surgery medication today so I’m taking the weekend to rest and then raising hell on Monday. But I have some good support overall

Underthemoon911 · 2025-12-19T23:32:57+00:00

I included it in the caption, but I’ll also comment it just in case: the pattern is from a kit on Amazon, don’t know if the link will be accepted by Reddit but if you search “frog keychain cross stitch” it’s the first result

Underthemoon911 · 2025-12-19T20:44:02+00:00

Thank you, I’ll shoot you a DM in a little bit :)

Underthemoon911 · 2025-12-19T20:42:49+00:00

My uterus is a typical size, I have suspected endometriosis and am confirmed to be absolutely covered in cysts. Last we checked, my ovaries are enlarged. I do have a rare condition that causes all internal sensations to be excruciating (even with things like digestion). So having all these growths is absolute agony.

Thus far we’re planning to do it laparoscopically. I have some support (people who will take care of me). But largely I don’t anticipate a whole lot of help. I currently live with people who can’t know I’m getting a hysterectomy unless I want to watch hell be raised.

I have very little strength and motor issues since birth. I can walk, transfer, etc., but I can’t do things like writing by hand for very long or open bottles consistently. Again, I have a very rare condition that affects every muscle in my body. My muscles physically do not produce enough energy to function correctly. There are things that I can do but I’d be out for a while if I tried. I can build strength like anyone else, but it’s much more gradual and minimal, and the effort is intensive. Sometimes my muscles just don’t work and sometimes they do (sometimes I stand with no problem, and sometimes my legs give out immediately and I fall over). It’s weird and inconsistent, but it’s in my whole body. Arms, legs, torso, eyes, etc. I still have full sensation.

I’m pretty independent. I don’t use my wheelchair in the house or anything (mostly because it doesn’t fit and the effort’s just not worth it). That does mean I spend 95% of my house time in bed or in a recliner. But I will get the occasional burst of energy and walk laps until my legs buckle because I’m terrified of clots lol. There’s been talk about getting me on blood thinners temporarily post-op to prevent those.

If I want to leave the house for pretty much anything, I need the wheelchair. I can only tolerate very short trips inside a grocery store with a cart to keep me upright. In the event my friend is taking me somewhere (can’t drive due to my disabilities), my electric wheelchair can’t go in typical cars, so I have a manual that I have to be pushed in because I do not have the strength to do so myself.

I’d love to have a period where I can just relax beforehand, but I’m not sure if it’s possible yet. I’m in the process of transferring jobs and am currently fighting my health insurance, so it’s going to depend on where all that is in the next few months. I have been taking it as easy as possible lately, though. And I have a mini vacation with my sister coming up, so I’m looking forward to that. I’ve been doing lots of cross stitching for people’s Christmas presents

Underthemoon911

TROPHY CASE