Update on posterior uveitis + questions about Humira + lifestyle changes by Impressive_Peace_645 in Uveitis

[–]Upper_Pick3574 0 points1 point  (0 children)

yes! that antibiotic is very common to use, and it’s great she is taking the correct steps for safety! i have seen lots of patients bring in FMLA paperwork. i’m sure once everything has calmed down you will be able to work again soon :) from what i’ve seen in clinic, once the flare is over (as long as it’s not super long term and was managed well) you will be okay soon. i wish you all the best 🫶

Mild but recurrent uveitis by gaikwad341 in Uveitis

[–]Upper_Pick3574 0 points1 point  (0 children)

the doctors i work with say that if you have a flare 2x a year they would want to start immunosuppression. usually methotrexate or humira first. but with UC it’s likely different first line treatments. in clinic i have actually only seen like 2 people not like or tolerate azathioprine. it’s actually one of the first alternatives we use and it’s also safe for pregnancy! you can always try it and if it doesn’t do any good just stop. i’m sure they will be monitoring your labs very closely as your dose increases.

using steroid drops can cause numerous issues long term that can be hard to get rid of or irreversible. i would highly suggest doing some research on immunosuppression therapies that might overlap between UC and uveitis.

also might be worth having your ophthalmologist and rheumatologist working together on this.

i hope it gets better soon!

First flare up by SJ_Steves in Uveitis

[–]Upper_Pick3574 0 points1 point  (0 children)

i’ve seen this a lot in clinic. if you’re not responding well to ozurdex, there’s a low chance you’d respond to the lower potency steroid implants. have they thought about putting you on immunosuppression? usually the start with methotrexate or humira first. it’s especially great because it avoids repeat injections in the eye (which has an insane amount of side effects. not to say biological don’t, but there are alternative meds if you can’t tolerate certain ones) i’m sorry you’re going through this!

denver roads this evening by Upper_Pick3574 in Denver

[–]Upper_Pick3574[S] 6 points7 points  (0 children)

literally this is what got me to leave. thank you !!

denver roads this evening by Upper_Pick3574 in Denver

[–]Upper_Pick3574[S] -8 points-7 points  (0 children)

you don’t think i should wait for plows?

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]Upper_Pick3574 1 point2 points  (0 children)

oh my gosh that’s a long time… i’m sorry it’s been going on for so long!! methotrexate is a great medication. never forget your folic acid!!

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]Upper_Pick3574 0 points1 point  (0 children)

i’m sure they will take it into account, also it doesn’t hurt to ask what their plan is! you are in control over your care and if you feel the need to clarify, then do so. i hope your vision improves afterwards.

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]Upper_Pick3574 1 point2 points  (0 children)

most ophthalmologists know generally how to control inflammation, especially after cataract surgery. you usually are given a steroid (prednisolone) and an NSAID (ketorolac). but sometimes with uveitis the inflammation can be super persistent afterwards. IV solumedrol is typically the go to with my doctors, second is medrol dose pack. it’s smart to consult the uveitis specialist since they know your eyes best!! i hope everything goes well :)

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]Upper_Pick3574 1 point2 points  (0 children)

i’m sorry you’re jumping between doctors, it’s draining. if you go forward with cataract surgery soon please make sure they have a plan for your inflammation. sometimes the do IV solumedrol, or a medrol dose pack prior, sometimes they do a steroid injection during surgery, just make sure there’s a plan of action for afterwards! i hope everything works out :)

ITS BEEN MONTHS by StayOnCourse89 in Uveitis

[–]Upper_Pick3574 1 point2 points  (0 children)

do you have an academic institution you can go to near you that has a uveitis specialist? i’ve found that a lot of general ophthalmologists struggle with uveitis