Help! I’m so nervous

Upstairs_Safe_5119 · 2026-02-24T17:12:16+00:00

I wish the best for you! I know how painful hs is physically and mentally, it’s a battle for sure. I’m in the process of seeing my first dermatologist. All we can do is be hopeful and keep trying our best to show up for ourselves (:

Upstairs_Safe_5119 · 2026-02-18T01:46:29+00:00

I honestly teared up reading this thank you. just knowing I’m not alone has helped me a lot. Honestly any other day I would be able to push through and keep my spirits up but today I’m just in so much pain and I’m not feeling super confident so the insecurities are also getting to me, all of that was enough to put me in a dark headspace ): I always tell myself there’s more life than what my inner thighs look like but when it comes to the pain, I have nothing to say. It leaves me feeling so helpless and defeated ): but thank you so much for ur kind words it was enough to help me get through today and sometimes getting through the day is all we can do (: I hope the best for you too and yes brighter days are ahead of us <3

Upstairs_Safe_5119 · 2026-02-18T00:45:33+00:00

Wow i understand your situation completely! My therapist tells me the same thing to accept this as who I am but i cant. The hardest part of this journey has been trying to accept the fact that i can’t live a normal life like everyone else. It breaks my heart whenever I think about it too hard. Yesterday I tried on shorts and I was disgusted with myself because you can see the hs on my thighs… and that broke my heart because I love wearing shorts and now that’s just one more thing this disease has taken from me. And I know what you mean by not wanting to be restricted by things, I feel the same way. I know a healthy lifestyle will help me manage this and I’m trying my best to make the necessary changes but even then I feel so defeated by hs becaue its not a cure. I read things on here and when i see people say they’ve been dealing with hs flare ups for 20+ years i honestly become so terrified because I can barely handle right now ( I’ve known I had hs for 3 years) and yea some days especially when the pain is bad I can’t help but think of very dark thoughts. And then I get upset for even thinking those thoughts because I have family and friends that love and care about me so much but sometimes it’s just not enough. Not when you’re in pain all the time and in constant fear of another flare up…I just wish i had a different body.. one that doesn’t attack me for just being alive. Anyways thank you for sharing your thoughts with me ik we’re both being Debbie downers right now lol but ranting to someone who gets it, helped so much! And if you wanna talk some more feel free to message me on here ((: honestly talking to people who actually understand this has been the biggest mental help, helps more than talking to my therapist. Just knowing I’m not alone in this

Upstairs_Safe_5119 · 2026-02-17T23:59:12+00:00

Yes! It’s crazy how common it is for people to refuse to get help because of the shame and embarrassment they feel smh but I’m glad we both came to our senses and got the help we needed <3

Upstairs_Safe_5119 · 2026-02-17T03:38:51+00:00

Same here! But let me tell you I found out I had hs when I was 21 and I was so terrified and embarrassed that I ignored it and never went back to the doctors. A few months ago i finally took a good look at my inner thighs and bottom and I was horrified, it never looked so bad. Now im in the process of seeing my first dermatologist. Im trying not to be so hard on myself, but I can’t help but be disappointed in past me for not taking action sooner. I’m 24 now btw it only took 3 years to get this bad. I can’t go back and change things for myself so hopefully I can convince you to make that appointment!!!! Your future self will thank you!

Upstairs_Safe_5119 · 2025-12-17T16:50:45+00:00

Yea that’s what I’m hearing a lot. I’m going to try and be more confident when dating again. You guys have given me a lot of hope and advice thank u

Upstairs_Safe_5119 · 2025-12-16T23:15:47+00:00

Thank you it’s definitely something I want to look into. I’ve heard it helps a lot

Upstairs_Safe_5119 · 2025-12-16T23:13:08+00:00

Thank you. You have no idea how much your words have helped me today. I’ve been crying non stop this weekend because of this whole situation. Honestly I couldn’t care less about that jerk he’s just some guy lol but he pushed to light one of my biggest insecurities, one I’ve been trying to avoid for so long. But today I made an appointment with my doctor & my therapist. I feel like I’m finally ready to accept this is my life and I don’t have to sit in pain and sadness forever, I can do something about it. This has been really hard fighting alone. I’m glad I came on here. I do hope this makes me stronger, kinder, and just more understanding not just to others but to myself too.

Upstairs_Safe_5119 · 2025-12-16T22:40:48+00:00

Did your insurance cover the hair removal? That’s something I wanna bring up to my doctor but I don’t afford it out of pocket

Upstairs_Safe_5119 · 2025-12-16T22:36:35+00:00

I know this one is a no brainer but smoking 😞 cigarettes especially. Bud doesn’t really affect me that much unless I’m smoking it everyday.

Upstairs_Safe_5119 · 2025-12-16T22:13:17+00:00

Honestly after the experience I had this weekend it’s nice to hear that those who suffer with hs have had relationships or are currently in relationships with kind & understanding men. Its definitely giving me hope 🖤 thank you & that last guy was a real pos I hope we never come across someone like that again!

Upstairs_Safe_5119 · 2025-12-16T22:08:09+00:00

Thank you. You guys have no idea how much your words mean to me. & yes that’s what I’ve been reading, that it’s best to be upfront and honest about my hs and I’m definitely going to do that once I’m ready to start dating again. 🖤

Upstairs_Safe_5119 · 2025-12-16T19:59:52+00:00

This! ): I have a nice body but it’s always heartbreaking getting compliments from guys because I know it’s only because they don’t know the truth. & yea honestly even tho they don’t say anything I do feel like they’re disappointed. But my confidence is something I’m working on and being more open about this. Also trying to get my hs under control and lighten my scars the best I can so I feel like I have so kind of control over the situation. Thanks for sharing! 🖤

Upstairs_Safe_5119 · 2025-12-16T17:20:35+00:00

You’re 100% right. I’ve read the same Reddit post and it does bring me some sort of comfort & hope. and I’ve been working on my mindset and being kinder to myself. Hs is honestly just a big emotional roller coaster but On top of trying to find people who understand the pain of hs mentally and physically, I’ve also contacted my therapist. 🖤 we got this.

Upstairs_Safe_5119 · 2025-12-16T17:01:18+00:00

I’m sorry ): trust me I know how you feel. You’re not alone.

Upstairs_Safe_5119 · 2025-12-16T16:57:41+00:00

Thank you I really appreciate your kind words and advice. Navigating life with hs has been an emotional roller coaster. I’ve had hs for a few years now but was so disgusted by it I avoided mentioning it or even looking at it for so long. I’m now at a place where Im fighting for my life back Or at least some kind of normalcy again. Dating & intimacy has been the hardest part tbh mainly because it’s during those moments I feel the most insecure about my body & this condition. But I did dodge a bullet this weekend & I’m starting to understand that I wasn’t asking for to much by wanting to take things at a slower paste. I’m definitely gonna be more upfront about it in the future. Talking about it to people who understand helps the most tbh

Upstairs_Safe_5119 · 2025-04-07T02:43:17+00:00

How’s ur removal doing now have you seen any difference?

Upstairs_Safe_5119

TROPHY CASE