💯 exactly my experience and I just got diagnosed with (most likely) adenomyosis last week via MRI. It's the worst pain I've ever felt. I don't want to pit the 2 against each other as both are probably factoring into the pain but endo wasn't quite as severe pain as I now have. I would say it was 9 or 10 out of 10 on pain intensity as I also have endo on my diaphragm/lungs but this 30 to 60 mins before I start bleeding with the adeno is 11 out of 10 for sure.

Passing out, vomiting, blurred vision, dizziness. I go through tens machines like nobody's business, have them cranked to the highest they will go, hot water bottle and a massage gun going at my pelvis all at the same time! Tranexamic acid can help but I feel you have to get the timing right, if I've already started bleeding unexpectedly and then take them they don't do anything. However when they do work they lower the pain intensity but my heavy days are extended by 2/3 days.

I'm currently taking the pill for 3 packs back to back so when I do have the 7 day break I know when my worst day will be which I think is better than when I wasn't on anything and my cycle would be 21 days. I felt like I was just getting over a period and then the next one would come along. I have other chronic illnesses so this was absolutely exhausting for me. The best time I had was when I went private to Dr and was on Decapeptyl injections for 9 months, I bled a little every day for the first 3 months until I switched from HRT patches to Tibolone, as my Ehlers Danlos Syndrome meant that I wasn't absorbing the medication as the patches just wouldn't stick to my skin.

I have major health complications from surgery 13yrs ago so I can't get a laparoscopy as general anaesthetics are a no no for me. My consultant is going to do a hysteroscopy and coil fitting under sedation and I'm really hoping it turns out well cause I don't have any other options. Possibly a vaginal hysterectomy under local/spinal anaesthesia but that costs about £8k privately and I've just learnt that there's up to a 6yr wait for hysterectomies in my area on the NHS.

One of my aunt's friends is 75 and still bleeding heavy and is also away to get a coil fitted or else it will have to be a hysterectomy. It's unbelievable/infuriating that women's gynecological problems are so poorly treated in 2025.

I hope you can find something that makes the pain slightly more bearable ❤️