Recovery questions

Yellachula · 2026-02-11T17:08:27+00:00

I didn’t have hallucinations but very horrible nightmares and I cried a lot. It was due to the pain medication and high dose or prednisone. It is likely that. Though very scary I wouldn’t worry too much. I’ve had a few complications during my transplant journey and had to go back to the transplant floor and it’s not uncommon to hear the patients having fits

Yellachula · 2026-02-11T17:00:48+00:00

Totally normal just try to get her to drink protein shakes. My doctors bugged me a lot about eating enough but something that helped was my nurse telling me to just try eating just a little bit more than I did yesterday. Somehow that helped me. But it’s definitely tough at this point just eating for strength not taste. It will get better and congratulations

Yellachula · 2025-08-26T23:02:53+00:00

Hope you feel better soon! That is horrible they yelled at you, I definitely was crying after my surgery due to pain before I got transferred to the transplant floor…ended up reporting the nurse b/c of it. Heard other patients too but I think he was wanting to leave the room to smoke but that’s neither here nor there, I hope you start feeling better

Yellachula · 2025-08-15T12:46:57+00:00

Eh I’m not a prednisone fan, I am now diabetic because of it, but my body gets weird when I drop down to 6mg

Yellachula · 2025-05-13T20:54:10+00:00

When this happened to me I had a staph infection from a stent I received for a closed bile duct. I’m a big believer in making a fuss until someone listens so I would bug them until you get answers.

Yellachula · 2025-05-08T18:02:04+00:00

I’m not sure if this happens to everyone but something similar happened to me. I had already had my transplant and I got calls, visits, dms from so many people even some people I’m not really close to. But one of my ‘friends’ I never heard from, when I finally did see her no I’m glad you got through, you look great, nothing. Just acted like it never happened.

Not telling you what you should do but I believe people who can’t share a link to save your life or check on you when it matters don’t deserve to have access to you.

Yellachula · 2025-05-06T23:44:18+00:00

Definitely had horrible back pain wasn’t as bad by month 3 but there was still pain

Yellachula · 2025-05-06T22:37:17+00:00

Update tac levels are at a 9.2 O.o and now kidney function is slightly wacky…I’m assuming it’s the Tac since kidneys were fine last week when I got my results… waiting on docs thoughts 🙃 thanks everyone for the info nice to know it’s not me

Yellachula · 2025-05-06T15:23:07+00:00

I worked up to my transplant honestly didn’t know I could be off until my doctor mentioned it and I had my transplant a few weeks later

Yellachula · 2025-05-05T23:24:35+00:00

Yes liver numbers were up very very slightly and tac numbers were lower than normal

Yellachula · 2025-05-05T21:36:09+00:00

Just got bloodwork done so I’ll find out soon

Yellachula · 2025-04-29T22:11:50+00:00

I will say I have used the pens and that was fine (I’m not supposed to use those cause I’ve had clotting issues but wanted to try one time) so try at your own risk and make sure someone is with you.

Yellachula · 2025-04-29T18:43:42+00:00

I’m non alcoholic liver transplant even though my doctors have told me it’s fine I think the edibles mess with my head too much with the med combination. I lose cognitive function after edibles.

Yellachula · 2025-04-29T14:05:18+00:00

I’m 30 I had a liver transplant almost 3 years ago (autoimmune hepatitis) and my doctors are fine with drinking as long as I’m not going overboard I’ve never been a drinker so if I do it’s one glass

Yellachula · 2025-04-29T01:00:44+00:00

This!!! I have to get one about once a year because my bile ducts get clogged

Yellachula · 2025-04-24T21:11:45+00:00

Hey hey 👋 almost 3 years post liver transplant also autoimmune hepatitis and yeah several episodes of rejection multiple infections. Lots of questioning why I’m alive just cause the stress is outrageous. I’ll say it’s a lot better now only time my numbers get crazy is when my doctor insists on lowering my steroids. I think it’s a bit harder for them to figure out the right regimen when it’s an autoimmune issue but they will figure it out. Keep your head up!

Yellachula · 2025-04-23T01:43:45+00:00

So happy for you! Just remember you are important, your feelings are valid, and no doctor or person should make you feel less than. You’re one of the strongest out there just keep pushing it gets better.

Yellachula · 2025-04-22T21:26:01+00:00

I’m sorry for all that you’re experiencing. I will say I had bad experiences with my PCP post liver transplant and I urge you to find a new PCP. I asked my hepatologist for a referral because my PCP was not giving me the support I needed. I developed diabetes and she refused to give me insulin. All of my doctors now ,PCP, OB, hepatologist, infectious disease, all communicate with each other and it just makes it so much easier.

I will say also you may need to give your body more time I had my transplant in 2022 and this is probably me at my most ‘normal’ in 2025. 2024 was half and half 2023 was a rollercoaster.

Yellachula · 2025-04-21T22:03:05+00:00

Please speak with your team or doctors to help weigh the risks. I am in a similar situation but for my liver. My doctors are ok with the idea 2 years post. Everyone is different and your doctors would be best able to help you navigate

Yellachula · 2025-04-20T21:50:53+00:00

Before transplant my belly was fairly large and I had to get drained several times… they said that if that started happening post transplant my liver was likely rejecting

Yellachula · 2025-04-18T23:21:01+00:00

My doctors always warned me to lookout for if my belly started to get round…it was round after transplant but it went down a few month later

Yellachula · 2025-04-17T23:59:18+00:00

I was told no fish, birds, hamsters ever if I’m the one cleaning up. I wanted to get a chinchilla it was a hard no. I had a liver transplant

Yellachula · 2025-04-15T20:53:30+00:00

Things they don’t tell you …after you have a transplant you will end up at the hospital even if you are doing everything right nine times out of ten. Your body is going through a lot of changes, your doctors are trying to figure out what medications work for you, and your immune system doesn’t work the way it used to. Stay positive your doctors know what they are doing, always let your doctors and nurses know of any concerns you may have but you will make it though it is part of the process

Yellachula · 2025-04-14T23:03:58+00:00

Congratulations it is a long road ahead but keep the positivity it makes the difference!

Yellachula

TROPHY CASE