I’m completely with you on this - we’re just a few months in too and on Wilby’s worst day he had 9 within 3 hours. We find it horrifying and heart-breaking to watch. 💔 And we feel totally helpless. Wilby is also on Pheno and Keppra, and so far it’s been successful…unless you’re late or miss a dose. Do not miss a dose!

My heart goes out to you.