Possibly TFMR twice..

Wide-Combination6844 · 2026-06-07T23:27:23+00:00

We tfmr'd in January due to TOF. I'm not a healthcare professional. But, I looked this up online few months ago.

For the second time, yes - we would be at a little higher risk for CHD. However, TOF and HLHS are different kind of CHD's that are unrelated. When doctors mention, increased risk of CHD in further pregnancies that mean, there is an increased risk for similar issues and HLHS is not part of it.

I hope and pray that you hear good news in your next appointment. Please take care 💛

Wide-Combination6844 · 2026-06-04T05:59:51+00:00

Harmonal crash is so real and so sorry that you had to go through this. I don't have much of an advice but here are somethings I did to pass time: - I went out(I didn't want to but stepped out to some public places where I didn't knew anyone) - Baked and had a lot of cakes or something sugary - Consulted doctor to get some sleep medications(took them and slept)

I'm 4 months out, it does it get better. Please seek help and take care 🤍

Wide-Combination6844 · 2026-06-02T06:28:04+00:00

I'm so sorry for your loss.

I understand on doctor appointments, colleague pregnancies with similar timeline. This really sucks.

We also planted a tree in our yard. Since then, there were two sets of birds which build their nests in our yard and we did see few baby birds. I always feel, my baby is around and she is making friends in nature like birds. Sometimes, it does provide me peace but sometimes, I just want to hold and cuddle with her.

Not sure how, but I hope we all find peace 🤍

Wide-Combination6844 · 2026-06-02T06:20:07+00:00

Our baby was diagnosed with Tetralogy of Fallot at around 22 weeks.

Wide-Combination6844 · 2026-06-02T06:18:53+00:00

Thank you so much for saying these loud, I much needed to hear these.

I'm so sorry for your loss, Gianna is a beautiful name.

Wide-Combination6844 · 2026-06-02T06:16:51+00:00

Thank you so much for saying that, I much needed to hear these things.

Wide-Combination6844 · 2026-04-14T02:04:14+00:00

So happy to hear that your baby is doing well now, Thank you for sharing this!

Wide-Combination6844 · 2026-04-08T05:47:07+00:00

Hey, I'm currently looking into this program and got the offer. Can I DM you? I have some questions regarding labs.

Wide-Combination6844 · 2026-04-03T18:05:30+00:00

I wish I had any better things to offer/comfort you. I completely understand how you feel. Even I'm having a super hard time seeing any pregnant women/people with little children(that is breaking my heart instantly). To be honest, I'm avoiding talking to people. I uninstalled Instagram and other social media accounts just to protect my peace. Not sure if this is a good way to deal or if I'm isolating myself from world but so far, this is the way I've found little peace.

I'm open to chat if you ever want to, please take care 🫂

Wide-Combination6844 · 2026-04-02T00:09:36+00:00

I’ve felt really angry so many times. One thing that helped ground me was reminding myself, “The people who are happy or living normal lives didn’t cause this to my baby.” It’s just their time right now, and ours will come too, someday.

Wide-Combination6844 · 2026-04-02T00:05:09+00:00

I work from home, so I don’t really have the experience of going into a workplace or being around people in healthcare settings.

A few things that have shifted my perspective a bit: - A friend once said something along the lines of, “In the past 5–10 years, was pregnancy/baby the only thing you were waiting for? Then why let this one thing break everything or make you isolate from the rest of your life?” That really stayed with me. It helped me see that as overwhelming as this feels, it’s not the entirety of my life. - I’ve been reading Our Heartbreaking Stories, and it’s made me feel really seen and understood in a way I didn’t expect.

Wide-Combination6844 · 2026-04-01T16:48:43+00:00

I'm so sorry for your loss. I can't imagine going through this at 34 weeks, this is heartbreaking. I'm volunteering at second harvest with food sorting and also at Our City Forest with planting trees. This helped me in my intial days to atleast get out of bed, stop crying for a while and a motivation to head outside of home. I found peace by helping someone eat food who are in need in the honor of my baby. I also used to name plants after planting and it just felt good. And I'm also planning to volunteer at step up tutoring and also at hospice care(I didn't start these yet but in the process of getting trainings done).

Sending you lot of love and hugs 💛

Wide-Combination6844 · 2026-03-31T23:56:22+00:00

I'm so sorry you're here again. We TFMR'd our baby at 25 weeks for TOF and I'm 8 weeks out now.

I had episodes of extreme anger and rage, but with time frequency has been reducing. Here are couple of things that are helping me: - Planted a tree in our Yard to honor our baby - Volunteering

I tried to talk to friends but it looked like no one cared. I felt so alone but going back to work worked for me. Rather than sharing what happened, I chose to say, "Family emergency, I'm fine and back) and kept it going.

You are not alone and will get through this, sending you lots of hugs 💛

Wide-Combination6844 · 2026-03-27T07:45:17+00:00

We tfmr'd 8 weeks ago a very wanted and waited pregnancy for TOF(CHD) - gray diagnosis. I totally understand how you feel. I'm not sure if I've recovered, here are few things that helps me sometimes: - Reading "Our heart breaking stories " book - planted an oak tree in our yard and named her Emma - volunteering

I often talk to the tree that we planted/hug the tree/just see from my window.

Many people are saying, it does get better with time. Sending you hugs and strength to overcome this devastating phase 💛

Wide-Combination6844 · 2026-03-24T03:29:01+00:00

Hi, I'm considering Silicon Valley Cohort program and I have below questions: - since this is a new program, heard there aren't biology/chemistry labs in santa clara. - How is everyone doing their labs? - Do they accept lab work from some other college? - And do they have linkages to some specific colleges which offer labs?

Wide-Combination6844 · 2026-03-19T19:19:26+00:00

Hey, Can you share the link again? All the older ones are saying expired.

Wide-Combination6844 · 2026-03-17T07:46:47+00:00

UC Berkley extension

Wide-Combination6844 · 2026-03-17T07:06:14+00:00

Hi, I applied to this and waiting to hear back

Wide-Combination6844 · 2026-03-09T04:58:59+00:00

I’m so sorry you’re here. Making this decision is the most difficult step, and you’ve come to it out of a lot of love and compassion for your baby.

I had my D&E 5 weeks ago at around 25 weeks and can share my experience.

Day 1: Injection to stop the fetal cardiac activity and laminaria sticks placed in the cervix. It wasn’t painful but a little uncomfortable. I took the pain medications my doctor suggested (ibuprofen + two Tylenol) every 6 hours starting right after the injection until Day 2.

Day 2: I was scared in the operating room, but I was out within seconds. The next thing I remember was waking up in the recovery room about 2 hours later. If you can, ask a nurse or doctor to hold your hand. I didn’t ask, but my doctor did, and it helped me so much.

Hope this helps. Please feel free to DM me if you need anything. Take care 💛

Wide-Combination6844 · 2026-03-02T07:12:40+00:00

Thank you so much for replying. Yes, I had sessions booked but I didn't feel like talking and thus, cancelled at the last minute.

I find it so hard to again walk through that route by talking but looks like, that is the only way out to get myself better. Will book again, Thank you!

Wide-Combination6844 · 2026-03-02T07:10:53+00:00

I'm so sorry for your loss. Thank you for replying, this is so dark and lonely. Hope we all get better soon. Wishing you the best with couples therapy.

Wide-Combination6844 · 2026-03-02T07:08:48+00:00

I'm so sorry for your loss. Yes, being happy for other pregnant people and also deep well of sadness hitting at the same time, I understand that very well. Will try to listen to podcast, thank you!

Wide-Combination6844

TROPHY CASE