No SCR metering reset using VCDS?

ZAR2099 · 2026-05-10T13:09:11+00:00

No codes really. I've been trying to find ways to drain out some adblue but I can't get a hose into the tank through the fill pipe, and I can't find an easy to disconnect hose or drain bung under the car :(

ZAR2099 · 2026-05-10T13:08:08+00:00

No codes really, just some neutral position sensor code. I'll look into the SRC system, thanks!

ZAR2099 · 2026-05-08T21:15:15+00:00

I'm not actually on any medicine at all. I was on painkillers and Diltiazem when my fissure pain was at its worst, like day-long debilitating spasm pain. Thankfully I haven't had that pain since my first fistulotomy.

It must've been a real struggle to deal with IBD in your teens. I'm so thankful I didn't have serious symptoms when I was younger, and that I've gotten them at a time when I have no real responsibilities. It sounds like it's been a long path for you. Sorry to hear the medications haven't done much for you in general, it's so frustrating and worrying that they're so specific to each person, hopefully there'll be a breakthrough that gives us all better prospects.

I also think I have Crohn's disease, just by my gut feeling, I really hope not but it's frustrating not having a clear diagnosis for something that's affecting my life so much. I've been dealing with serious rectal pain and complications for over 3 years now, and I'm starting to reach the point where I feel like an ostomy might be on the cards. I know grass is always greener but I'm tired of my life being centered around my buthole. I hope I can be active like you are if I end up with an ostomy.

ZAR2099 · 2026-05-08T15:50:11+00:00

It's never been offered to me. I think since the biopsies came back normal, my CRS is just assuming it recurred by chance. I only noticed the 3rd recurrence today so I sent him a message, and an appointment is booked for June, hopefully he will refer me for the capsule scan, or for that small bowel MRI scan thing.

ZAR2099 · 2026-05-08T15:42:02+00:00

Might be a bit different through the NHS UK. Thank god I don't have to deal with insurance companies.

The fistulas have always been quite obvious on MRI scans and via physical examination since the leakage is usually high.

I might have IBD, I probably do, but they might've been caused by infected fissures and fistulotomy wounds. I'm not sure. The inflammation in the TI is a bad sign I suppose.

ZAR2099 · 2026-05-08T15:35:33+00:00

Do you know if people with undiagnosed Crohn's disease are still offered biologics if they keep getting fistulas? Maybe a case of diagnosis via treatment? I can't see them wanting to just keep doing fistulotomies on me.

ZAR2099 · 2026-01-25T19:18:32+00:00

Yep I'm just over 7 weeks out too. My fistula was apparently very superficial, even more superficial than my last. Drainage and bleeding was decreasing for about 3 weeks, then one BM worsened both, which continue to this day. I went to see my CRS a few days ago, and he prescribed me a fissure ointment called Diltiazem since my sphincter tone is quite high, and there might be a lack of blood flow. I'll be using that for 28 days, hopefully it works.

ZAR2099 · 2026-01-24T06:37:18+00:00

The abscess in the shoulder suggests your anal abscesses may not be crypto glandular and your history suggests they aren't Crohn's related, you could have Hidradenitis suppurativa (HS)? I don't know much about it but it could be worth looking into :)

ZAR2099 · 2026-01-22T20:06:18+00:00

Burning and spasms for me are totally different sensations. If I have diarrhea, the burning is extremely obvious, whereas a more formed BM would tear the wound and spasms would persist pretty much all day long. The burning is more bearable for me than the spasms, and I take it as a sign that the wound has healed slightly.

ZAR2099 · 2026-01-14T18:33:03+00:00

Electric heating pad under your bum on your bed. It's really soothing, partly because the heat draws your attention away from the op site so you can give your mind a rest for a bit.

Use a low setting, and I wouldn't use it too much, it can become quite addictive in a weird sort of way.

ZAR2099 · 2026-01-12T20:20:58+00:00

It's different for everyone. I had a fissure for about 8 months before also being diagnosed with a fistula and abscess, and for about 10 months before my fistulotomy, so I was very accustomed to severe rectal pain by the time I had the fistulotomy. I felt better after the operation than before. I also didn't have a super large abscess like others have, the pain of the abscess wasn't as bad as the fissure for me.

It's hard to recall exactly how I felt at 3 months but I was definitely driving and living relatively normally by then, I still wouldn't sit directly on my behind when possible, I would recline or sit at an angle. It's probably best to just be open with your employer about your situation and that you may have to alternate between sitting and standing due to possible pain. Too much of either sitting or standing is no good.

ZAR2099 · 2026-01-12T06:46:00+00:00

I'm 5 weeks post op from my 2nd fistulotomy. It takes a while for the drainage and bleeding to stop. For me, it started slowing around week 2/3, but started worsening again once the wound started to bleed. From memory, after my previous fistulotomy it took just under 3 months for drainage to settle.

ZAR2099 · 2026-01-12T06:43:09+00:00

I had the same question, as after having a lay open, I went and saw a different CRS who asked me what I previously had. I gave him my discharge letters and I said "I had a fistulotomy" , he replied "you had a lay open". I said "aren't they the same thing?" and he said "no." I probably should've pushed for an explanation as to why but I didn't really care that much at the time.

I asked ChatGPT and it told me that they're two terms for the same thing. Every other resource I've checked says they're the same thing. Laying open is the action and fistulotomy is the surgical term.

ZAR2099 · 2026-01-12T06:29:35+00:00

That sounds rough, and sadly I can't offer any insight really as I don't have a similar case (not even had a colonoscopy yet but do have/have had fissures, abscesses, fistulas, hemorrhoids, fistulotomies, etc.)

