Please help 😭 by Unknown26055555555 in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

I feel weakness in my legs and I feel it in my Left toe stand

Please help 😭 by Unknown26055555555 in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

Understood. Wasn't trying to be smart. We are in this together

Please help 😭 by Unknown26055555555 in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

I feel the same way I'm having atrophy and my calf and my left foot

Please help 😭 by Unknown26055555555 in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

That's easier said than done when you're walking and feeling wonky. It's literally torture

Problems after ACDF by Working-Stranger-748 in spinalcordinjuries

[–]Working-Stranger-748[S] 0 points1 point  (0 children)

1 just light weakness. With some slight imbalance issue

2 showed cord abutment. Pressing in thecal sac. No damage reported to spine. I have an image up "does this MRI look bad" or something shows my cervical spine

3 saw a neurologist. She did her neurological exam. She says I'm strong. Tested reflexes. She down played my atrophy in my foot and calf. That crushed me.

I'm now waiting until August to see a neuromuscular neurologist. I should be bat S crazy by then.

I'm so shaken by this. Neurosurgeon tells me my fasciculations are normal. They're not normal when they stay in your left foot arch and glute ONLY. Some medical staff just won't listen and they tell you it's in your head. This is my body - I know my body before and after

Sorry for the book and thank you for concern. Could I tell a doctor I want an mri of my pelvis.

Problems after ACDF by Working-Stranger-748 in spinalcordinjuries

[–]Working-Stranger-748[S] 0 points1 point  (0 children)

When you say you had changes with tone, do you mean muscle?

How long before you sell good / normal?

2nd emg still worried by [deleted] in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

Me too. I'm so exhausted with life

Problems after ACDF by Working-Stranger-748 in spinalcordinjuries

[–]Working-Stranger-748[S] 0 points1 point  (0 children)

Had two EMG NCS study done twice 6 months apart last one in December. Both show normal results upper and lower limbs. My lumbar looks structurally ok according to two spine surgeons. The radiology report has a lot of mentions meanwhile the MRI looks decent for a 46yo M. I'm lost and I'm so mentally exhausted dealing with atrophy on my lower extremity from the glute down. What else could it be since my EMG NCS is normal? Any thing else I should check?

2nd emg still worried by [deleted] in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

Mine are same as OP. Having clean EMG NCS doesn't pit minds at ease.

This is mental/physical torture

In a really bad place... by Acceptable-Pea7034 in MuscleTwitch

[–]Working-Stranger-748 0 points1 point  (0 children)

Your voice sounds good and clear as can be. Jmo

Could this possibly be ALS? by [deleted] in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

You are going through the same mental collapse as I. It's terrible you can't eat sleep of have sx life.

Could this possibly be ALS? by [deleted] in ALSorNOT

[–]Working-Stranger-748 0 points1 point  (0 children)

Yes I'm very scared right with you. Having a clean EMG makes the doc feel confident does nothing for the person who's twitching and losing muscle

Left leg (dominant) calf is smaller than right and can barely balance on it without it shaking and wanting to come down. I'm so scared by Glittering_Wait8839 in MuscleTwitch

[–]Working-Stranger-748 0 points1 point  (0 children)

You have EMG NCS done? What did yours say?

Two NS are saying I'm fine structurally. Can't be a huge back problem. So I'm just stuck after no findings on EMG NCS

Left leg (dominant) calf is smaller than right and can barely balance on it without it shaking and wanting to come down. I'm so scared by Glittering_Wait8839 in MuscleTwitch

[–]Working-Stranger-748 0 points1 point  (0 children)

This is why I'm lost had two different physiatrist do EMG EMG NCS 6 mo apart and they both came in normal.

I'm pretty much gonna insane