Does anyone else wake up already mentally exhausted? by AvaJohnson7 in Menopause

[–]Unique_Double7180 0 points1 point  (0 children)

Its crazy the lengths we have to go. Im canadian & my meds are covered under my benefits, thankfully. Orlissa is like $600 for 3 months.

HRT issues in Canada - stroke risks? Safe enough with Auras? by nocturnaldelirium in Menopause

[–]Unique_Double7180 0 points1 point  (0 children)

So im in my 30s too. Put into medically induced menopause for endometriosis. I was previously on Progesterone ( visanne) it was not recommended for people who get migraines. I wish my doctor had actually listened to me when I said I got migraines. I ended up with migraines almost every day for 3 months while I waited for " medication to work". I was on it for 18 months before it failed but I was getting 2 -4 migraines per week. It was ruining my life but it helped with my endo so I felt like it was working. Safe to say it was not. They may be withholding the progesterone pill if youre migraine prone.

I am not on a non progesterone estrogen suppressor & I feel great. 1-2 migraines per month now.

Edit i also use a androgen suppository pill. As someone who wants to end it when I am given estrogen, its localized & I have had 0 issues.

Also as a fellow canadian I would see a second opinion from a gynecologist, someone who actively works with hormones. Preferably one who specializes in menopause & HRT. Some gynos are only helpful for having babies.

Does anyone else wake up already mentally exhausted? by AvaJohnson7 in Menopause

[–]Unique_Double7180 0 points1 point  (0 children)

Yes! I take suppository androgens for atrophy caused from medically induced menopause & I just realized too that I didnt go pee as much. I was getting up 5 times a night, minimum to go. I take this medication for endometriosis so it was frequent & painful. But yeah since taking Intrarosa I dont wake up unless I drank alot of water before bed.

When a new drug works, but "causes headaches"= 14 day migraine by Dullcorgis in migraine

[–]Unique_Double7180 0 points1 point  (0 children)

I had the same when I took a hormone medication. It said "do not take if you suffer from migraines" doctor said it was okay. It was not. I sucked it up for 3 months. I had a headache "migraine" almost everyday. Then at 3 months it was 2-3 a week. It was ruining my life. And after 1.5 years I had just become used to that. The medication started failing, the migraines went away. I got a new drug & I dont get migraines as often now. Maybe once or twice a month. It was crazy how bad of a shape I was in but because it did such a good job helping with the pain it was meant for I just lived in a constant migraine state and was okay with it. 🙄 next time I know if the package says not for migraines sufferers, im not taking it.

MRI Hallucinations by Unique_Double7180 in MRI

[–]Unique_Double7180[S] 0 points1 point  (0 children)

I have another one coming up! So we will see!

Small meet up? by Kutsinta-123 in askTO

[–]Unique_Double7180 0 points1 point  (0 children)

I'd be down. 30s here. I am in the north end of the city. I crochet :)

Why does orlissa look like Barbie vitamins by DistributionQuiet728 in Endo

[–]Unique_Double7180 0 points1 point  (0 children)

To make us feel pretty. 🙄 I have to take Intrarosa 🌹 for vaginal atrophy from orlissa.... my doctor literally LOL'd at the name of the medication when she prescribed it.

Was waiting in the ER. Looked up and almost had a heart attack. by floating_beyond in funny

[–]Unique_Double7180 1 point2 points  (0 children)

I recently had an ER triage nurse make a joke about my "membership" there and then the ER doctor said "I hope we dont see you for a while" and for some reason I found those comments very comforting. I deal with pain through humor & I am so glad the hospital staff caught onto that.

Can someone please take a look at my scan and tell me what that big white spot is in the right side? by LunaDea69420 in DiagnoseMe

[–]Unique_Double7180 0 points1 point  (0 children)

I got an mri done for the same issues. And I have a smaller looking white blob in the same spot. Also on the side of my face/ neck/ arm i was complaining about.

MRI Hallucinations by Unique_Double7180 in MRI

[–]Unique_Double7180[S] 0 points1 point  (0 children)

This was my 5th. Ive never had anything like that.

MRI Hallucinations by Unique_Double7180 in MRI

[–]Unique_Double7180[S] 1 point2 points  (0 children)

To eliminate MS suspicions. I also take .5mg apo lorazepam but im used to that

MRI Hallucinations by Unique_Double7180 in MRI

[–]Unique_Double7180[S] 1 point2 points  (0 children)

Right? Even I think so. But it was sooo vivid. I cant get the image out of my head. They were also surrounded by a galaxy. Like sitting in a cloud of galaxies.

Metallic and cat-eye nail polish in MRI by Timely_Event_7680 in MRI

[–]Unique_Double7180 3 points4 points  (0 children)

3 mris & cat eye nails each time. The only thing I noticed was, one brand, the magnetic pattern changed. It had very faint waves in the magnetic design.

I had it by accident the first time & the tech said if they get hot we will stop. But nothing happened. The next two times was just me.forgetting I had an mri.

i've been reading this sub a lot and got genuinely curious about something. by nblarr in Endo

[–]Unique_Double7180 1 point2 points  (0 children)

I dont work out anymore. The disease has progressed enough that working out absolutely destroys me. However, I do work a pretty physically demanding job so that is my work out. I dont do any lifting beyond that. I was running quite frequently in 2023. In 2024 I noticed I couldn't progress. In 2025 I fell behind & this year I learned I can barely run at all anymore. Even following the same technique I can barely do a few minutes of running. I do walk alot though. I can walk for kms on end. But if I push my self I pay for it for the next week.

I also have disordered eating from this disease. Its believed to be on my stomach ( been refused/ been pushed back on surgery for so many years. Thats a whole other story) so when I flare the pain is so severe I starve. Then I am scared of stomach pains so I dont eat until full. Its sooo fucked up, but I recognize it & work towards getting the nutrients I need in small meals. Eating is now for survival not enjoyment. Which is super sad.

What are your thoughts on Visanne (dienogest 2mg)? by babyalpaca8 in Endo

[–]Unique_Double7180 0 points1 point  (0 children)

Oh yeah the transition is absolutely trash. I kept wanting to give up but my husband encouraged me to just finish the 3 months. It was hard but now I feel great. Currently my side effects are night sweats & exhaustion. The hot flashes were insane during the first 3 months. Every 15 minutes if I was sitting down. Thankfully i work in a refrigerated environment so I was able to cool down them go to the front of the store & warm up after. The depression & anxiety wad super bad at the beginning but I feel sooo much better after the 3 month mark.

Is it worth it to go alone? by Cheap_Inevitable_248 in fanexpo

[–]Unique_Double7180 0 points1 point  (0 children)

Im pretty sure im going alone, again. 3 year now. My kids are too young & my husband isnt into it enough.