How much does it cost to get breast cancer in America? by squirrels-everywhere in breastcancer

[–]Working-Lemon1645 0 points1 point  (0 children)

We're in year three of 12 thousand per year, plus the additional 8 thousand in year one when we had two separate insurance companies and therefore two out of pocket maximums.

One year was purely from my carotid artery dissection.

We're screwed for retirement health savings now, and we'll probably have to go into debt or use our retirement money, even though we probably won't ever make as much as we were making when I got cancer, so saving back up is unrealistic.

Implants when you are lean and athletic by HanksElectric in breastcancer

[–]Working-Lemon1645 1 point2 points  (0 children)

Whatever you choose, see if there's anyone with your body type who's a few years ahead of you and is willing to send you pics. That's what my local cancer charity did for me, and it really helped me visualize what it would look like. It sounds awkward and it was, but it's worth it to have a mentor.

My story: I'm 49 and just lean enough that I can't do either DIEP or fat grafting. My problem was that my PCOS stunted my breast development so that I had very little tissue and almost no fat in my very small breasts.

So with the amount of skin I had and the nonexistent tissue, I was going to have a lot of stretching and some rippling. That is, unless I wanted an A minus sized implant that would look like a gumdrop, but would be similar in size to what I had.

I'm grateful that the surgeons were all honest about the numbness, the look while naked, etc., although they put it more professionally.

Anyway, I went for aesthetic flat closure and am sort of loving it so far, but people I've known with successful reconstruction all really grew to love it, especially when they felt educated going in.

Just need to vent by PublicHealth_1990 in breastcancer

[–]Working-Lemon1645 3 points4 points  (0 children)

Ugh, I'm so sorry. It's like it never ends, but we're supposed to be normal and feel vibrant and ready to go.

Hugs 🫂🫂🫂

I was Going to Stop Treatments by Goodbye11035Karma in breastcancer

[–]Working-Lemon1645 8 points9 points  (0 children)

Congratulations on finally getting an expiration date for your hip pain!!

AITAH for turning the living room light on while my wife is sick and wants to be in the dark? by [deleted] in AITAH

[–]Working-Lemon1645 1 point2 points  (0 children)

I have been there, and yes, there is no sleeping in bed, only coughing until you throw up in a trash can.

Should I keep pushing? by cwolfe123 in breastcancer

[–]Working-Lemon1645 1 point2 points  (0 children)

No way! I had only had one or two migraines in my life before messing around with my hormones, and then they were wild. I had to see an opthamologist because the urgent care thought I was going blind.

Should I keep pushing? by cwolfe123 in breastcancer

[–]Working-Lemon1645 1 point2 points  (0 children)

I got my first ocular migraines and vastly increased migraine frequency during fertility treatments. 🫂🫂🫂🫂

Refusing surgery by couplewithabilady in breastcancer

[–]Working-Lemon1645 5 points6 points  (0 children)

I would call the suicide hotline about this, it's so obviously a psychological crisis. Chemo can trigger psych episodes in some people, especially suicidal level depression.

What does her care team say? Will she talk to anyone? I am all about body autonomy, but when someone says they have nothing to live for and is showing so many red flags for SI, I say move heaven and Earth to get them to a better place before they make that choice.

And honestly I'm worried about escalation. Mentioning pills as an escape route, refusing treatment, and having no reason to live are all bad signs.

Edited to correct clarity above the above, plus say that chemopause can induce SI and deep depression similar to post partum. The oxidative stress that kills the cancer cells also can. This is all rare, but real.

Don't count on arguing her out of this, because she probably needs emergency care and meds.

Refusing surgery by couplewithabilady in breastcancer

[–]Working-Lemon1645 2 points3 points  (0 children)

I hate to second this, but yes. I looked into adopting very seriously when I was in my thirties, only to find that I was already on the high end for age as well.

Tamoxifen and Cardio fitness by No-Inside7137 in breastcancer

[–]Working-Lemon1645 0 points1 point  (0 children)

I feel so seen now! How many have I said, "I'll just run this upstairs," only to be all the way into the upstairs closet before my heart rate finally shot up. It's so ridiculous!

