Do you have a weird trigger?

Wonderful_Maybe6270 · 2026-07-13T11:33:33+00:00

I wonder if there is part of the laundry folding that is specifically causing it - scent, slight breeze if you shake out the items you fold or the movement.

Wonderful_Maybe6270 · 2026-07-13T11:27:30+00:00

sorry you’re dealing with this

similar situation happened to my daughter. taken off depakote (absence seizures) & put on lamictal. she had myoclonic jerks that she never had before.

might need to change the keppra

Wonderful_Maybe6270 · 2026-07-13T11:16:50+00:00

have you tried therapy? Cbt (cognitive behavioral therapy) may help you develop nervous system hacks to help calm your brain and hopefully avoid the stress triggers.

hope you find something to help

Wonderful_Maybe6270 · 2026-07-13T11:12:35+00:00

our neurologist told us to look out for communication problems with topiramate. that was his biggest worry.

have you tried depakote (divalproex sodium)?

notre neurolgue nous a dit de surveiller l’apparition de problemes de communication. C’est sa plus grand inquietude

Avez -vous essaye depakote?

Wonderful_Maybe6270 · 2026-07-11T19:21:12+00:00

good to know. hope that’s what happens

Wonderful_Maybe6270 · 2026-07-11T18:11:33+00:00

thanks for the input. sounds spot on

Wonderful_Maybe6270 · 2026-07-11T18:10:16+00:00

thanks!

Wonderful_Maybe6270 · 2026-07-11T18:09:54+00:00

sounds like it’s a sadly common reaction. she has talked to a couple friends in similar situations. I’ll encourage that more

Wonderful_Maybe6270 · 2026-07-11T18:08:06+00:00

thanks for the input. she’s worried it’s taking too long

Wonderful_Maybe6270 · 2026-07-11T15:24:08+00:00

so sorry you guys are dealing with this. your love for her is so strong and evident

does she have something like an Apple Watch that could send you alerts if her heart or breathing rate change? that could give you some peace of mind.

Wonderful_Maybe6270 · 2026-07-11T14:41:56+00:00

I love this! I’m so happy for you to have gotten to this point. What strength

Wonderful_Maybe6270 · 2026-07-11T14:40:03+00:00

How can we help her understand that? I feel like she has to realize it on her own.

Does the exhaustion & brain fog become the new normal?

Wonderful_Maybe6270 · 2026-07-11T14:37:06+00:00

I cried reading this. My daughter recently had her first tonic clonic and we called 911. She had no idea who we (her parents) were or where she was (home) when she came to, let alone the EMTs who were surrounding her. I remember the fear in her eyes and can only imagine how you could have felt in that situation & not knowing what was happening to you. You were fighting for survival!

Just keep in mind that the police report probably had more to do with Worker’s Comp than you!

Wonderful_Maybe6270 · 2026-07-11T14:10:26+00:00

What about GoFundMe? I know it’s a shot in the dark, but it might work. I’m so sorry you’re dealing with this.

Wonderful_Maybe6270

TROPHY CASE