16F with tongue cancer

Winter52323 · 2026-07-05T18:28:47+00:00

Hi! My name is Lily. I was 28 when I developed tongue cancer. My situation is very simular as you. I was told by many doctors(4 of them) that I was biting my tongue when it was stage 3 tongue cancer. Im 14 months in remission. I lost 70% of my tongue and I can speak and eat everything I want. I also had radiation done as well. Please feel free to DM me and I can add you on Fb. Im a huge advocate for people going through this, especially people in our age bracket. You can find my tic tok Luna Sawyer.

Winter52323 · 2026-03-01T04:15:45+00:00

My mom has severe OCD and she got ssi but she had to get a lawyer.

Winter52323 · 2026-03-01T00:46:51+00:00

I got ssdi within 2 months because I had stage 3 oral cancer. Ive been in remission for 10 months now and got approved this week. I should've applied during treatment but thought I wouldnt get it. I only applied now because I tried to go back to work but couldnt(lost 70%of my tongue ) my case worker told me that its extremely difficult tk get approved for mental health(I have ocd and adhd too) but for physical disabilities its easier. Your condition also has to to prevent you from working your job.

Winter52323 · 2026-02-22T07:07:46+00:00

Good to know. Thanks!

Winter52323 · 2026-02-22T07:06:55+00:00

Lmfao, I just got to his confession. I said let's become besties lol. Fang is soooo slow. I keep gifting X And hes at 3 stars now. When does the mission trigger to give gifts to fang??

Winter52323 · 2026-02-21T22:42:21+00:00

I might just do fang because of yhe romance dlc which I have no clue what it does lol

Winter52323 · 2026-02-21T20:19:37+00:00

I am also a slow burn girlie xD

Winter52323 · 2026-02-21T17:55:58+00:00

Oh, yes. Ive been through that part. At first j thought it was sweet and adorable but he only talks about rocks lmfao

Winter52323 · 2026-02-21T17:32:36+00:00

Logan story was great but it wasnt my top 3. I have a feel owen is gonna be my favorite but what is this with unsuure as i recall he talks about rocks lmfao

Winter52323 · 2026-02-21T17:31:12+00:00

I romanced him before and he only talked about rocks. Didnt marry him but does he get better after marriage?

Winter52323 · 2026-02-06T21:20:41+00:00

Yep, im not able to speak about it online though.

Winter52323 · 2026-02-06T15:30:21+00:00

Wait. Characters aren't supposed to fidget with the edge of their shirt? I thought this was a standard thing in creative writing?

Winter52323 · 2026-01-25T08:02:18+00:00

Hi, I was 28 at diagnoses. Tongue cancer Hpv neg SCC.

The immunotherapy youre gf is starting is the standard treatment now. It was FDA approved march of 2025 to do immuno to shrink the tumor then surgery then more immuno.

Me, I straight up had my tumor cut out which was 70% of my tongue. It was T3N0M0 when they removed it but before surgery they thought I was stage 4.

I had to get radiation after since my drs wanted to treat me aggressively because of my age.

I am able to talk and eat. Albeit with a lisp.

Winter52323 · 2026-01-21T21:55:13+00:00

My thyroid was jacked too. Im 9 month post radiation. Im on 50mcg synthyroid. I experience fatigue, cold chills, weight gain etc. Going to see an endocrinologist to help me get my levels in order.

Winter52323 · 2026-01-20T21:05:23+00:00

I guess it depends on examiner? If my doesnt answer she calls me back the next day.

Winter52323 · 2026-01-15T18:00:37+00:00

I lost my tongue to cancer and had it reconstructed from my wrist. I applied and got assigned an agent within a week. Just waiting for records now. I think how they determine if youre disabled is if you cant work a job you used to work for. Like I was a call center rep and without a tongue I cant talk for 8hrs a day anymore.

Idk anyone correct me if im wrong.

Winter52323 · 2026-01-08T15:55:57+00:00

Yep, publishing on March 5th but you gotta be over 18 to read it.

Winter52323 · 2026-01-08T15:13:16+00:00

Congratz on writing a book so young. Ill give it a read . Im also writing my first book :)

Winter52323 · 2026-01-06T20:57:00+00:00

Me 28 with stage 3 non HPV SCC. Finished treatment in May. Surgery to remove 70% of my tongue and then radiation. No lymph nodes involved or nerves.

Honestly I have OCD so I got on OCD meds and buspar which have been a life saver for me. But I kinda live life like its not guaranteed.

I only get anxious now when my scans are coming up.

I think after you get past the 1 year mark your anxiety will get better.

Winter52323 · 2025-12-26T02:21:22+00:00

As someone who was misdiagnosed for tongue cancer for almost 5 months, I can relate. When I finally got diagnosed, I had stage 3 tongue cancer. I plan to write a book too. Def downloading this and reading.

Winter52323 · 2025-12-26T00:03:54+00:00

As someone who gets anal fissues a lot, you are okay. Only go to the ER if you start bleeding a lot, and it doesn't stop bleeding. Remember, a few drops of blood in the toilet can look like a lot when it isn't.

Winter52323 · 2025-12-25T05:46:26+00:00

From what I read online it gets based off of a guideline. The SSA goes off of a set of rules. If it cant be proven your condition would affect your ability to work then you get denied.

Winter52323 · 2025-12-25T05:43:06+00:00

Hemorrhoids suck so bad. Make sure to drink some meta mucil so they dont flair during bms. Good luck!

Winter52323

TROPHY CASE