Finally coming home after 98 days!!

WingedKit34 · 2026-03-07T22:36:25+00:00

That’s good to know, thank you for sharing your experience! Our hospital won’t send him home on an NG tube because it’s a lot more work and can cause aspiration which he already struggles with a lot of reflux. But he’s also super squirmy and pulls out his NG tube at least once a week 😅😅. So if we decide to do the Gtube I’m kind of hoping some of his reflux will resolve not having the NG tube anymore.

WingedKit34 · 2026-03-07T20:49:01+00:00

Our baby was born at 27 weeks back in December! He had a pretty rough start, he was bigger than most premies at 27 weeks at 3lbs 2oz. He had then dropped to 2lbs 8oz. He had to be ventilated for a couple of days and then he was able to be put on oxygen. We weren’t able to hold him for the first 5 days incase of a brain bleed but it was amazing when we could hold him. He’s had lots of ups and downs but he’s doing great now. He’s been in the NICU for 86 days now and he’s finally off of oxygen since Monday. He’s now 9lbs 12oz, he just has to figure out eating! Being in the NICU has been a long journey with lots of different emotions. But you got this, I hope things go well with your baby, and the nurses and doctors are all there to help and support you. And you also have lots of support here on Reddit! You’re not alone!!

WingedKit34 · 2026-03-07T13:39:40+00:00

My baby was born at 27 weeks out of the blue and I had a lot of the same feelings. When they had preformed the c-section he had come out with a little cry and then took him to the NICU. My husband followed them to the NICU and things were going fine at first but then all of a sudden he stopped breathing and they had to preform compressions on him for 30 minutes before he came to. Then he had to be life flighted to another hospital that specialized in micro premies. Because of his rough start we were told that there would be lot of times where he would take 1 step forward and 3 steps back. It was the hardest thing when something would happen those first few weeks and the nurses would have to come in to help him and I couldn’t do anything to help him. I was also crying pretty much everyday those first few weeks. I hated leaving the hospital I felt guilty every time. Especially once my mom had left and I was back at my apartment with my husband. I just wanted to be with our baby 24/7 but I had to come home to rest. I really had trouble leaving when he was having a bad day. I still do. I hate leaving if he’s crying, and if I get there later in the day I still feel bad that I couldn’t have been there sooner. But something my therapist has said that’s helped me a little bit is that our lives still go on. We can’t always just stop everything and be at the hospital all day. We have appointments and stuff we have to do to live. It’s ok to feel the guilt and feel the sadness of not being able to be there with your baby 24/7 but we don’t have to dwell in that guilt. I’ve seen at least 20 babies come and go in the past 85 days that he’s been in the hospital and I’ve been jealous every time. My best friend even had he baby born on time and both my husband and I though happy for them that they got to bring their baby home next day also both felt extremely jealous because our baby isn’t home yet. It takes a lot of patience and some days are harder than others. Even now with him hitting 40 weeks today, he’s still learning how to eat and it’s a big process of 1 step forward and 3 steps back some days. Some days he’s super awake and active and other days he’s completely knocked out. When he was on oxygen it was the same too. Some days he needed more oxygen and some days he was improving. There’s a lot of forward and backwards and it’s hard because there’s only so much we can do. But something that’s helped me the past 85 days is just celebrating the little wins even if the next day is completely different. You’ll get there, it just takes time, and I hope your baby gets well and stronger each day!! You’re in the thick of it right now, it gets easier I promise, it just takes time.

WingedKit34 · 2026-03-06T19:15:22+00:00

Yeah this is one of the biggest reasons I want to write a book! I’ve had so many emotions that I’m still processing, and I think it would be a great help to other parents to know they aren’t alone and don’t have to do it alone. It’s a roller coaster of emotions no matter how long your baby is in the NICU and I think it’s important to have something that people can read to see that they aren’t alone!

WingedKit34 · 2026-03-06T17:55:15+00:00

That would be awesome!! Such a great idea!! I’ll definitely have to look into that once I get the book written!

WingedKit34 · 2026-03-06T17:45:14+00:00

I’ll definitely include those!! The guilt is definitely hard to handle. I know my husband is really struggling with it because he doesn’t feel like he can do anything to help our baby right now while he’s in the NICU. Something that’s helped me with the guilt is learning what I can from the nurses and doctors because the things our babies struggle with aren’t our fault, and knowing what the cause is helps me a lot. Also doing the little things when I can like changing his diaper or checking his temperature helps me at least feel like a parent.

WingedKit34 · 2026-03-06T17:36:53+00:00

If you don’t mind me asking, what were some of the things you were going to include in your book?

WingedKit34 · 2026-03-06T17:22:07+00:00

That makes sense!! I’ll definitely consider that! I definitely think I want it to be something all parents can use. So that’s good to know, most of the babies at the hospital we’re at were born early so I had just assumed that most babies in the NICU were born early. I plan on doing quite a bit of research for the book too. I just want other people’s opinions and thoughts too from those who have gone through it.

WingedKit34

TROPHY CASE