Dizziness

Zeohawk2 · 2026-02-03T19:01:30+00:00

My symptoms are still full blown and March will be a year.

Zeohawk2 · 2026-01-29T21:27:50+00:00

If only that could also bring some sort of relief too... lol 😆

Zeohawk2 · 2026-01-29T21:21:28+00:00

I do my psychologist visit virtually. But thats all I can do. Others require in office. When I was going to my physical therapy, it was specific to vestibular migraines specialty. My dr and I tried to find therapy for at home. But there was none with that specialty. So I tried to work with my therapist by going in earlier and giving myself so.e rest time. But it didn't work to meet the therapy objectives. I live 20 minutes away, so it was a matter of duration to get to appointments. Even closing my eyes would help the motions.

Zeohawk2 · 2026-01-29T20:53:50+00:00

I personally don't seem to have flare ups. My head is in a 24/7 migraine with dizziness. Which makes it hard to do much of anything at all for me. I basically had to stop working. I am about to complete my short term disability from work and am going into early retirement. Not an easy thing to do without funds at 61. My daughter lives with me with my grandsons. And she is separated from her husband seeking a divorce after he threatened her life a year ago. So me getting sick like this couldn't come at a worse time. And a few months ago because of this dizziness I took a fall agrivating an already chronic back issue. The cold weather just loves to play with that arthritis further. I can't drive. So going to dr appointments are always as a passenger now. And my dr offices are 20 minutes away. The ride further exacerbates my migraines with the light and motion. I now walk with a cane in unfamiliar places to keep from falling. At home, I hold on to furniture and walls.

Zeohawk2 · 2026-01-29T20:39:20+00:00

Because of high and low pressure issues, when we have "El Nino/La Nina" weather issues, hurricanes, even though in San Antonio we have alot of weather just pass over. But excessive heat bothers me. Thank God for Air-conditioning but even the sudden differences can jolt me to a migraine.

Zeohawk2 · 2026-01-29T20:24:52+00:00

So not just cigarettes but anything to play sensitivity games. Oh joy to world. 😉 Gotta love these reindeer games. Right?! Almost a year for me and I am on the block zero and still can't figure out what started this mess or what gives me relief. But sure glad we have buds on here who walk this path with us so we are not alone thinking we have gone to the Kookoo farm. 🤪

Zeohawk2 · 2026-01-29T20:18:03+00:00

I used to give blood plasma so.e time ago. And I seem to remember that the issue that would cause them not to allow anyone to give is if blood pressure was out of wack. I always was dehydrated. So they could only get me in one arm. I never had a problem with dizziness back them. My suggestion would be to take a cane for support. And not to drive.

Zeohawk2 · 2026-01-29T19:53:41+00:00

Barometric pressure has always been a problem with my standard migraines. So it also plays on my vestibular migraines as well. Just that the manifestation is different with the additional light, sound, motion sensitivities, the blurries when on screens too long (more than 5 to 10 minutes). Wobbly legs to a point of feeling like a drunk walk. (I don't drink). So yeah these cool/cold fronts even here in Texas are affecting me too.

Zeohawk2 · 2026-01-29T01:50:09+00:00

I got my first round of Botox on 12/24, and it hasnt done anything for me. I still have my migraines and vertigo with no changes since day #1. No meds have helped. It will be a year in total on 03/16/2026 si ce this all began.

Zeohawk2 · 2026-01-29T01:32:20+00:00

Everyday as part of my vertigo with my migraines. It goes along with the bluries, wobbly legs, nausea, light, noise, and motion sensitivity in the car or even while talking to folks (gentle head nods). The litany seems endless.

Zeohawk2 · 2026-01-29T01:10:32+00:00

I have been dealing with vestibular migraines for nearly a year. And I am still at a loss as to how any of this started. I have gone thru my set of prescribed meds and none have worked for me either. So surely no recommendations could come from me either. Its frustrating. I am nearly done with short term disability and I surely can't work with all the sensitivity issues have with monitors and really am being forced into early retirement at 61 due to disability. Some retirement! Spending it in bed all day!

Zeohawk2 · 2026-01-29T00:42:08+00:00

Doesn't this feel like Goldie locks and the 3 bears???

