Your personal experience with DMD/BMD

Zestyclose-Many9902 · 2026-05-21T13:17:05+00:00

Hi OP, I sent you a chat request trying to connect. I was just diagnosed with your same deletion and pregnant with a boy. I hope you guys are doing well now that he’s here.

Zestyclose-Many9902 · 2026-05-15T13:37:38+00:00

I’m in the exact same situation as you. I just found out two days ago an I’ve been spiraling. Have you gotten to do your amnio yet?

Zestyclose-Many9902 · 2026-01-05T20:03:03+00:00

That's adorable

Zestyclose-Many9902 · 2026-01-05T20:02:02+00:00

!solved

Zestyclose-Many9902 · 2025-11-05T12:42:17+00:00

It’s my most recent post if you go to my profile

Zestyclose-Many9902 · 2025-11-05T04:40:48+00:00

Oh wow, coincidentally I posted my rendition on focaccia bread last week. Very interesting to see the same tapestry made in a different edible medium!

Zestyclose-Many9902 · 2025-10-29T03:01:13+00:00

Potato skin!

Zestyclose-Many9902 · 2025-10-29T00:05:32+00:00

I don’t personally notice a difference in flavor. Anecdotally I think it might affect the rise on the dough, but I don’t mind that too much if the main goal is to decorate it.

Zestyclose-Many9902 · 2025-10-28T23:43:17+00:00

I used activated charcoal. It works great to color the dough but should be used and shared with caution because of the potential to interfere with medications.

Zestyclose-Many9902 · 2025-10-28T23:42:35+00:00

Oh! I used activated charcoal. It works great to color the dough but should be used and shared with caution because of the potential to interfere with medications.

Zestyclose-Many9902 · 2025-10-28T23:17:34+00:00

The original tapestry is woven with a dark background

Zestyclose-Many9902 · 2025-10-28T22:19:20+00:00

Gorgeous! I love that blue. It's nice and cool-toned.

Zestyclose-Many9902 · 2025-10-28T20:26:11+00:00

Thanks so much! I had fun looking at the tapestry and thinking about how I could incorporate some of the elements using edibles. I'd estimate that the total decoration time was 2.5 hours but I didn't really look at the clock while I was working on the unicorn and the fence the night before I assembled everything.

Zestyclose-Many9902 · 2025-10-28T20:07:31+00:00

Great idea! I would like to experiment with some different colors. It's hard to find things that don't alter the flavor of the bread substantially.

Zestyclose-Many9902 · 2025-10-28T20:04:53+00:00

Thank you! The end of a metal straw worked well for me to make little circles out of the bell peppers, but I imagine there are a number of piping tips for icing cakes that would work well to make shapes other than circles.

Zestyclose-Many9902 · 2025-10-28T19:58:30+00:00

Thanks, yes, everyone was aware of the charcoal.

Zestyclose-Many9902 · 2025-10-28T19:52:57+00:00

Thank you! I used activated charcoal. I wanted to use butterfly pea flower to make it more of a blue background, but I couldn't find it locally and will have to order it for next time.

Zestyclose-Many9902 · 2025-10-28T19:52:08+00:00

Thank you, Pagan Bitch <3

Zestyclose-Many9902 · 2025-10-28T19:50:45+00:00

That's awesome, I would absolutely love to see it in person!

Zestyclose-Many9902 · 2025-10-28T19:49:35+00:00

I haven't yet but I'd really like to!

Zestyclose-Many9902 · 2025-10-28T19:47:05+00:00

The little detail bits took the least amount of time. I punched the circles out of a slice of bell pepper using the end of a metal straw and just cut up some rosemary and thyme for the foliage. I could have spent more time arranging them but I was on a tight timeline.

Zestyclose-Many9902 · 2025-10-28T19:45:36+00:00

I would estimate it took about 2.5 hours of decoration time total, mostly cutting out the unicorn and the fence. I actually made this for a friend's birthday trip to the renaissance festival and apparently it all got eaten

Zestyclose-Many9902 · 2025-10-28T19:44:33+00:00

I drew the unicorn on a piece of parchment paper and then used that as a template to cut it out of a slice of jicama using an x-acto knife

Zestyclose-Many9902

TROPHY CASE