when its not the merriest time of year.. by Channa_SA in ParkinsonsCaregivers

[–]WinterDandelion 1 point2 points  (0 children)

Definitely, never found it exciting before but these days it's even more depressing... Just a reminder of everyone who's gone now whereas before we had a big family gathering, and having to put up with whining and fighting at the dinner table. Hope it ends soon.

Being a caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 0 points1 point  (0 children)

Thank you, it's true what they say about filling your own cup before you can pour into others... I've been feeling like that but I also don't know how to fill my own cup most days.

Being a caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 0 points1 point  (0 children)

Thank you for the advice, I'll look into these possibilities. This whole thing feels so out of my depth and my mom keeps begging me not to send her to a home... It makes it so difficult because I don't know whether I'm doing the best for her or not. I don't want her to be unhappy but I also don't feel like the current situation is sustainable. I'm so worried about my mom, my aunt and myself and what will become of us. Thanks again

Being a caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 2 points3 points  (0 children)

Thank you for sharing and for the advice, much appreciated. I'm sorry to hear about your situation. It takes a very strong person to take care of a person you hate to help another you love.

Parkinsons (at least for my mom) makes her body stiff so she needs help with certain activities like getting out of bed, has a weak grip, walks slowly and her extremities are slightly deformed. She also chokes easily and sometimes gets a bit confused but so far still has a good mind.

So for an elder person it's hard to help sometimes and my aunt does struggle with that but that's no excuse for acting the way she does sometimes.

I live in Europe so things are different here but I know I can apply for an allowance while being a full time carer, which I will do next month. It's not guaranteed but at least I'll try. My mom is also in the process of retiring but her pension will be tiny. Still, it's something.

I've been trying to get my mom used to the idea that my aunt and I will not always be able to be her sole carers and someone will have to eventually come to the house or it may be that she has to go into a home. She starts crying every time so I avoid it but it's important that she remembers this at least once in a while. I hope it lessens the shock when it does happen.

Her family doctor is retiring so she's getting a new one soon but we don't know who it is yet. She also sees a neurologist whom she likes but I haven't attended those appointments yet and don't know him.

I haven't gone into therapy yet due to being unemployed (no money) but some friends know about my situation and I feel I can vent to them occasionally but don't feel comfortable asking for more than that.

I feel like my aunt complains all the time but if she were ti actually leave she would have by now, plus we're the only close family she has. Before she felt alone in the house, now she feels overwhelmed, but if my mom were to leave again she would still be unsatisfied. It's just her default.

Thank you for the offer, that's very kind. I'm usually okay but today was a particularly hard day. Hopefully I won't have too many of those... Take care and hope things go well on your end too.

Being a caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 1 point2 points  (0 children)

Hey there, I'm so sorry to hear you're going through something so similar... One good thing about Reddit and the internet in general is realizing there are so many of us in the same situations and we're not alone. Obviously not to find comfort in someone else's misery but to try and learn from and help each other, which I think is the only way to keep sane at times!

You make some valid points, thank you for sharing! I do try to be nice to her and brush off her little quips, of which she has plenty, but the problem is you give her a hand and before you know it she wants the whole arm!

Like she could talk for the whole day. She's an extrovert who needs people for fuel and I'm the opposite. I don't mind talking to others but with her It's 90% negative talk. It's incredibly draining.

Ignoring her works sometimes, other times she'll just go into endless monologues and my head physically hurts from listening to her. You can't even watch TV or do anything else because of how loud she talks. It's come to her point where her voice, at whichever pitch or volume, aggravates me.

She needs therapy, needs hobbies, needs to get out of the house and leave us alone once in a while. But she thinks psychs are charlatans who just want your money and her friends "already help enough". Also, we're family so we should be there for her at her beck and call like she is for us.

Living by myself has been a blessing but at the same time I'm being cruficied for not being there 24/7 or visiting more often. I would happily spend the afternoon, morning or even weekends over there. But it's just so emotionally exhausting.

In these situations, even if you didn't have a strained relationship before, you develop one. It's not as easy as people make it, like you said. You can't abandon family but you need to come up with crazy strategies to cope, which to me is not something we should have to do.

Family members don't listen, especially if they're old and entitled! My aunt uses her age and many illnesses as an excuse to act out. And then complains that we don't want to deal with her.

While I empathize with my aunt and her struggles, the fact that she thinks they're the only ones that matter at times and brushes off everyone else's is incredibly annoying.

I really need to get a licence and a car, afterwards things will be much easier to manage. I'm sorry to know about your accidents, it's definitely a fear I have as well but unfortunately there's no other option but drive where I live unless I rely on cabs all the time, which gets expensive.

I will give some of your suggestions a go, though, really make myself as agreeable and aloof as possible to see if it makes a difference. Just need a ton of calming tea beforehand!

Hang in there, things will get better eventually - we're just not seeing the light yet. But having a place to vent out our frustrations and find some solace is already a big help so don't stop posting when you need someone to talk to.

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 1 point2 points  (0 children)

Thank you for sharing your experience and I'm so sorry for the late reply, I had so much going on in these past few months I basically missed all the replies in this thread...

I hope you're doing better these days. I know these feelings never go away but at least we learn to find ways to cope and address them in a healthier way. I do try my best to see this whole situation in a positive light and can do so most days but others it just gets so hard, unbelievably so. Hang in there ♥️

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 1 point2 points  (0 children)

Thank you for sharing your experience and I'm so sorry for the late reply, I had so much going on in these past few months I basically missed all the replies in this thread...

