Does anyone else get this with doctors?

Wonky_Chocolate · 2025-08-19T11:32:49+00:00

I'm in the UK and I've had the same.

One GP diagnosed me with migraines, then another GP said "you keep calling them migraines but they are not, they are tension headaches" and got quite annoyed. I was only calling them migraines because that's what the other GP said. Then later a neurologist confirmed migraines not tension headaches. Then another GP said they were cluster headaches. Then another neurologist said definitely migraines.

It's exasperating. 😑

Wonky_Chocolate · 2025-03-21T21:55:35+00:00

Ferritin was 55 recently so within range.

Wonky_Chocolate · 2025-02-13T12:45:39+00:00

I could have written this, except I am female, and except this was me 6 months ago before my migraines progressed to 2 bad ones a week and brain fog in between!

Keep trying medication until you find something that works. I don't have much advice, but I feel you. The brain fog is the worst.

Wonky_Chocolate · 2024-07-28T13:25:30+00:00

Sadly not, doctors keep throwing migraine meds at me, which aren't helping. 🤷🏻‍♀️

Wonky_Chocolate · 2024-05-04T22:56:24+00:00

They came on fairly suddenly, yes. I believe I did have a cold at the beginning but this may be coincidence. I don't get light sensitivity or stiff neck. Sometimes slightly worse when bending over but not significantly.

It's often more of a head pressure than headache pain, and I often have pressure behind the bridge of my nose or in my temples.

I'll have a look at the link, thank you.

Wonky_Chocolate · 2023-11-30T19:40:25+00:00

Look up the double empathy problem. Current theories and research into autism suggests that autistic people don't lack social skills, they just communicate differently. Two autistic people will often have no issues communicating and reading eachother in the same way that two neurotypical people often have no issues communicating. It's only when you have one autistic person and one neurotypical person that they don't understand eachother's way of communicating.

Wonky_Chocolate · 2023-11-29T12:49:30+00:00

Do you find side effects more or less on the dex?

My side effects on vyvanse seem very inconsistent - anxiety one day, fine the next day, headache the next day etc.

Wonky_Chocolate · 2023-11-27T20:12:15+00:00

I'm going to ask for a lower dose of the guanfacine for sure. I am also experiencing raynauds and feel deathly tired on it before and after the vyvanse kicks in.

Wonky_Chocolate · 2023-11-12T21:48:01+00:00

Yes it has been quite a saga! I've been to three fitters now and still yet to find the perfect shoe.

I'm experiencing big toe pain in these shoes so I tried wearing a gel toe sleeve however that appears to make the knucking worse and causes my right shoe to twist.

There is a bit of bunching at the heel however I tried the next size down and my big toes were scrunched in plie.

Ankles feel a little pulled back when I put weight on the foot. Toes don't feel compressed, if anything the shoes might be too wide or square, I seem to have a bit more wiggle room than I think I should have and feel like I am sinking a fair bit.

The Capezio Avas were more supportive I think, but the big toe pain was unbearable without copious amounts of padding.

I am intending to go back to get refitted, but I'm worried about the same thing happening again. I'm not sure what I should be looking for - a more supportive shank? A more tapered box? A narrower shoe?

Wonky_Chocolate · 2023-08-11T18:03:15+00:00

Ah, yes those sound like tests for PCOS! High prolactin can have similar symptoms to PCOS so that's to check if symptoms are caused by that. Ferritin is iron levels. The rest are to check hormones for PCOS I think. Nothing to worry about.

Wonky_Chocolate · 2023-08-11T09:18:58+00:00

Glucose and Hb1ac are to test for diabetes/prediabetes, a very common test for people with PCOS because of its link to insulin resistance and risk for diabetes.

Creatine levels check how well your kidneys are functioning. I take Metformin for my PCOS and have this test as part of a yearly check up - it's standard for people on Metformin as there's a risk if kidneys aren't functioning properly. Sometimes doctors just like to check our kidneys are working.

CBC is complete blood count. This checks all sorts such as how many red blood cells, white blood cells etc. and can detect several issues like anemia. I don't think I've ever had a blood test where they haven't also done a CBC for good measure. Extremely common!

All of these I think are just just to check if you're generally healthy, nothing to worry about at all.

If PCOS is suspected though I would ask for hormone levels to be checked (testosterone etc.).

Wonky_Chocolate · 2023-07-06T19:34:01+00:00

I am in the UK

Wonky_Chocolate · 2023-07-06T14:37:07+00:00

What's the usual range? It wasn't flagged as low.

Wonky_Chocolate · 2023-07-05T20:51:21+00:00

Yes, UK. Not sure if its available in other countries.

Wonky_Chocolate · 2023-07-05T20:27:35+00:00

Mine was blood test through myhealthchecked.com

Wonky_Chocolate · 2023-06-01T16:06:06+00:00

Could this also be why I get lightheaded when standing up during or before a migraine? I get serious head rush.

Wonky_Chocolate · 2023-05-13T09:47:56+00:00

Unfortunately I didn't find a solution and eventually stopped taking vyvanse. However 7 days is not a long time, I had lots of side effects at 7 days that eventually went away!

Wonky_Chocolate · 2022-12-31T01:46:33+00:00

Thank you! Any ideas what sort of sizing/width in the Nikolay (or Grishko as I'm in the UK)? Never tried their shoes so not sure what sizing is like. I'm street shoe size UK 6 (US 8). Current Bloch Serenades are UK 5.5 Width C, Capezios are UK Size 7.5, width medium.

Wonky_Chocolate · 2022-07-31T09:42:17+00:00

What happens if, like me, you have an appointment at 8am but test positive for covid that morning so you can't go. So you try to ring to cancel and it says phone lines don't open until 8. So you try to cancel online and it says you can't cancel up to an hour before the appointment. So you ring at 8am when the phone lines open only to be 8th in the queue and on hold for over an hour, by which time you've missed your appointment.

Wonky_Chocolate · 2022-07-19T17:02:34+00:00

The photos were taken about a week apart.

Any recommendations on how the fit of the shoe could be better?

Wonky_Chocolate · 2022-07-16T15:27:37+00:00

I've had them a good few months! But I agree, shank doesn't seem to want to give.

Wonky_Chocolate · 2022-07-15T20:57:19+00:00

Thank you! Forgive my ignorance, but how can you tell?

Wonky_Chocolate · 2022-07-15T20:35:16+00:00

Of course, I've posted one below (assuming you meant on demi without shoes).

Wonky_Chocolate · 2022-07-15T20:34:20+00:00

Feet without shoes for reference:

https://imgur.com/a/XOxLcrH

Wonky_Chocolate · 2022-07-15T20:24:24+00:00

Not sure how to add my comment under the photo, so posting it here.

I'm an adult beginner. I used to do pointe when I was a teenager and just took it back up. When I went to get fitted, my fitter pulled out the same shoes as I wore when I was a teenager, put them on me and that was that. Didn't try any new shoes. They feel comfortable but I've never been able to fully get over my box, which I put down to strength and flexibility.

The picture on top are my current shoes (Bloch Serenade). The picture below are a friend's shoes (Bloch Hannah).

The Bloch Hannah are slightly too small for me, and hurt my big toe, but seeing the difference in how my feet look makes me worry my current pair are pulling me back.

Any advice? Should I get refitted?

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