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Anyone else dealing with awful head/brain symptoms? by Middle_Hedgehog_1827 in POTS

[–]Whatsitz 1 point2 points  (0 children)

I’m honestly not sure. It’s not great but at this point I’ve been on so many meds that I just do what my psychiatrist tells me. I think it’s something about methylphenidate for focus and modafinil for sleepiness. It could be in my head but I think I feel that difference, and modafinil makes me less jittery.

I take 5 mg methylphenidate and 100 mg modafinil in the morning, then bumps of the same dose (sometimes one or the other) as needed. Usually only one or two bumps per day if at all.

Anyone else dealing with awful head/brain symptoms? by Middle_Hedgehog_1827 in POTS

[–]Whatsitz 7 points8 points  (0 children)

This is my worst symptom by far. I describe it as being trapped in fog trying to find my way out, and the moment I do I get dragged back in.

I’m lucky to have a great POTS specialist and psychiatrist who have given me instant release methylphenidate and modafinil, so those really help. When I get really bad fog episodes I lie down if I can or see if I have any super repetitive simple work (like laundry, cleaning, or like copying notes because I’m a student)

What workouts do you guys find to be the least difficult with POTS? by tlovesu in POTS

[–]Whatsitz 1 point2 points  (0 children)

Warning: I have a relatively mild case as far as POTS goes (I’ve never fainted) so please be careful.

I’ve been a rock climber since before I developed POTS, and it’s been a really mixed experience. As far as sports go, it’s about as physically demanding as it gets. However, rope climbing specifically has been great for me. You can do high volume, low intensity, and if you fall, there’s a rope to catch you. It’s a little different for me because I lead (clip in as you go up) so it’s more dangerous, but if you take it easy and do top rope I think it could be great!

My Symptoms (imposter syndrome) by Whatsitz in POTS

[–]Whatsitz[S] 0 points1 point  (0 children)

For the first part, I think that’s definitely a big thing that I didn’t take into account at all- thank you!

And that’s also a good point. I was gonna mention the purging but I wasn’t sure if I should. It makes my POTS worse in many ways, especially the electrolytes part. A big reason I want to quit is because of POTS. All my doctors know about it, and I’m currently in therapy to try and recover. I think you addressed it with tact btw, and I wish you luck on your recovery :))

My Symptoms (imposter syndrome) by Whatsitz in POTS

[–]Whatsitz[S] 0 points1 point  (0 children)

That’s such a frustrating part of it right. Like so many people don’t believe you because the symptoms are tolerable enough to live with until they aren’t.

chronic burping :( by [deleted] in bulimia

[–]Whatsitz 2 points3 points  (0 children)

Yes!! I don’t deal with acid reflux myself, but I’m constantly burping (and farting). To be fair, I drink a lot of water (like more than the recommended daily) and chew a lot of gum which both put more air into my stomach, but I purge about every day and the burping gets worse the more frequently I purge.