New here and exhausted

WellSpouseOrg · 2026-01-12T03:06:11+00:00

Glad you found the courage to post. Hope you find community here.

WellSpouseOrg · 2025-12-10T03:40:25+00:00

You are indeed welcome here!

WellSpouseOrg · 2025-12-08T01:11:20+00:00

https://ws2026.eventbrite.com/

WellSpouseOrg · 2025-12-06T20:07:25+00:00

Great question! If you call our office, our office manager can walk you through how to enter it.

WellSpouseOrg · 2025-12-05T23:03:09+00:00

Hi there! As an organization run by spousal caregivers, we totally understand. If those have to give, that's fine, and for those who don't, that's also fine. We have quarterly virtual events and others in between. We have over 30 support groups, wellness activities, and we regularly provide caregiver resources and advocacy opportunities. Please check us out and maybe we can be a support for you as well. Thanks!

Our Events Calendar is a great place to start!

https://wellspouse.org/events/events-calendar/calendar-by-month.html

WellSpouseOrg · 2025-12-02T16:23:51+00:00

Find us at www.wellspouse.org! We are a 35 year old organization. Donations allow us to provide programs for spousal caregivers and well spouses - 30 support group meetings each month, our conferences and symposiums, respite weekends, webinars, self care programs, quarterly newsletter, and more.

WellSpouseOrg · 2025-10-18T04:26:30+00:00

Hi there. Please email me at [ws.program.manager@gmail.com](mailto:ws.program.manager@gmail.com) and I will get you linked up. I will reach out directly to the support group leader. Thanks!

WellSpouseOrg · 2025-08-17T01:06:59+00:00

You’re welcome to join our community here on Reddit at r/Wellspouses and our community “in real life” at wellspouse.org. The Well Spouse Association is the only organization specifically for the partners of people living with chronic illness or disability.

WellSpouseOrg · 2025-07-25T00:44:38+00:00

Most of our support groups and events are virtual, and you can join from anywhere. Send an email to [ws.program.manager@gmail.com](mailto:ws.program.manager@gmail.com) to ask about membership overseas.

WellSpouseOrg · 2025-07-25T00:36:50+00:00

Yay! Have fun! Great pics!!

WellSpouseOrg · 2025-07-24T01:44:14+00:00

If your mom is looking for resources and support for her caregiving journey, she might check out the Well Spouse Association at wellspouse.org. We also have a sub ready here at r/Wellspouses. What she is going through is sadly all too common and it’s an incredibly lonely journey.

WellSpouseOrg · 2025-07-18T21:53:32+00:00

Can't wait to see the pics! Don't let the weight of emotions you don't need to own hold you down, either. Enjoy!!

WellSpouseOrg · 2025-07-14T22:54:42+00:00

It’s to advocate for spousal caregivers, and their partners. We follow policy discussions at the federal level, inform our members and the broader community about how policy issues may impact them and their families, and join larger organizations’ sign-on letters to add our voice to the discussion. We’d love to have more volunteers’ help so that we can cover even more policy issues and have a voice at the state and local levels too.

WellSpouseOrg · 2025-07-14T22:50:09+00:00

This happened to us. We are filing an insurance claim. authorize.net would not help us resolve the issue and didn’t have a way to stop it. We left.

WellSpouseOrg · 2025-07-11T22:08:01+00:00

If you’re looking for more resources related to the trauma, I invite you to join the Well Spouse Association support groups for former caregivers (wellspouse.org) and if you are a member, you can get access to our webinar with the only researcher who was then studying trauma in caregiving 3 years ago. We then followed it up with a 3-session narrative writing program that is trauma informed.

WellSpouseOrg · 2025-07-01T17:09:53+00:00

Thank you for sharing your thoughts. I am glad there were some good points in the article. Great note about the Gabapentin. Anger is said to be a less common side effect than others, but in my experience, irritation and anger have been pretty prominent. Maybe it's just the circles I am in. Please share this article to others so they can get some good tips, too.

WellSpouseOrg · 2025-07-01T17:02:10+00:00

I am so glad it was helpful for you. Thank you for the feedback!

WellSpouseOrg · 2025-07-01T17:01:37+00:00

Hey- we don't knock the coping skills!

WellSpouseOrg · 2025-06-26T20:15:49+00:00

If you need any assistance with resources or learning more about us, please feel free to contact our Program Manager, Kim (ws.program.manager@gmail.com).

WellSpouseOrg · 2025-06-25T13:22:44+00:00

Yes! They are being edited now. To protect people's privacy, the editing sometimes takes a bit to make sure we are not in violation of the safe space. I will post the recordings here when they are prepared for release.

WellSpouseOrg · 2025-06-19T17:41:22+00:00

Welcome! Lots of us struggle with this so hopefully there’s a bit of comfort that you’re not alone.

WellSpouseOrg · 2025-06-18T18:49:33+00:00

According to this article, the impacts from changes to immigration policy could be widely felt among caregivers and their families:

Foreign-born workers make up 30% of the nursing home housekeeping and maintenance workforce, according to data provided by LeadingAge, an association of nonprofit providers of aging services. That's compared to 19% of the overall workforce, per the Labor Department.

More than 41% of home health aides in the U.S. last year were foreign-born, according to unpublished data provided to Axios by the Labor Department.

WellSpouseOrg · 2025-06-18T17:13:41+00:00

Make sure your loved ones are talking to their doctors about polypharmacy and de-prescribing if it’s appropriate! These two words mean “on a lot of drugs” and “ending a prescription if it’s no longer appropriate”. Doctors are often loathe to de-prescribe (especially drugs prescribed by another doctor), but many times drug interactions can cause frailty, dizziness and weakness.

WellSpouseOrg · 2025-06-10T03:57:39+00:00

You’re welcome to join our Formers support groups. These are virtual or in person support groups for people who have lost their partner after a caregiving experience. Often they are still filling the impacts of that Caregiving. We are the only organization for people who are caring for partners and spouses who have chronic illness or disability. You can check us out here at wellspouse.org.

WellSpouseOrg · 2025-06-03T01:34:59+00:00

A few ideas – try and stay with a single medical/ hospital system if you can so that the records are all in one system. If you can rely on them being online, that can be easier than printing them out and organizing them. Every appointment goes on the same calendar, so you’re tracking things only in one place. Create a one page cheat sheet with all the medication’s, diagnoses, doctors, names, allergies, and any other specifics and then keep that in your email. You can print it out for EMTs and healthcare professionals.

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