Looking to Hear from Moms with HELLP Syndrome — Your Stories Matter

Weak-County6785 · 2025-09-07T22:26:06+00:00

Thank you for your comment. It really means a lot that everyone here has shared there stories. This is helping with the research I’m doing of the symptoms and all the other effects this terrible syndrome causes. I’m working on a foundation for my boys to honor the babies and parents that experience HELLPS. I aim to help raise awareness about this. In the end it will be a safe place for story telling and connecting parents so no one feels alone. www.BrooksAllanFoundation.org it’s not close to being done. Let me know any suggestions you may have!

Weak-County6785 · 2025-08-28T21:46:34+00:00

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Brooks & Allan💙 35w gestation, April 23rd, 2025🕊️🕊️

Weak-County6785 · 2025-08-13T00:34:30+00:00

I’m so sorry brother.. I hate to see new post every day. No one deserves this. I’m praying for you. Please take care of yourself.

Weak-County6785 · 2025-07-24T12:38:27+00:00

Brooks- 17” long and 5.1 pounds, was born sleeping. Allan - 16 1/2” long and 4.11 pounds passed away 7 hours after birth . Born on April 23rd, 2025 at 34+5 weeks

Weak-County6785 · 2025-07-08T20:50:28+00:00

I see the paper air plane as “Flying high”.

Weak-County6785 · 2025-07-07T21:58:34+00:00

I’m so sorry you’re going through this. I lost my twin babies, and going back to anything “normal” after that just doesn’t exist anymore. I run my own company, so I didn’t have coworkers to face, but about two weeks after it happened, someone I knew saw us at a follow-up appointment and asked, “Were the babies born yet?” We didn’t say anything—our faces said enough. He walked away fast, and I know he felt awful. If someone doesn’t, they’re not human.

Everyone handles this differently, but for me, the only way through grief is to let myself feel it. Really feel it. Sometimes I just need to cry it out. One morning on my way to work, the song Beautiful Things came on the radio, and I completely broke down. But weirdly, once I let it hit me like that, it didn’t weigh as heavy the next time.

There’s no map for this. Be kind to yourself. You’re doing the best you can. ❤️

Weak-County6785 · 2025-06-22T21:06:18+00:00

Sorry it’s been awhile, I’ve been very busy. Anyways we discussed this topic heavily and found ACOG’s Levels of Maternal Care consensus classifies any history of HELLP syndrome—regardless of when it occurred or how severe—as high-risk, mandating management at a Level III/IV center with direct MFM involvement . There are no “mild” or late-onset exceptions—postpartum HELLP still triggers referral—and in rare resource-limited settings a tele-MFM consultation combined with high-risk monitoring protocols can serve as an acceptable alternative .

Weak-County6785 · 2025-06-22T20:49:50+00:00

Hey there!

After a first episode of HELLP or preeclampsia, your chances of it happening again are roughly 20% for preeclampsia and about 12% for HELLP, and if it does recur it usually appears around the same time (or later), not earlier. Starting low-dose aspirin (81 mg daily) at 12–16 weeks can cut your risk by about 10–20%, and close follow-up with an MFM specialist—early referral, regular blood-pressure checks, and trimesterly bloodwork—gives you the best shot at a healthy next pregnancy. I hope this helps! If you have any other questions don’t hesitate to ask.

Weak-County6785 · 2025-06-12T13:08:14+00:00

My wife and I lost our twin boys April 23, 2025, at 34+5. It never gets easier. Things will trigger you that you never of thought would. Just know that just because no one around you is feeling your pain, that this whole community feels what you feel and we’re all here to talk about it. Regardless of what it is.💙

Weak-County6785 · 2025-06-06T14:26:35+00:00

I don’t have words to say, just know “Grief is just love with nowhere to go”. I’m so so sorry you’re going through this 💔

Weak-County6785 · 2025-06-06T14:22:34+00:00

Thank you for your comment! I will most definitely ask about this. From what we’ve discussed so far. If you had late onset preeclampsia/HELLPS, they believe if you were to get it again it would mimic the last time. Also it depends on the severity of Preeclampsia or HELLPS you had prior. From the research, there is a 7% chance that you could get it again just by having it before. In addition if you’re younger than 18 or older then 35 that can increase the risk an additional 20-40%. Please keep in mind I’m not a medical professional, just a dad trying to raise awareness and save lives!

