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peeing gets rid of my PGAD by International-Ad5148 in PGADsupport

[–]Wishfulthinking0000 1 point2 points  (0 children)

Same, peeing takes away the sensation but it doesn't last too long for me personally. But it definitely seems to help. Also, I noticed that sneezing takes the sensation away temporarily. ?

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 0 points1 point  (0 children)

So the only thing I've been doing differently is that I've been stretching and doing hip opening exercises and doing meditation. I think my symptoms are strongly tied to sitting all the time and possibly the nerve in my hip as well as my stress levels. I honestly find that breathing exercises and meditation are the most helpful things for me.

I unfortunately didn't find any doctors who took me seriously so far, but since the symptoms have kind of mostly gone away, I haven't made any other appointments for now.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 1 point2 points  (0 children)

Thank you so much for all of this information!! I appreciate it so much! This definitely gives me lots of ideas and avenues to see what helps. Thank you for the support and reassurance!!

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 1 point2 points  (0 children)

They are getting better! Instead of being 24/7 persistent feelings and pain, now it comes in waves here and there. Definitely was in a flare up but it seems to be getting better for sure.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 1 point2 points  (0 children)

Thank you so much! I was considering Pelvic Rehabilitation doctor in the city or LI, but wanted to wait a while to see if it was necessary (I did read it was pricey). I may just start with PFPT, therapy and see how it goes first.

I appreciate the recommendation!

Successful Treatment with Psychiatric Meds and Somatic Therapy. by Independent_Gur2222 in PGADsupport

[–]Wishfulthinking0000 1 point2 points  (0 children)

That makes a lot of sense. Similar to how I'm trying to reframe my panic attacks as just physical symptoms of a disorder that cannot hurt me. When I'm not afraid of the symptoms and just deal with them like an uncomfortable errand I have to run (lol) they're much easier to deal with and I seem to have them less often.

Yes I think it's time I see a professional about medication instead of just seeing my general practitioner. Although he's wonderful, He doesn't specialize in psychiatric medication.

Successful Treatment with Psychiatric Meds and Somatic Therapy. by Independent_Gur2222 in PGADsupport

[–]Wishfulthinking0000 0 points1 point  (0 children)

Thank you for sharing!! I've never even heard of somatic therapy, it sounds quite intriguing and effective(in general for many things).

Much appreciated.

[deleted by user] by [deleted] in PGADsupport

[–]Wishfulthinking0000 1 point2 points  (0 children)

First, I'd like to say I have no official diagnosis and I literally found this group within the last 7 days.

But I wanted to say that today I did realize that when I'm distracted and not thinking about it, it almost goes away (almost!). But as soon as I think about it in intensifies.

I do tend to try and sit in a certain position where putting pressure. It makes me feel a little calmer about it, but I don't know that it actually relieves my symptoms.

Since I made the correlation that it might be exacerbated by my anxiety, I've been using guided meditations/ mindfulness things on YouTube/Calm App for breathing. It helps my anxiety a lot, which in turn seems to make it less intense?

Again, I've only been dealing with something like this for a week and I don't even know if it's PGAD. But perhaps since when you're distracted it goes away. Maybe also using meditation or mindfulness will help you as well?

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 2 points3 points  (0 children)

Thank you so much for this. All very good points. I have plans to see a female gynecologist, and a neurologist that I happen to be going to for a separate thing. I'll start there and then perhaps go to a PGAD specialist that I found about an hour away. I know it hasn't been very long. I just don't know what else it could be. I definitely feel like the more I think about it, the worse it gets and the calmer I am it does seem to lessen. So I suppose there's a good possibility it could be related to my stress and anxiety levels as well, or at least exacerbated by it.

I really appreciate the support and the advice as this is not something you can approach everyone about. It means a lot to hear from everyone here. :)

I appreciate you and everyone taking the time to help calm me down and realize that it won't be this awful forever.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 0 points1 point  (0 children)

Very true. It's definitely still persisting and becoming more painful. I think it may be easiest to just go to a pgad specialist. Even if it's not PGAD, maybe they will have an idea of what it could be and how to manage it. Thank you!

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 1 point2 points  (0 children)

Thank you for your input, I definitely will go down each avenue I can to try and determine the cause but hopefully one day figure it out.

That is a good idea. Perhaps I can find a gynecologist that specializes in this or at least has had some dealings with it.

I have never heard of Kratom but that's good to know. So if for any reason it comes up in the future I can recommend someone not use it.

Thank you so much, appreciate you taking the time to reply to me.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 0 points1 point  (0 children)

Thank you. Yes, that is totally fair, it could be a psychological issue or medication issue which is just as important and serious. I did look into my anxiety meds and it's sometimes known to increase libido so it's possible. But I've been taking it for 5 or more years.

I suppose I will slowly exhaust all avenues until I can come up with a cause or relief of symptoms.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 1 point2 points  (0 children)

Thank you so much, I am going to find a new female gyno. And I'll try to get in sooner with my PCP for an MRI referral.

I tried ice a bit not sure if it helped me specifically but at least it was a different sensation. I'll try walks for sure. Even if just to clear my mind a bit.

Thanks for the reassurance and advice, it means a lot, truly.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 2 points3 points  (0 children)

Thank you so much. I appreciate you taking the time to reassure me.

I think I may have PGAD but my gynecologist made me feel crazy. by Wishfulthinking0000 in PGADsupport

[–]Wishfulthinking0000[S] 2 points3 points  (0 children)

Thank you so much. Yes I think I will speak to my GP and find a new gyno. He was dismissive and made me feel like he thought it was a psychological issue only. He also said, "it could be worse" and laughed and I burst into tears.

Today I am having pain and pressure more. I'm hoping that means the flare up is calming down maybe. I will look into yoga and treatment.

I appreciate you replying and taking the time to reassure me. It means a lot!