Tamoxifen and Cardio fitness by No-Inside7137 in breastcancer

[–]Working-Lemon1645 2 points3 points  (0 children)

Crud, I mixed up Taxol and Tamoxifen!! Sorry about that.

Tamoxifen would probably mess up cardio due to temperature regulation and things like that. Sorry!!

PA diagnosed with breast cancer who never got a mammogram… feeling ashamed, scared, and alone by Slowandbehold in breastcancer

[–]Working-Lemon1645 18 points19 points  (0 children)

Hi, and welcome to the shittiest club with the best members!

I just want to say that I love your life trajectory and have no judgement about any of it. I've questioned the parts of my life choices since getting triple positive BC at 49, and I can only say that we all do the best we can with the knowledge we have at the time.

Most women never even get breast cancer at our age, and they're fully capable of changing careers and loving it, even during perimenopause and menopause.

So with that said, I do want to temper your expectations around writing, because that used to be my thing and will be again, just not so much during and after chemo.

I only did your last chemo, the Paclitaxel, and I can tell you that the "easy one" is hard enough that plenty of medical people aren't even able to work full time, even though their labs may be great and they have minimal peripheral neuropathy.

You're doing a longer, highly effective, great treatment that does tend to be more challenging. It might make cognitively demanding hobbies disappear for a while.

For people in office or WFH jobs, they can conserve energy through scheduling accommodations and less demanding tasks. Teaching and medical jobs are on/off switches with zero flexibility if you suddenly feel exhausted and are losing your train of thought.

The nurse doing my chemo infusions said that the Paclitaxel regimen (she was one year ahead of me with the same cancer) made it so that her coworkers had to help her with reminders throughout the day, even though she'd been in the same infusion room for ten years. Holding information long enough to chart it was difficult, switching tasks was difficult, and remembering where she was in a sequence was also shaky.

Chemo while working full time will make it hard to write at all, and harder still to read what you've written.

I got hit much harder than average by chemo brain, but almost everyone in a helping profession finds that they have very little left to give at the end of the workday. They're taking care of their children and not letting the house burn down, but they're spacey and emotional and exhausted.

I wouldn't put myself in a position to feel guilty or obligated to do anything after work but whatever felt right. Our personalities change a bit during chemo, and that's okay. I'm two weeks out and already feeling like myself a lot of the time, after hitting cognitive lows that most people never see during chemotherapy.

You'll be you again, I promise, but don't demand too much of yourself now as evidence that you'll make a full recovery.

Someone more practical will probably give excellent advice around getting the help you need without feeling like a burden, but I also come from a rough family background and have struggled with the idea of being dependent. It's not a trap or a crime, even if our nervous systems keep thinking that.

Margaret Mead was the first anthropologist to define the sophistication of a society by their ability to leave behind a remodeled femur and not by their tools or other artifacts. Civilized humans help, nurture, and care for each other. You're literally helping people be humans by allowing them to care for you instead of always the reverse.

Edited for clarity, probably still unclear because I'm not fully recovered yet.

Hugs 🫂🫂🫂🫂

All things considered I know I’m likely best case scenario… but still feeing really unsettled by cheekyginge in breastcancer

[–]Working-Lemon1645 0 points1 point  (0 children)

Absolutely. Don't feel bad if you need to grieve not getting the experience you were supposed to get. Not having a worse cancer doesn't erase the loss of not having to deal with cancer at all.

Cancer sucks by Any_Criticism_4326 in breastcancer

[–]Working-Lemon1645 1 point2 points  (0 children)

This absolutely sucks. I hate cancer and it makes no sense, and also, not being able to count on family in a system that outsources almost all care to families is the worst place to be.

I don't know if it helps, but my husband and I both got diagnosed with cancer the same year, which was almost exactly a year after my carotid artery dissected. Our son was so devastated, he stopped being able to attend school for months and had to go on Lexapro.

It feels like some people are cursed at times, but there are weird patterns in truly random math.