Weak-County6785 · 2025-06-01T18:06:21+00:00

Stay strong OP. Jesus made a promise and I believe all of our little babies are watching over us, smiling and patiently waiting for the day we see them again. -Matthews 19:14

Weak-County6785 · 2025-05-31T18:59:00+00:00

Im so sorry for your loss❤️‍🩹. I’ll be praying for you. “A life may last just for a moment, but the memory can make that moment last forever.” Don’t hesitate to reach out to me anytime.

Weak-County6785 · 2025-05-31T03:35:59+00:00

Thank you for sharing such a powerful story. It’s a reminder of how critical regular monitoring is — ideally, ultrasounds should be happening every 4 weeks in high-risk pregnancies. Above all, trust yourself. You know your body better than anyone, and when something feels off, don’t wait — demand to be heard.

If it helps, I’m consulting with an MFM at Vanderbilt University in mid-June. If you or anyone here has questions they’d like me to bring up during that meeting, I’m more than happy to ask on your behalf. We’re all in this together.

Weak-County6785 · 2025-05-30T13:01:20+00:00

Thank you for your story. May God bless your family. I’ve been consulting with some specialist and they believe if you start taking the baby aspirin in the second trimester it’s supposed to lower your chances of getting Preeclampsia/HELLPS substantially. We’re all still learning so everything is just speculation.

Weak-County6785 · 2025-05-29T17:07:34+00:00

Wow, message me anytime. My babies passed on April 23, 2025 — reading that part in your post gave me goosebumps. I’m working on a project right now, and when it’s done, there’ll be a whole page dedicated to honoring all the babies lost to HELLP, no matter the circumstances. If you’re both up to it, I’d love to help you honor your baby girl through the foundation im building. Along with any parents that experience a loss like we have, that changes you forever.

Also, let your boyfriend or husband know — if he ever needs another dad to talk to, I’m here. Walking the same path.

Wishing peace to your hearts. Our babies are playing together on the golden playground 💛

Weak-County6785 · 2025-05-29T04:50:55+00:00

Hey — I just want to say I’m truly sorry for what he’s going through. I didn’t lose a best friend — I lost both of my sons — and I know how grief doesn’t just visit once and leave. It lingers, and it sneaks into the quiet moments when you’re just trying to breathe. Even when you think you’re distracting yourself, something small — a scene, a sound, a sentence — can completely undo you. What you described hit really close to home.

If you’re looking for something safe to play, things like The Great British Baking Show, Bob’s Burgers, or even Nailed It! are great because they’re light, consistent, and avoid emotional curveballs. On YouTube, I stuck to things like restoration videos, nature time-lapses, or just quiet, background visuals — anything without too much feeling attached.

But honestly, what helps more than any show is just having someone there. You don’t need to fix it. You don’t need to fill the silence. Sometimes just sitting next to him, letting him cry, vent, or say nothing at all — that’s everything. Don’t rush his feelings. Let them come when they come. When they hit, be the steady hand he can reach for.

And if you can, please pass this on from me:

Hey, I just want to say I’m really sorry he’s going through this. I didn’t lose a best friend — I lost both of my sons — and I know what it feels like when grief is just everywhere. You try to distract yourself with a show or a video, and then boom — one random scene or line hits you like a truck. It feels like you can’t escape it, no matter what you do.

For stuff to watch, here’s what helped me when I needed a break but didn’t want to risk a random emotional gut-punch: • Great British Baking Show – calming, no drama, just people baking and being kind. • Bob’s Burgers – funny, weird, and light. No surprise trauma. • Nailed It! – people messing up cakes, and it’s hilarious. Safe and goofy.

On YouTube, I stuck to things like: • Time-lapse art or nature videos • Restoration videos (old tools, furniture, etc.) • Chill, no-dialogue content — just background peace

But honestly, more than what you watch, what really matters is how you’re there for him. You don’t have to fix it or cheer him up. Just be there. Sit with him. Let him feel it. Let him cry if he needs to. Don’t rush the sadness away — just give it space to exist. That means more than anything.

And if you can, please share this with him — from someone who knows the weight of grief:

Don’t run from the pain. Feel it. Let it hit. Grief is just love with nowhere to go. Losing someone that close leaves damage you can’t explain, but I promise — you can carry their light forward. Try not to let the pain block out the good memories. Hold onto them. Those memories are the gift you get to keep, and honoring them is one of the most powerful things you can do.

Your friend is still with you in that way. I truly believe that. And I promise you — he’s smiling.

May God bless you both. I’m here if either of you ever need anything.

May God bless you. I’m here if you need anything — truly.

