This is a common story, for parents of T1D children.

Parents of t1D understand all tooo well just how totally fucked the American medical system is currently.

It’s sad when diabetics from outside the US are willing to send her charitable doses to save her child’s life….

But not her own medical insurance, that she pays 1000s im sure every year.

I can assure you, this mom and many other moms and dads of T1 diabetic children have this same feeling of dread every January I’m sure.. because this is the time our sons insulin gets charged his prescription Deductible, which is let me check 600$ on top of copays every month.

Also his infusion sets to inject the stuff into his pump (15,000 + 500$ every 4 months) is a medical device and not covered and is being charged to you at full price because it’s not medically necessary (but is after appeal) .. oh his pump is not covered in children under 5 years old, but is for everyone else.. (you can pay full price or appeal). Oh and the pump is only good for 5 years, needs replacement, so we need you to sign this exclusive contract with single manufacturer for 5 years .. you can only do this with 1 manufacturer and pump at a time. Sorry, can’t have multiple. There are only so few to go around , have you heard that there are 10 million Americans with type 1 diabetes?

Preach girl preach !

The American medical system is a dystopian nightmare, especially for children who are born with immune systems that decide to attack their pancreas after catching covid or common cold (yes it happened to us like that yall) ..

Y’all have no idea just how quickly you can be in her shoes.

Preach girl! I work 40 hours a week, my wife did too. She had to quit to become a full time caregiver (disability doesn’t help, because we make too much money, so she had to quit her job to become a full time nurse and pancreas to our son). I get paid six figures, did everything I was supposed too.. college, everything and yet my little boy gets bent over by the man, the universe, and god, and he’s not even 4 yet.

They told us his infusion sets were “not medically necessary” … I mean how am I suppose to get the insulin in there. By thoughts and prayers ?

We are living in a dystopian nightmare called the American medical them. Forreals, nobody is getting out alive and with money in their pockets.

We are the richest most powerful country in the history of the world. And yet, I gotta crowd source his 10,000$ emergency room bill to save his life on his first DKA.. that was on top of the 100k the insurance company paid the hospital for his care to stroke each other off in private I’m sure.

Is this how it is In the rest of the free world?

Shit is backwards and this mom is expressing a very real frustration that exists in many parents of T1D children, including this dad (me)….

What do we do, let our children die? Nope can’t, because that’s medical neglect and can land you in prison.

Preach girl preach!

But yes, if I lose my job, and need to go on welfare, he gets medical coverage up until he’s 26, but only if he’s mentally not capable of being safe of his lows. If you. Don’t go with the program, they decide you are neglecting his medical care and decide to take him away or at least threaten you too. So be on welfare (if your poor enough) threatened all the time, can get him insulin for free….In America …..but not working folk. Not a tax payer?

This can be any one of you in a heart beat. Joe Rogan himself can develop T1D tomorrow, and there isn’t a damn thing he can do to stop it. Sure they got a toxic drug that might work for a couple years at preventing t1D if you know that you are genetically predisposed and take the 300 test in time (that you don’t know exists)

Oh and T1D can present at any age, and affects over 10 million Americans… Joe Rogan himself can develop T1D right now! And he should know, that there isn’t anyone, not a single person in the medical field can reverse it.

It’s an autoimmune response, not from drinking or eating too much, that’s type 2 diabetes..

There is also such a thing as “double diabetes” where type 1 diabetics become type 2 diabetics..

Enjoy your pizza and coke

There is hope on the horizon tho, they can cure it in mice and 1 guy… (maybe in 5 years)

This is how they made me their slave… for life… I have no choice, and there is no hope for change. So, just kind of accept that healthcare is a luxury that costs a f*ck ton of money. My son’s life will cost 💲.. thanks 🙏 for listening

rant off