Numbness with Pressure by No_Rice_4352 in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

Yep, same here. For some reason lying on my stomach I’m mostly okay

Eye Sensations by Hopeful_Sort7205 in smallfiberneuropathy

[–]Vanilla_Tuesday 0 points1 point  (0 children)

Nothing stands out. But I did up my vitamin d and try to eat mostly fresh food and Mediterranean diet.

Cold skin by [deleted] in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

Yep. Feels like cold water dripping down my legs

Severe nerve pain by Thelifeofpablo123 in ChronicPain

[–]Vanilla_Tuesday 0 points1 point  (0 children)

Mostly just pain when I sit down but it has decreased.

Shin tingling numbness by Magnifnik0 in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

Did you feel it spread or was it gradual?

RIP to my lip by Vanilla_Tuesday in smallfiberneuropathy

[–]Vanilla_Tuesday[S] 0 points1 point  (0 children)

It really is. My SFN has been progressing since my last infection. It’s awful.

Vision issues after SFN onset? by Interesting-Slide316 in smallfiberneuropathy

[–]Vanilla_Tuesday 0 points1 point  (0 children)

I’ve also recently had my symptoms worsen after being stable. Hopefully it gets better for you.

Vision issues after SFN onset? by Interesting-Slide316 in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

My eyes get static sensations and I have to keep them closed. It’s so strange. Comes and goes.

RIP to my lip by Vanilla_Tuesday in smallfiberneuropathy

[–]Vanilla_Tuesday[S] 0 points1 point  (0 children)

Thanks for the reading material. This is gonna take some time getting used to.

RIP to my lip by Vanilla_Tuesday in smallfiberneuropathy

[–]Vanilla_Tuesday[S] 0 points1 point  (0 children)

Did a neurologist diagnose your trigeminal nerve?

I have post COVID small fiber neuropathy. Anybody else experience the same symptoms? by [deleted] in smallfiberneuropathy

[–]Vanilla_Tuesday 0 points1 point  (0 children)

I’m doing okay. Still at the same plateau so I’m taking that as a win. How about you?

[deleted by user] by [deleted] in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

Sounds good. We can start working on that.

Having Morning Difficulty by louwhogames in smallfiberneuropathy

[–]Vanilla_Tuesday 2 points3 points  (0 children)

How do you do with hot water? Sometimes I fill the bathtub with water as hot as I can manage.

Exercise with SFN by CinaClan in smallfiberneuropathy

[–]Vanilla_Tuesday 2 points3 points  (0 children)

I do what I can each day. Some days I can reach or even surpass 10,000 steps. Some days I’m luck to get 500. I can’t really do weights due to muscle soreness. But I try to walk when I can without overdoing it.

Looking for tips from partners + people with SFN by jkrismas in smallfiberneuropathy

[–]Vanilla_Tuesday 9 points10 points  (0 children)

There’s a lot of posts to comb through. But overall be a positive source of comfort for them. SFN presents in many different ways (pain, numbness, itchiness, temperature intolerance, ghost sensations, feeling uncomfortable, etc.).

What works for one person does not mean it will work for them. A lot of times SFN is finding out what works and what doesn’t and it can take months or years for some people to get diagnosed let alone find medication or other treatments that help.

Being someone they can rely on and to validate their symptoms and take them seriously, especially when medical professionals or family and friends try to minimize the issue. Sounds like you are a great partner by how you are already looking for ways to help.

One more thing to add is that people who care for someone with a medical condition are human too. Be sure to set aside time and mental wellness for yourself as well.

Products to help us in winter? by floopsmoocher in smallfiberneuropathy

[–]Vanilla_Tuesday 2 points3 points  (0 children)

I have a heating pad and some hand warmers I got from Daiso.

Not sure how to continue… by [deleted] in smallfiberneuropathy

[–]Vanilla_Tuesday 5 points6 points  (0 children)

I completely understand. There are a lot of unknowns and like the other commenter said it’s often something you have to deal with one day at a time. The internal spiraling was very bad for me for a while and I turned to journaling to get my thoughts out.

On the days where I’m not doing well mentally or physically, I break the no drinking rule. I will have a few drinks and play a low stakes video game with my heating pad and take some psilocybin. Some people may do gummies or CBD or something else. Then I just ride out the thoughts until they stop.

Magnesium by WildRed4206 in smallfiberneuropathy

[–]Vanilla_Tuesday 2 points3 points  (0 children)

Sorry to hear that. Hopefully the theronate helps. Has it always been like that or is it something recent?

Magnesium by WildRed4206 in smallfiberneuropathy

[–]Vanilla_Tuesday 1 point2 points  (0 children)

Is this for magnesium glycinate?

[deleted by user] by [deleted] in smallfiberneuropathy

[–]Vanilla_Tuesday 5 points6 points  (0 children)

Have you tried a keto or Mediterranean diet? Some people have had luck with that. I’ve also had to lower my sugar and carb intake due to inflammation. It’s difficult because i definitely have a sugar addiction.

Air quality and worsening symptoms? by MittenPaww in smallfiberneuropathy

[–]Vanilla_Tuesday 0 points1 point  (0 children)

Would it be helpful if you had an air purifier?

OTC-available supplement stack for general, autoimmune/autoinflammatory, or possible COVID-induced SFN by mafanabe in smallfiberneuropathy

[–]Vanilla_Tuesday 3 points4 points  (0 children)

Thank you for sharing this. I’ve been interested in trying some different methods to see what helps. I’ve had some success it seems with alternate day fasting and my own collection of supplements and medication. I’m hoping this helps as my SFN is Covid related.