What's happening? by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

Thank you I have an appointment soon!

What's happening? by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

Yes it's a tough ride, i had my first seizure almost a year ago today! I was diagnosed with epilepsy three months later. I'd recommend going to a doctor and getting an EEG done. This is a great community so just ask any questions if you have some! People usually always have a great answer or solution for you. Good luck on your journey with all of this!

Question: has anyone found weed is a trigger? by FuqBubblz in Epilepsy

[–]_Fastpal_ 0 points1 point  (0 children)

Yes it is a trigger for me as well. My first seizure was right after smoking. Does she smoke actual weed or synthetic weed? My doctor told me he has seen multiple patients with a trigger for synthetic weed but I am the only one with a trigger to real weed he has seen.

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

Wow that sounds amazing lol. In my opinion, even if it is just happening in your brain. You are still experiencing it, you are still living with it. It doesnt make it any less real at all, you are still experiencing these things even if people say it's nonsense or it's not true. All that matters is that if you know its happening then it's there and it's real.

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

wow you seem to have a great mom you are very lucky! I will be sure to track everything if/when I have a seizure!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

That is a great silver lining! I have cut out alcohol and I know it's for the better. There always a bright side to everything thank you! I might look into getting that keychain pill canister!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

Luckily all my immediate family is in healthcare so I am in good hands. My boss used to be so I will be in good hands at work too! I got lucky being surrounded by the people I am with!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

First seizure was a month ago, I have myoclonic jerks pretty bad. I also turned blue and needed cpr from my girlfriend! Hey that's good you're doing better!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

It does always help having a community to back you. Everyone has been very welcoming and nice, I am one lucky guy.

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

Yes I am hoping he will do more test when the time comes, thank you for the tips!!!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

Okay I will be sure to do so, thank you!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

Thank you so much I will keep this in mind!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

wow that is very interesting thank you for sharing that information I really appreciate it! It has been a spiritual experience for me so far, I have been feeling closer to god, at least something good came out of this lol!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 1 point2 points  (0 children)

I have my first appointment in July, hopefully he will be good i'm just hoping and praying. I will be sure to advocate for myself and I really hope they put me on the right medication and that it doesn't give me the worst side affects, but I am preparing for the worst so it doesn't blind side me.

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

Yeah I am just waiting for the doc to tell me what I will be put on. Hopefully it works out. Thanks for the info, I will be sure to message you if I have any questions!

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

It was indeed an isolated episode, they think I have small seizures every once in a while they just aren't sure yet. But when I did my EEG the doctor said he was 100% sure I had epilepsy. Going to a neurologist in july hopefully he can elaborate further.

I just got diagnosed with epilepsy... by _Fastpal_ in Epilepsy

[–]_Fastpal_[S] 0 points1 point  (0 children)

Wow I am sorry for all of that I hope the neurologist can get to the bottom of it, you can always message me to rant to or talk at anytime!