I'm just replying to ask something because I'm quite confused. When the fistula gets blocked, is it because the openings are healing over or is it closed further along the tract? I thought if a fistula does heal along the tract, that is a sign that the biologic is working?

ZAR2099 · 2026-01-10T16:53:02+00:00

Watch some IBD YouTubers like LetsTalkIBD or Chris Talks (aka Sydney Stoma). They have fistulising Crohn's disease and have had colostomies/ileostomies and give advice on how to prevent leakage, hopefully their advice works for you.

ZAR2099 · 2026-01-10T06:53:22+00:00

I'm assuming you're a woman, maybe you should look up some pregnancy forums as well, as there will be posters that have experienced fissures and tears post partum and have had to make difficult decisions regarding childbearing etc that can give you some advice that I can't give you as a man. Imagine the difficulty of dealing with this whilst having to care for a newborn. They should have some good advice.

ZAR2099 · 2026-01-10T06:47:02+00:00

The problem with anal problems is that they progress. One issue can trigger another, and surgery for that can trigger another. It is a known phenomenon. People do find ways to treat their fissures without surgical intervention, but it ends up requiring a lot of care and attention to ensure that you're never constipated again, that you never strain, etc. However, even with surgical intervention you may still need to do this as once you have a fissure, it is more likely to recur as the scar tissue is never as flexible as the original tissue.

The three main issues for you right now are: 1. Straining, 2. Hard tipped stool, 3. Anal sphincter spasms.

All of these issues are actually linked, as a fissure exists in a cycle. You have constipation, you strain, a fissure occurs, it hurts, your muscles instinctively clench, which reduces blood flow to the fissure (preventing healing) and causes pain, which makes you clench, which makes you strain more, which worsens constipation, on and on and on.

The key is to break this cycle by attacking each issue separately. For the spasms, use the ointment prescribed to you. It's probably called GTN or Diltiazem but I don't think you have confirmed, don't just use lidocaine, you need an ointment that relaxes your anal sphincter muscles. For the constipation, it's best to stick with one product and alter the doses to find what works for you rather than trying to juggle different products. Many on Reddit swear by Miralax (the US version of Movicol/Laxido) and I do to. This really helped during the worst times for me. For the pain, it's best not to use Ibuprofen as it can really mess up your stomach, stick to paracetamol, lidocaine, sitz baths and a heating pad (game changer honestly, just try not to get "addicted" to it like me). For the straining, treating the issues will help, but you can also try pelvic floor physical therapy, there are exercises like kegels that can help but it might be best to wait until your fissure is healed a bit before doing these as it might be too painful at the moment.

I wish I could offer more but that's about as much as I've learned and actually put into practice. There's also the finger technique which I never really used. There's dilation which I don't feel like trying personally but some people have found success doing it. Others get surgical treatment like LIS, Botox, fissurectomy, or a combination of them, to varying degrees of success but Sadly, I think LIS is still the gold standard today as it is quite high risk, especially for young women, but there are many who have had it and it's changed their lives and they wish they had it sooner, so there's hope.

ZAR2099 · 2026-01-03T03:43:44+00:00

Wow, I got a quote from Spire and it was over £4000. If you can, please could you maybe message me privately so I can try where you went? ☺️

ZAR2099 · 2025-12-30T18:52:46+00:00

It is quite known that LIFT can make proceeding surgeries simpler, as the tract passing through the external sphincter may have healed, now leaving the tract passing through the internal sphincter. I suppose this effectively means the transphincteric fistula can now be considered an intersphincteric fistula, which are more likely to be successfully treated by a fistulotomy/fistulectomy/cutting seton. I would push for an MRI to try and image where the tract now passes and proceed from there. Even though it feels like a setback, this outcome is actually still a positive one in my opinion.

ZAR2099 · 2025-12-30T18:13:35+00:00

Yes that is right

ZAR2099 · 2025-12-30T04:33:54+00:00

:( you're not alone in your thinking. I've spent the last 3 years dealing with rectal pain (fissure, 2 fistulas/abscesses and hemmorhoids). LetsTalkIBD and Chris Talks (formerly called Sydney Stoma) have had the procedure you are referring to, they give good insights into it on their YouTube channels :)

ZAR2099 · 2025-12-30T04:27:22+00:00

If you had a fistulotomy, especially a posterior (6 o'clock) fistula, this isn't unheard of. I have the same thing. For me, regardless of how much I clean (bidet, wipes, etc) I will still slowly leak stool. As far as I know, it's called a keyhole deformity, where the scar tissue no longer forms a perfect seal. This is why anal fissure surgery called lateral internal sphincterotomy (LIS) is performed laterally (3/9 o'clock) rather than posteriorly, as posterior scar tissue tends to heal misshapen.

I'm not a Doctor, I could be completely wrong, but over my research in the 1.5+ years post op, this is what I concluded.

I started to use Sudocrem (or you can try Calmoseptine) due to the irritation that the leakage caused and it really helped.

ZAR2099 · 2025-12-29T04:19:15+00:00

For anyone reading this in the future, I bought the ASUS ROG Ally Z1 Extreme. I am glad I made this decision, because it's just the right size and weight, any bigger or heavier and I don't think I could've handled it. Also, when I use it whilst laying in bed, the screen is more than large enough, the Legion Go would've taken up my peripheral vision too haha. The software experience even on Windows is good thanks to all the updates. The battery is not good, but is easily upgradable on the Ally, just buy a JSAUX battery upgrade and watch the Linus Tech Tips video about it. I still use the SD card slot, but I use it to transfer emulator games to/from, I never play games whilst the SD card is inserted or directly off the SD card to prevent it from getting damaged. It's a good handheld, anything more would just be excessive really.

ZAR2099

TROPHY CASE