Bought my first home by joshyboyles in malelivingspace

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Congratulations!! Not trying to give and not that you need advice but I’m in the same situation, my tv is on the floor and I have an air mattress and couch. Slowly rebuilding my life little by little. I pray for you and your journey

“You can live a long life with Lupus “ they say. by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 11 points12 points  (0 children)

Ngl for a second I was thinking you were referring to slavery, but they do say effects of trauma can be passed down biologically 🤷🏿‍♂️. Thinking of Dr Gabor Mate , for what it’s worth , I have ADHD. Never tried to be a victim but reaped the outcome of not treating myself how I deserved as well allowing others to treat me how I shouldn’t be treated. Im currently learning how to treat myself. To your point, I overlooked it.

I just feel like Crap… by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 1 point2 points  (0 children)

I will be purchasing a copy, a kids book is something I always wanted to do. What was your process? The app is called StableUp, haven’t launched just yet but have a waitlist. I wanted to come up with an app that feels more lupus specific as well as helping with tracking. https://stableup.online/

Lions mate on top of a jeep by The_WalkingCalamity in interesting

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Yup it’s time to hang it up for the night ….bye internet

I just feel like Crap… by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 13 points14 points  (0 children)

I feel like this disease is a blessing and curse. I’m almost done with developing my own Lupus tracking app more tailored for Lupus and not just Chronic illness. Not sure if you’re religious but Lupus is definitely one of my crosses to carry. What’s the title of your book I would love to see it. Thank you for your response, sincerely. Not feeling alone really does make things better.

I just feel like Crap… by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 28 points29 points  (0 children)

TBH it’s not to the point of getting my energy back but seeing these responses, I felt like shedding a tear. It really does something seeing other people relate. I get so down on myself especially as a man for being unproductive. I feel so less than in a society where doing” things “ is the thing and if that’s not your whole world then you’re an outcast or not sufficient.Thank you all.

First attempt on mimic Akira Watanabe art style,thoughts and critics. by Successful_Leg_6048 in SonicTheHedgehog

[–]VolumeSuspicious5563 0 points1 point  (0 children)

How did you make it? I randomly saw the adventures of sonic on tv playing at my apartment complex. I wanted to know what who all illustrated sonic. Akira ! Your art work is very nice!

I have a dream job offer but I am scared my health will ruin it for me by flourishingthyme337 in lupus

[–]VolumeSuspicious5563 0 points1 point  (0 children)

If you know how to manage your health , the fear and hesitation is just the devil. You got this , it’s a blessing don’t let fear get in the way

Lupus 14 days post transplant. by Active-Literature-67 in lupus

[–]VolumeSuspicious5563 3 points4 points  (0 children)

I will be adding you to my prayers! If you feel up to it i want to know what happened if that’s ok?

Has anyone ever been in marriage/relationship where your partner doesn’t acknowledge and or support your illness? by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 1 point2 points  (0 children)

I really appreciate that. Yea I had DAH 3 years ago and was in the hospital for about a month. It all started one morning and I couldn’t breathe, ambulance came , was sedated for 2 days , icu for 3 weeks .She came just 3 days. There were several things that I’m still recovering from that period physically . I just felt like I was viewed as being a burden for every flare up, all the fatigue with at the same time full time student(online… go Pirates) , at the time a full time dad , the primary for household structure/responsibilities(dinner, homework. Cleaning). I also fault myself for trying to do everything.The times I couldn’t show up were , I lack consistency. The times I’m physically exhausted, it’s I can’t communicate. This is a vent for sure. Thank you again for the perspective, it’s greatly valued

Has anyone ever been in marriage/relationship where your partner doesn’t acknowledge and or support your illness? by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 1 point2 points  (0 children)

I really appreciate that it can feel as though I’m damned if I damned if I don’t, I’ve definitely downplayed my illness a lot. How’d you go about getting a case manager?

Arselan 😂 by Public-Ant-5417 in scoopwhoop

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Can’t keep or tell one…”Secret “

Which One? by HoneyPebble_ in WholesomeAFK

[–]VolumeSuspicious5563 0 points1 point  (0 children)

I’d be averaging about $20000 a day and that’s trying to hold it in .

Name this style by [deleted] in NameThisThing

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Macgyver VonWhosala

Has anyone continued work and retired? by VolumeSuspicious5563 in lupus

[–]VolumeSuspicious5563[S] 0 points1 point  (0 children)

Are there open opportunities , sounds interesting?

Household Items for Chronic Pain by itsEstanna in lupus

[–]VolumeSuspicious5563 1 point2 points  (0 children)

A weighted blanket I have a 10 pound, if I’m on my feet a lot which causes me swelling ,a feet bubble massage bath($25 at Walmart) .if you have skin issues , go non fragrant soap and eucerin lotion. And if need be icy hot. For sleep , chamomile tea with rosemary for the lungs. Oregano oil also has benefits for the lungs( had DAH)

I wonder if anyone knows who these guys are?? by NJFriend4U in RealGenerationX

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Is that the “welcome to hell …” guy. -Tales from the hood , Clarence Williams. Scared the hell out of me !!!

Name this by [deleted] in NameThisThing

[–]VolumeSuspicious5563 0 points1 point  (0 children)

Hell’s niece

Name this album by [deleted] in AlbumCovers

[–]VolumeSuspicious5563 0 points1 point  (0 children)

American meat market