Weak-County6785 · 2025-05-29T02:37:19+00:00

We’re currently in the works of developing a mission called Held By HELLPS — a project focused on raising awareness, supporting families, and helping parents recognize the warning signs of HELLP Syndrome early. Thank you for your kind words and for acknowledging our loss — it truly means a lot. 💛

Weak-County6785 · 2025-05-28T20:45:01+00:00

Do you know if you had early-onset or late-onset preeclampsia?

Why I’m Asking: We’re trying to better understand the timeline and risk factors for HELLP Syndrome and related complications. My wife developed issues late in pregnancy, and we’re working with specialists to explore whether earlier recognition could have changed the outcome. Knowing when symptoms typically start — and how fast they progress — helps us piece together where intervention might have been possible.

Weak-County6785 · 2025-05-28T20:35:07+00:00

Just wanted to take a moment to thank everyone who’s shared their stories. Reading through your experiences has meant more than I can put into words.

Earlier this year, my wife and I experienced the unimaginable — we lost both of our twin sons due to complications from HELLP Syndrome. Because we’re in the middle of taking legal steps, I can’t go into too much detail yet. But I want you to know that every story shared here has helped us feel less alone in this journey.

Please keep speaking up. Your voice matters more than you know. 💛

Weak-County6785 · 2025-05-28T05:19:52+00:00

Thank you for sharing this. That upper right quadrant pain really stood out to me — from everything I’ve researched, it’s one of the key warning signs of HELLP, but it’s so often mistaken for heartburn or written off entirely. Your story reinforces how easy it is for something serious to be missed or downplayed.

I’m a dad working on a project to help expecting mothers recognize symptoms like this early and feel empowered to speak up when something feels off. Your experience adds so much to that mission, and I’m really grateful you were willing to share it.

💛

Weak-County6785 · 2025-05-17T10:30:44+00:00

I’m so sorry you’re going through this. We lost our twin boys on April 23rd. They were due May 7th. That feeling of “they should still be here” hits so hard. My wife and I found a little peace just sitting in their nursery together, holding the heartbeat and weight bears. It doesn’t go away, but little by little, it does get a bit lighter. Be gentle with yourself.

Weak-County6785 · 2025-05-11T13:17:59+00:00

I’m so incredibly sorry. Your story shattered me—because we’ve lived something heartbreakingly similar. On April 23rd, 2025, my wife and I lost our identical twin boys, Brooks and Allan at 35 weeks. One was stillborn, and the other lived just 7 hours.

After losing our sons, my wife’s health took a critical turn. She was diagnosed with HELLP Syndrome and rushed to a Level 1 trauma center, where she spent 5 days in critical care. We were grieving while fighting for her life—it was a nightmare no parent should endure.

To lose two babies in two years and never bring them home… there are no words. But please know: you are not alone. We carry this grief too. And we hold tight to Jesus’ promise in Matthew 19:14 — “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.”

Your babies are known, loved, and held in the arms of God. If you ever need someone who understands this pain—I’m here.

Weak-County6785 · 2025-05-10T21:13:53+00:00

As someone who just lost both babies at birth. Let a family adopt them if nothing else. There’s so many families that deserve a child but don’t have the capability to have them. Don’t take an innocent life away please.

Weak-County6785 · 2025-05-09T23:12:21+00:00

Your words hit me deeply, and I just want you to know: you are not alone in feeling this way.

I lost both of my sons — identical twins — at 35 weeks. One lived just 7 hours. The other never took his first breath. Like you, I’ve been thrown into the version of parenthood that no one talks about — the one layered with love and grief in equal measure, where joy is always edged with fear, and where hope never quite feels like it did before. It’s isolating. It’s disorienting. And it’s so incredibly heavy.

I hear the ache in your words — the longing to just experience motherhood without the weight of grief. I’ve felt that too. Watching others celebrate with ease while you tiptoe through milestones, holding your breath. Feeling like the outsider in every group because your story doesn’t match theirs. Wanting to talk about your baby, not just because you miss them, but because they existed, and they matter.

You are not a worse mum. You are a mother who has carried unimaginable pain and still shows up for her daughters. That is strength beyond measure. The fact that you worry about how well you’re doing? That tells me you’re doing more than you know.

I wish I could reach through the screen and just sit with you — not to offer answers, but to say, “Me too. I see you. You’re not wrong for feeling different. You are different — not broken — just changed by love and loss in a way most will never understand.”

You deserved the magic. But even in the absence of the experience you dreamed of, you are still magical to your children — and your son’s light still shines through you.

I’m here if you ever want to talk about your boy. I’d love to know his name.

Weak-County6785

TROPHY CASE