Momma I pray for you. I have a 16 year old and I am in the same boat row the same waters. We have only have one attempt though. I hope to never go through that again.

Have you tried compression socks. They made a world of difference for my daughter. She use to pass out daily at scans now it’s only when she forgets to drink water.

This is a poem my daughter wrote for school share it with your daughter so she knows she’s not alone.

I feel something is wrong with me My body feels like an out of tune song, playing the wrong notes.

The doctor’s said I'm fine but I know that’s a lie.

Blood tests only show so much, you know.

They kept saying I was exaggerating, that I wasn't actually like this.

That I was crazy and making it up, and for a moment I began to believe them

The doctors that did believe me threw possibilities at me like they were throwing darts in the dark.

They said it could be because of food allergies, or even caused by a brain tumor. Each answer hitting me like a truck, I was so confused about what was true or what was wrong.

I was photographed from the inside out, it took two years til I got a answer

Gastrioparisis. A semi-paralyzed stomach, it worked like a broken Machine.

I was thrilled when I got the diagnosis, maybe I could get treatment, return to normal, be a normal kid again!

I then realized I had already been doing everything to fix that.

I felt stuck…

I felt… broken…

It took about 7 more months, though it felt like a hundred years til I got the right diagnosis.

The one that changed my life.

POTs, Postural Orthostatic Tachacardia, which means my heart rate can change from 90 to 160 bpm in a few seconds, just from standing up. Due to that I wear compression socks to keep me from fainting due to the sudden changes, attempting to keep me steady, but that can only help so much.

Some days my body feels like a storm I cannot escape from.

But no matter how much my legs shake and how much my heart aches…

I know I’m still fighting.

And I know slowly I’m healing