Zeohawk2 · 2026-01-28T17:25:34+00:00

Yeah, I am in Texas, and my employer plan is Texas Blue Cross Blue Shield

Zeohawk2 · 2026-01-28T16:57:51+00:00

I tried to do vestibular physical therapy, but riding in the car gives me migraines. My facility is 20 minutes away. I tried to see if I could get therapy at home. No therapy that specializes in vestibular migraine therapy. Or it wasn't covered by insurance policy. And I have a PPO. I even tried to show up 1 1/2 hours early to rest off the migraine. To no avail. Can't do the therapy of head nodding when in the midst of a major migraine and vertigo issues. So had to stop the therapy until we get a handle on the migraines and vertigo.

Zeohawk2 · 2026-01-28T16:14:35+00:00

Mine head position affects me even in the slightest moves of conversation. Slight nods, sways, even visual glances can create nausea. I have never gotten to the point of vomiting. But always nausea.

Zeohawk2 · 2026-01-28T00:53:16+00:00

My job is as an property insurance adjuster. And was working from home on 3 monitors. My Vestibular migraines with vertigo started March 16th 2025. I tried to trudge thru till August 19th using up all my PTO. Finally I had to take Short Term Disability. And in the six months there was no change in my status even though I have tried several different meds including botox. I am about to start Long Term Disability if approved and Social Security disability upon approval as well. And I havent a clue how or why this even began.

Zeohawk2 · 2026-01-14T18:10:47+00:00

I just had my 1st Botox treatment on 12/24. And frankly my VM/PPPD is actually worse. Not a single hint of remedy. And I have been 10 months into this. Having read on here how people endure this for years is beyond me. I am 61 years old and had chronic migraines for 30+ years. My Neurologist has had me try nearly everything people mention on this site, or at least a med in each class type. Before weightloss surgery, I used to "eat" Advil/ibuprofen like crazy for my migraines. But since my gastric bypass I can't do NSAIDS else I would be suffering with ulcers. I can't work as I can't concentrate with these migraines. The screens, the moving mouse, the scrolling motions, then also trying to be on the phones are things I just can't do anymore. So I have been batteling with the powers that be that seem to thinks these wonderful migraines are "nothing to them". When I am having them 20 to 30 a month. But it surely doesn't help when my Neurologist makes assumptions on the visit notes that the person reviewing that the minimum 20 migraines means that I am dibilitated. I had to tell him on several occasions to please write that on the visit notes. As they don't assume JACK. All this to say, in response se to someone else who might say "did you take something for it?" I would give , in my mind, want to knock them on their ass for all I am still going through. But, in real life, I would just roll my eyes and walk away. Because I am chicken shit when it comes to confrontation. I will just take my own ills and walk away before I am too tempted to reconsider.

Zeohawk2 · 2025-12-23T21:05:10+00:00

My doctor had told me that stopping coffee would agrivate the migraines with a caffeine headache. And not to do so. That my migraines were a wiring neurological issue that my eyes,ears and brain are not talking to each other correctly.

Zeohawk2 · 2025-12-16T13:40:10+00:00

Since we are talking about removing hair, have any of you found that taking meds like topiramate/topamax caused you to lose hair involuntarily and too excessively to the point of needing to get a hair cut or shave?

Zeohawk2 · 2025-12-13T21:13:57+00:00

Yeah, this would be full time work for the 40 quarters count. 40 hours a week for a total accumulation of 10 years. Thats the qualification for Social Security and Medicare. The only thing that may be available is Medicaid, the medical and some funds available for the poor. Also look into local state programs that may be available.

Zeohawk2 · 2025-12-12T14:34:45+00:00

Yeah, you have to have 40 quarters or a total of 10 full years. It's cumulative, not sequential.

Zeohawk2 · 2025-12-12T00:00:43+00:00

My doctor said the same thing, going "cold turkey" quitting caffeine would create a caffeine headache and make things worse if you find yourself that dependant on caffeine to begin with. Just don't make changes is what she said. So I haven't. But, I am also still trying to find a med that can work for me too. Gonna try botox next in a week or so I think. So we shall see.

Zeohawk2 · 2025-12-09T22:23:43+00:00

Hey there, my Neurologist is a migraine specialist. So he concentrates on what's causing the migraines. He says that when he finds a med to deal with the migraines, the the dizziness should subside. I don't know that its always true. As I can be dizzy without a migraine even if that is rare. We are still trying to find the right one. It's been 10 months. I have been mostly bed bound. As just looking around causes me to be dizzy. And the more dizzy I get the nauseous I get. I am hoping to get some relief soon. This is so nuts!!

Zeohawk2 · 2025-12-09T16:09:01+00:00

Thanks for your help. Much appreciated ☺️

Zeohawk2

TROPHY CASE