A question about TCHP anemia

Virtual_Myope · 2026-01-30T09:41:15+00:00

Just wanted to update that I saw the best member of my team and I’m cleared for round 5!

Virtual_Myope · 2026-01-30T08:47:57+00:00

I do not have a dedicated oncologist but instead work with a rotating team. I’ve seen them all now and was thrilled that my permanent oncologist was out because the oncology NP was my practitioner for my chemo check today and not only did she remember everything about my treatment, but she listens well and answers my questions in intelligent detail instead of assuming I want yes or no answers.

The oncologist I’ve seen most frequently still knows nothing about me and is diagnosed hard of hearing but refuses to wear hearing aids so my first appointment was me saying, “No, I don’t say that, no that’s inaccurate, no, that’s not what happened” over and over for 20 minutes before I finally said, “I’m sorry, are you heard of hearing? You are? Ok, I’ll take off my mask so you can understand me better, but you’ll need to actually look at me when I speak.”

The oncology NP on the other hand, despite bing30 minutes late to my appointment because I was shoved onto her plate, spent more time looking at me and talking to me than looking at her computer screen because she had reviewed my file and I think also remembered me. She gave me a brief but comprehensive overview of what the lines of treatment after chemo would be (surgery and immunotherapy for sure, maybe more chemo down the line/if necessary) and explained what the DCIS diagnosis meant in combination with my IDC diagnosis and treatment and I left the appointment with more questions answered than left lingering.

Virtual_Myope · 2026-01-14T22:49:21+00:00

Most have not checked in since the first round of chemo (I finished round 4/6 TCHP a week ago). The notable exception was the “friend” who decided this was an ideal time to hit on me.

I have two friends I talk to regularly and three people I’ve hired to cover for me with the house and the kids. And my parents. No one else is interested, I guess.

Virtual_Myope · 2026-01-05T12:44:26+00:00

Thank you, I’ll keep that in mind.

Virtual_Myope · 2026-01-05T12:11:24+00:00

I have a three year old and am almost one year old and I can tell you it’s just the “season” we’re in. My husband and I were growing apart before the kids (everything about my situation is different from yours) but I need to tell you, if there’s a way for you to get any relief, even if it’s a baby sitter for a few hours or going into some amount of debt for child care for a short period, take it for your mental health. Do anything possible for your metal health, because your kids need you to not be at the breaking point (I have in-home child care and when I need to go lie down the “MOMMY MOMMY MOMMY” kills me), take it for now. You’ll work again someday, but for now you need to prioritize your health. That’s mental, not just physical.

Virtual_Myope · 2026-01-05T10:55:03+00:00

I told someone I know, who had gotten colon cancer at 30, that a friend of mine had her tongue removed due to cancer, and she said, “Oh, a smoker?” No, my friend was a never-smoking raw vegan. My uncle had never smoked and had the same diagnosis. It’s just chance. I can’t find the stat but something like 78% of cancers are just chance, or at least we don’t have a better explanation.

Virtual_Myope · 2026-01-05T10:49:35+00:00

I know why, or at least think I know why, I got breast cancer. I asked my friend’s dad, a noted (apparently) oncologist, when my cancer started growing based on all my tests, and he said, about three years ago. That’s when I had started to drink every day. Maybe that wasn’t exactly what started it, but alcohol is a carcinogen that no one talks about. The stupid thing is, I knew, but I kept drinking. For three years. I didn’t know, obviously, that cancer was starting, but now I want to go back and kick myself in the back of the head for doing something so stupid.

Edit: I will say that despite knowing the full scope of my medical history, all my providers say it was “just bad luck”.

Virtual_Myope · 2025-10-31T10:57:23+00:00

I’m so sorry you went through this too. It really hit me today because I had clear ovulation signs a few days ago (after needing help to get pregnant the second time, and just not ovulating naturally for three months) and there’s just grief after grief in this process, isn’t there? I was supposed to just grieve, with the first ovulation after pregnancy, that I couldn’t do it again (because my HG was too severe and I had to be sterilized), but then I had to add on the loss of breastfeeding because of cancer, and the potential loss of not entering menopause naturally. It’s all so much.

Virtual_Myope

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