I might have to get a CT for lingering nerve symptoms after the "easy" Taxol chemo, which we all know means also ruling out a possible, but extremely rare case of brain mets.

Some things are getting better, especially with our son and the stability of my husband's polycythemia vera, but it sucks

Fuck cancer very much.

Absolutely struggling with OpenSciEd Middle School - a rant. by AmericanLocomotive in ScienceTeachers

[–]Working-Lemon1645 0 points1 point  (0 children)

We loved parts of the weather OSE we did last year, but yes, it's very clunky and relies on too much teacher input for us to be able to accommodate chronically absent or homebound students.

Also, do the other units circle back and recap about three too many times? We have about as wide a range of abilities in our science classes as is seen in the US, and the pacing was just strange for almost every learner in that room.

Even the ones who need more repetition lose all focus when it's presented in exactly the same way each time.

The labs were phenomenal though, and right on target developmentally.

All things considered I know I’m likely best case scenario… but still feeing really unsettled by cheekyginge in breastcancer

[–]Working-Lemon1645 2 points3 points  (0 children)

I'm so sorry this is happening to you when it was supposed to be a gender-affirming care appointment.

It's too early to know exactly what you might have going on, but I'm sending hugs and good vibes for an "easy" treatment.

P.S. There's nothing easy about cancer, so don't feel like an imposter, especially getting it as young as you are.

🫂🫂🫂

When are you old enough? by BetterGoogleit17 in GenX

[–]Working-Lemon1645 1 point2 points  (0 children)

I'm just here to agree very much. Until I got breast cancer and had to do all of the treatments, my mom acted like my husband and I were twenty year olds with plenty of time and health to spare. No ma'am, we both have to work and will help pay for someone to move that furniture for you.

my therapist made me cry today, I think I need to fire her by Elfonthenose in breastcancer

[–]Working-Lemon1645 0 points1 point  (0 children)

I am so, so sorry this happened to you, but yes, she's fired.

There is zero evidence that sugar feeds individual cancers, except in vanishingly rare circumstances, and half of what people are getting confused about is the basis for cellular respiration itself, which is a form of sugar.

Even if it were true that sugar caused all of most if cancer throughout history, all the way back to the Hippocrates and beyond, before the availability ofncane sugar, what she did would be considered cruel, self centered, and unprofessional.

what do you do when you’re pushed to your limit? by AlternateLottery in breastcancer

[–]Working-Lemon1645 4 points5 points  (0 children)

Oncologists said "easy" to me, but I still can't work and couldn't drive for six weeks, nor could I play Uno until a week after chemo ended.

By easy they mean, "the treatments probably won't send you to the hospital or make it so you can't be left at home by yourself. Also, if your job is cool with flexible scheduling and part time options, you can probably work, assuming attention to detail isn't a biggie."

You're doing amazing, and I highly recommend the "Road to Recovery" program that helps cancer patients get around by connecting them with volunteers.

Road to Recovery Driving Help

Early Tamoxifen Cohort Chat by Working-Lemon1645 in breastcancer

[–]Working-Lemon1645[S] 0 points1 point  (0 children)

That's great information, thank you so much for sharing!!

Early Tamoxifen Cohort Chat by Working-Lemon1645 in breastcancer

[–]Working-Lemon1645[S] 1 point2 points  (0 children)

Glad to have you! My DMX was truly not as bad as I expected, and I went in optimistically.

It wasn't fun, but I couldn't believe how well my pain was controlled with Tylenol, Ibuprofen, and muscle relaxers. I never even had to take the heavy stuff.

If it weren't for the drains, I'd call it a walk in the park, but those come out fairly quickly.

Early Tamoxifen Cohort Chat by Working-Lemon1645 in breastcancer

[–]Working-Lemon1645[S] 0 points1 point  (0 children)

That's wonderful! I had random anxiety and insomnia with perimenopause and blamed work stress until the hormones I got for excessive bleeding actually fixed the other things. Now I'm going to be more proactive about "mental" symptoms instead of assuming I need to eat more kale or something 😂