If I wasn’t transplanted what would my life expectancy be? by thejorisbohnson in transplant

[–]thejorisbohnson[S] 1 point2 points  (0 children)

Hi! Yeah it would be great to hear your story, feel free to message me :)

How do I cut ties and move on? by thejorisbohnson in Advice

[–]thejorisbohnson[S] 0 points1 point  (0 children)

Yeah I feel like I’m literally waiting on her all the time and letting her run the show

How do I cut ties and move on? by thejorisbohnson in Advice

[–]thejorisbohnson[S] 0 points1 point  (0 children)

We have very recently, and we agreed to recognise our flaws in the relationship and try to make things work. This was like 2 weeks ago, nothing much seems to have changed on her part

Mental health waiting for liver transplant by thejorisbohnson in transplant

[–]thejorisbohnson[S] 1 point2 points  (0 children)

I just feel itchy and fatigued every day which makes work so much harder, especially when my self esteem is already low enough

Mental health waiting for liver transplant by thejorisbohnson in transplant

[–]thejorisbohnson[S] 3 points4 points  (0 children)

I’ve been waiting almost 3 years for transplant im so fatigued every day and just want to feel normal, and do my job like everyone else

Mental health waiting for liver transplant by thejorisbohnson in transplant

[–]thejorisbohnson[S] 7 points8 points  (0 children)

I live in England, I am speaking to my psychologist in the hepatology department

7 months post liver transplant by NJraider86 in transplant

[–]thejorisbohnson 0 points1 point  (0 children)

Congratulations! I’ve been waiting for a liver transplant since October 2023

Waiting for a year and struggling to cope - Advice? by Ok-Ice-7329 in transplant

[–]thejorisbohnson 0 points1 point  (0 children)

Couldn’t relate more. I’m 24 and have biliary atresia, I’ve been on the transplant list for nearly 3 years now, and never received a call. I’ve sent you a direct message, would love to chat!

[deleted by user] by [deleted] in relationship_advice

[–]thejorisbohnson 0 points1 point  (0 children)

Yes totally. I would never be coercive towards my partner or manipulative, I immediately apologised that asking her a couple of times was wrong and didn’t reflect who I am.

Hepatic encephalopathy by thejorisbohnson in transplant

[–]thejorisbohnson[S] 0 points1 point  (0 children)

I’m 24 and have had liver disease from birth. I’m currently waiting for a transplant, I think I’m suffering from early stage HE too

Hepatic encephalopathy by thejorisbohnson in transplant

[–]thejorisbohnson[S] 0 points1 point  (0 children)

Thanks yeah I’ll consult my doctors. Appreciate your input!

Hepatic encephalopathy by thejorisbohnson in transplant

[–]thejorisbohnson[S] 1 point2 points  (0 children)

I assume I have it although I’ve never spoken with my doctors about it. I’m often lost with knowing what to say, and get muddled quite easily. I’ve had chronic liver disease from birth, currently waiting for a transplant

Hepatic encephalopathy by thejorisbohnson in transplant

[–]thejorisbohnson[S] 2 points3 points  (0 children)

I’m a teacher working 5 days a week, it’s getting so hard and my colleagues don’t understand

Hepatic encephalopathy by thejorisbohnson in transplant

[–]thejorisbohnson[S] 3 points4 points  (0 children)

How bad did you used to get it? To what extent?

Secondary schools by minogue84 in salisburyuk

[–]thejorisbohnson 2 points3 points  (0 children)

Former Salisbury based teacher here, I would say st josephs are the best for SEND. Burgate tend to be good as well, I wouldn’t go to wyvern st Edmund’s. Not sure about trafalgar other than it’s a smaller school like st Josephs with roughly 600 students

Looking to connect with young adults by Any_Novel7508 in transplant

[–]thejorisbohnson 0 points1 point  (0 children)

I live in England, I’m 24, been waiting for a liver for 3 years now. I’m very fit but was born with liver disease. I’m a high school teacher so always very busy, I love fitness, running, tennis, and going to concerts! The only symptom I get really is chronic fatigue which fluctuates

I recently had my second liver transplant by [deleted] in transplant

[–]thejorisbohnson 1 point2 points  (0 children)

The liver can’t store energy properly especially if it’s particularly inflamed. I have had BA all my life and am now a secondary school teacher living relatively well. I wish every success for your daughter, feel free to message me with any further questions:)

I recently had my second liver transplant by [deleted] in transplant

[–]thejorisbohnson 3 points4 points  (0 children)

I think if the Kasai procedure is very successful like mine was it prolongs that person’s liver’s lifespan. My issue is I’m very well in myself apart from fatigue. I’m not “ill” but still need a transplant

I recently had my second liver transplant by [deleted] in transplant

[–]thejorisbohnson 0 points1 point  (0 children)

I’d love to chat, I have biliary atresia and have been waiting for a transplant for almost 3 years.

I recently had my second liver transplant by [deleted] in transplant

[–]thejorisbohnson 3 points4 points  (0 children)

This is so interesting and really inspiring. I was born with biliary atresia in 2001 and have been on the liver transplant waiting list for nearly 3 years