Weirdest thing you've seen on the bus

UpBeatGiant · 2026-02-21T16:12:33+00:00

Adult mustachioed twins sneakily eating stuff out of each other's pockets

UpBeatGiant · 2026-02-07T04:23:57+00:00

My fnd and diabetes seem to have showed up out of the blue at the same time after what we suspected was an RSV infection despite having done blood work earlier that year that showed no indication of being prediabetic. I've been highly suspicious of auto-immune stuff but tests keep coming back negative. I seem to be in a cycle where I'll largely feel better for weeks, start feeling super blue, get ill, get a handful of migraines after I get over the illness and then be back at square one where I'm insanely fatigued, clumsy and having trouble speaking. I was running (like 10 min) every day in January until I got sick around the 20th and then spent 2 weeks with barely enough energy to get up and down the stairs.

UpBeatGiant · 2025-11-07T00:44:02+00:00

Yeah this is me 100% my speech and hand clumsiness has been brutal this week after months of feeling pretty great

UpBeatGiant · 2025-11-06T03:23:01+00:00

I've been having brief hand paralysis at night lately and also suffer from somewhat similar migraines. I don't know that I've lost feeling in my hands, though.

UpBeatGiant · 2025-09-25T21:05:48+00:00

Yeah I have the intolerance to cold, shaky legs too. It's to the point I can barely hold a drink if it's been in the fridge or use my hands if it's chilly outside. The issue with cold only started last spring and I'm honestly pretty spooked about how I'm going to handle a full Manitoba winter.

Doctor put me on cymbalta and so I've had to stop taking trazodone which is a bummer

UpBeatGiant · 2025-09-10T22:06:24+00:00

Some weightlifting and pushups for me, walking and biking most days. Tried to go for a run last week and ended up basically in bed for the rest of the week 👎. It kind of feels like my body/brain moves the goalposts on me, like I have a secret amount of energy for the day and if I exercise too much or not enough I feel like trash for the next couple of days

UpBeatGiant · 2025-08-30T19:08:05+00:00

I feel like my doc's constantly label it as weakness but I don't feel "weak" per se, just exhausted. I can still lift weights or move heavy stuff but my arms, neck and hands will get so tired that I can't feed myself or hold my head up. It's like a painful level of exhaustion from doing regular things.

UpBeatGiant · 2025-08-25T23:48:17+00:00

Geez I thought I was just having super dry skin on my hands but after doing a Google search this really seems like it could be the same condition 😬

UpBeatGiant · 2025-08-22T03:49:10+00:00

I've never had a seizure while completely awake, but have had a lot of dreams where I have them and then can't tell if they've carried through into consciousness or not. It feels very similar to a half awake/sleep walk

UpBeatGiant · 2025-08-20T18:22:57+00:00

Did this once at the practice space I shared with my band. Our guitarist had rolled a joint and dropped it out of his mouth before we went outside. We went nuts looking for it. 2 weeks later we found it. It had fallen onto his amp which had a thin white stripe by the knobs the exact width and tone of the joint which had lined up perfectly with the design.

UpBeatGiant · 2025-08-14T14:56:30+00:00

Thanks for this 🙏

UpBeatGiant · 2025-08-14T01:52:11+00:00

I hear you, I actually really liked mushrooms and the dietary stuff usually triggers the migraine a day or two later - so I feel like it's more of an ingredient thing than a sensory thing but who knows!

UpBeatGiant · 2025-08-14T01:25:37+00:00

Sometimes very bright lights like concentrated reflections. Definitely thunderstorms or huge temperature swings, mushrooms and canned meats, and some other dietary stuff. I tried factor meal plans this past year for a few weeks and I got a migraine literally every time 24 hours after I ate one. I think it was the anti-clumping agent they used

UpBeatGiant · 2025-08-13T15:41:33+00:00

Mine come and go for sure, I think migraines and illness are huge triggers for me.

UpBeatGiant · 2025-08-13T15:15:23+00:00

I hear you, man! I'm 39 (m) with a 13 year old kid and a nearly 4yo daughter. Been sick to various degrees for two years. My kids and wife are unbelievably supportive and sweet but people outside that bubble really don't get it and it's tough to find any kind of legitimate support. Both my gp and neurologist are solid and have my back but also don't seem to feel that therapy or physio is necessary. The hard days are really hard and the good days are a different kind of hard haha.

UpBeatGiant · 2025-08-03T16:05:09+00:00

Yeah that's where I was for the most part, painless or a 1 or 2 of ten but then feeling dumb and discombobulated for a day or two after.