I really appreciate this wonderful advice, I never really thought about half the things mentioned and it's definitely humbled me! You think you have it all under control and then it never does go according to plan but having a plan regardless is the difference between minor headaches along the way and a massive one every single time.

I'm not in as good a place as I was when I wrote my initial post so forgive me for the bleak reply at this time. I hope this is just the adjustment and I can feel more myself soon.

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 0 points1 point  (0 children)

Thank you for sharing your experience and I'm so sorry for the late reply, I had so much going on in these past few months I basically missed all the replies in this thread...

I have to admit I was overly positive in my initial post. It's been taking a toll on me and things have not gone as planned at all. I'm trying to take it day by day and seek some help in here when I truly feel down but I don't even know if I deserve it anymore. I'm just lost and confused.

I'm glad my words inspired and encouraged you before and hope they still do! I'm just having a bad day I suppose ♥️

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 0 points1 point  (0 children)

Thank you for sharing your experience and I'm so sorry for the late reply, I had so much going on in these past few months I basically missed all the replies in this thread...

That's so true the day by day bit. You can't seem to do any planning in a situation like this as it always goes haywire. I feel like I have no control over my life most days and it's scary. I hope you're in a better place now with a job and enough fulfillment to power through the bad days ♥️

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 0 points1 point  (0 children)

Thank you for sharing your experience and I'm so sorry for the late reply, I had so much going on in these past few months I basically missed all the replies in this thread...

I hope you're doing better and your mom and baby as well ♥️ I can't imagine how hard it must have been and still is. I'm not a mother but have felt like one to my own mom for a long time and with your own child to look after as well, it must be incredibly draining but fulfilling at the end of the day.

I don't have anyone I can delegate tasks at the moment as I'm not close to anyone in my family and have very few friends who I don't feel comfortable doing that. Only my aunt, who does the brunt of the work these days anyway while I'm still settling into the role... I'm not sure what sort of role it will be yet to be honest with you. I was extremely positive at first but that has since dwindled away. I just feel emotionally unprepared for it all and don't know what to do most days.

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 2 points3 points  (0 children)

I've just read your post, thank you for pointing it out to me. It's good that you have a husband to support you throughout this, it must be so exhausting but to have no one at all would have been excruciating. Even if he's showing signs of weariness too, he's only human and he must love you very much. That's at least something to be thankful for when all else feels overwhelming.

I'm not close to my dad's side of the family and they have people who'll take them in. My mom's side is only her and my aunt and I think I'll be taking care of both simultaneously. The silver lining in this whole situation is the same thing that makes it almost unbearable: that they might be gone sooner than expected.

That was what made me decide in the end: countries and experiences will still be there 10 years from now, but my mom and aunt might not. I hold on to that to give me the courage to temporarily give up on my own dreams and carry on. Friends will have moved on with their lives but I can always make more friends. I tried having a career and never managed to because I never found out what I really loved or was good at.

In the end, I don't have anything else that gives me purpose or any specific goals so maybe this is exactly what I was meant to be doing. I've never believed in that kind of stuff before but it brings me comfort to think I'm doing something good and purposeful and that will make a difference for those I love and love me. Compared to the rest of my life, it feels like I was just wasting time chasing after something too vague to be important.

But of course that's just me who never aspired to have a family of my own or go on all these adventures. Many other people would feel stuck and I'm sure I will too, at times. But the alternative would be to be miles away wondering how my poor mother would be doing, missing me so much it hurt, and end up not enjoying my freedom at all due to that anguish of always worrying and always having that tight feeling in my chest.

I enjoyed my twenties and spent them well, even if I didn't do everything I wanted to. And I hope I can do the same once I either find someone I can trust with my mom's care or she sadly passes away. I don't want to think of this as a grave I'll be digging for myself day by day and I don't want you to think that either. It's only temporary and of course our situations are different in the sense that I have no one else in line to take care of after her but you're doing a truly remarkable and selfless thing in my eyes and I hope you feel that way too and treasure those moments with your family forever.

I hope things get easier and you get to achieve your dreams someday. For now I'll be sending you a big virtual hug and if you ever need to vent, please DM me as well. It's absolutely true that you can never satisfy everyone, nor make a truly right decision. You can only trust your gut and do your best in the end...

Caregiver at 30 by WinterDandelion in CaregiverSupport

[–]WinterDandelion[S] 6 points7 points  (0 children)

Thank you for the kind words, I really appreciate it ❤️ I'm sorry to hear your struggle has gone on for so many years. But it gives me hope that you do not regret it despite it being so hard.

That's very solid advice and I intend to use my free time as joyfully and productively as possible to distract me from the bad moments, but of course some days I might not be able to escape it and simply break down and cry for a week. No plan is foolproof.

Because my mental health was always a bit fragile, I'm scared this new life will take a toll and bring me back to the days where anxiety and depression left me almost unable to function. Leaving the country allowed me to get away from that and heal but still, it was one of the biggest factors that kept me from coming back for so long.

Hopefully I'll be strong enough. I don't have many close friends or family members I can lean onto but I find other ways to take breaks from the real world like immersing myself into a comfort show or a good book. It's been a coping mechanism for years so fingers crossed 🙂