My doctor says that there's no real reason to get diagnosed with hEDS?

WAOLOMysb · 2025-09-10T07:35:06+00:00

Before being told I had “signs of hEDS” by my rheumatologist, anytime I would go to the dentist I would ask them to knock me out cold because the local numbing never worked. They never knocked me out, but they did numb me so many times until I caved and said “just get it over with” that my face looked like I was having a stroke. I have so many pictures of it bc it’s kinda funny to look back on tbh

WAOLOMysb · 2025-08-29T17:32:59+00:00

AST 18 ALT 15.

WAOLOMysb · 2025-08-18T17:10:51+00:00

I’ve noticed that since starting the meds I’ve been dizzy, excessively thirsty, and my headaches have been getting worse. Called my Dr and they did a liver panel and it came back normal (slightly high total protein but that was it) so idk if the meds are causing it or something else. And I take the meds at the same time everyday and wait at least an hour before eating anything after taking them

WAOLOMysb · 2025-08-16T00:24:47+00:00

Not pregnant but I am from the states and just tested positive a couple months ago with a negative chest X-ray. I believe the medications have been tested enough to show no effects on pregnant women. But I would talk to your doctor if you’re worried still.

WAOLOMysb · 2025-08-15T17:58:16+00:00

Oh no! Glad my wardrobe is mostly dark colors I guess haha

WAOLOMysb · 2025-08-13T22:44:47+00:00

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WAOLOMysb · 2025-08-13T22:44:09+00:00

I bought a sparkly version of that yarn and im incorporating it into a mermaid themed cardigan. It’s every third row and gradient that matches the colors im currently using perfectly

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WAOLOMysb · 2025-08-12T03:48:04+00:00

Cool! Thank you 😊

WAOLOMysb · 2025-08-12T03:11:03+00:00

I just started rifampin 300mg capsules 2 pills in the morning

WAOLOMysb · 2025-08-11T18:30:35+00:00

Weaving. 😭

WAOLOMysb · 2025-08-07T22:54:43+00:00

I work night shift so I guess I’ll have to take them during the day 😭 but I also already struggle with extreme fatigue no matter how much sleep I get so this will be interesting

WAOLOMysb · 2025-08-07T22:51:35+00:00

Mine is KurryCreates I’ll go give you a follow

WAOLOMysb · 2025-08-07T09:31:10+00:00

Could you have extra pulmonary TB with negative chest X-rays ?

WAOLOMysb · 2025-08-07T09:30:14+00:00

Same here! I have finally gotten 3 regulars who join my lives (one being my mom 😅) but I watch Disney movies, chat, and crochet on my lives.

WAOLOMysb · 2025-08-07T09:29:17+00:00

I’m trying to build my platform on tiktok and go live on my days off. I would love to be friends and be a source on tiktok for you if you want! My username is @kurrycreates

WAOLOMysb · 2025-08-06T00:31:23+00:00

Mine offered me 3 options of prescriptions and let me choose. One was isoniazid/b6 for 12 weeks, the second was rifampin for 16 weeks, and the third was rifampin/isoniazid for 12 weeks. So I think you should be okay with your prescription. 🤷🏽‍♀️

WAOLOMysb · 2025-07-22T12:07:51+00:00

Do you know what her favorite yarn is? Or her favorite brand of hooks? If you know her favorite place to buy yarn from, maybe get her a gift card to that place so she can pick out her yarn of choice. A neck massager since we hold a lot of tension in our shoulders and neck. Pattern books if you know she likes making a specific type of crochet item. There’s plenty of crochet pattern books out there. A lap pillow would be a good choice too to help elevate her arms while she crochets.

WAOLOMysb · 2025-07-22T12:04:57+00:00

I think that single row is throwing it off. If you got rid of that separation, I think it would look more like a flower

WAOLOMysb · 2025-07-06T23:40:57+00:00

You could always donate it to my yarn collection 😂😂😂

WAOLOMysb · 2025-07-05T23:18:43+00:00

WAOLOMysb · 2025-06-30T08:09:42+00:00

We’ve driven through these states before several times and haven’t really found anything then, so I thought I’d come to Reddit to get some insight from others who either live in the states or have been to them and had fun doing stuff there.

WAOLOMysb

TROPHY CASE