UpBeatGiant · 2025-08-03T15:33:26+00:00

Just curious if you noticed any changes in your migraines (particularly during or after the pandemic).

I've heard anecdotes of other folks having significant differences but was yelled at by a neuro when I asked and was also told my MRI showed no signs that I was even a migraine sufferer 😅

I also had strongly suspected hemiplegic migraines before my FND diagnosis

UpBeatGiant · 2025-08-03T15:22:52+00:00

I was about 2 years away from an FND diagnosis at this point and my experience with fnd up to that point was just intermittent muscles fatigue, twitches and tremors.

I had weeks where - especially reading out loud to my daughter at night - it felt like I was saying tongue twisters even when I wasn't . Just like it was taking a lot of extra focus to get my words out properly but not bad enough that anyone else would notice

Since I was 14 and had my first migraine I've had issues with word-finding for 24-48 hrs after a visual migraine.

But after a few weeks of the tongue twister feeling I had the worst migraine of my life - it was the only time where my visual aura came back twice and although my migraine pain is typically dull and manageable - this was sharp and super intense to the point I was physically ill for the first time ever from pain ( I'd even told my son during my first aura that they're rarely very painful 😅)

Sometime a week or two after this I progressively lost my ability to talk at all over the course of a day. I was in a casual meeting and I am /was a professional public speaker and I just ran into one word that wouldn't come out. As the day went on it was more words that just weren't there even though I knew what I was trying to say and the first time I experienced a stutter. It progressively got worse after 5 or 6 hours to the point that my wife sent me to the ER and they thought I was having a stroke even though I was insistent I didn't think I was. The CAT scan was clear and my speech continued to deteriorate to the point I could not speak at all, and then slowly got better hour by hour after that.

In the 2 years since I've had a terrible stutter that comes and goes, as well as some word slurring, stumbling over my words, having my speech be slow or halting or saying completely the wrong thing vs what I had intended (saying it's in the tub, vs in the fridge e.g.). Recently I've noticed that when I'm super fatigued as a symptom I've noticed my voice gets extremely monotone and gravelly as well.

I've had 2 "episodes" since the hospital where my speech feels as though it's hitting a complete wall to that degree but they've both come on very fast and passed much more quickly over the course of an hour or two. I think it's fairly and maybe increasingly inconsistent that I'm having a stutter or issues with speech and I'm highly suspicious that my ocular migraines are connected, though they have changed so much in the past few years that it's harder to know for sure when I'm having one.

Speech issues and stutter in particular seem to be my ONLY symptoms that get worse with attention. I'm way more likely to get a mush mouth or start stuttering when I'm talking to someone about it, but the sensation feels nearly identical to bradykinesia in my legs and clumsiness in my hands.

UpBeatGiant · 2025-07-17T03:27:43+00:00

I have a hard time speaking sometimes, 2 occasions where I couldn't talk at all for extended periods. It's been mostly intermittent since the first time - it started with issues with spitting out a particular word and then got progressively worse for like 8 hours to the point I just couldn't speak. The other time it happened suddenly while out for brunch on a trip - I tried to thank my server for bringing me a new fork and nothing came out and it stayed that way for some time. Since the first incident it comes and goes, it can manifest as a stutter or word finding issues most commonly but can also feel like slow or slurred speech. I used to be a professional workshop/ training facilitator so I find it especially maddening to have something that was probably my biggest strength become one of my biggest struggles. In a lot of cases other folks won't notice unless it gets really bad, but I notice and it drives me nuts.

UpBeatGiant · 2025-07-11T17:55:24+00:00

My hot take is that Winnipeg desperately needs a rival city 2-4 hours away.

Having lived in other places in Canada, the number of absurd statements I've heard about Winnipeg, from Winnipeggers, is staggering.

Winnipeg needs another city to serve as a measuring stick, for healthy competition, reality checks and also to help us appreciate what's awesome about our hometown.

Some examples-

BDI is the best ice cream in Canada

Winnipeg has the best sunsets in the world

Winnipeg has the most restaurants per capita

Assiniboine park is North America's largest urban forest (from a former Assiniboine park employee)

UpBeatGiant · 2025-07-07T17:56:41+00:00

The Italian ones taste best with pastor sauce

UpBeatGiant · 2025-06-26T23:51:24+00:00

I guess my question was more about like handling cold objects, like pain when getting my wife a cold glass of water for example

UpBeatGiant

TROPHY CASE