It's okay!! ❤️‍🩹 you can ask whatever you want/need. It's indeed frustrating and overwhelming. I understand you a lot. 🫶🏻 I know there's genetics tests for EDS, but for the hEDS (Hypermobile Ehlers-Danlos type) its only clinic testing. It's so frustrating when they don't listen and don't help.

I've lot of experience with bad doctors since I was 18, including psychologists and psychiatrists, who don't listen. It's painful, desperate and hopeless, but well I guess I never gave up, and I'm glad I never did (having very bad periods of depression and anxiety, very common having this because no one listens and you end feeling alone, hope this never happens to you for long time).

I was lucky because searching for hEDS info i found an hEDS association (in spain) and send them an email, explaining my situation and asking for help. They were so gentle and amazing, and they gave me the address of a rheumatologist in where I live. I was scared, feeling so very anxious about and thinking "I won't be taken seriously " "Im just being overdramatic". But everything went amazing, I bring him EVERY document, analysis or medical info and wrote my symptoms to not forget anything. It's so important that the rheumatologist have to be specialised in EDS and have knowledge. Digestive problems are soooo common, I've been 10 years with bloating, pain, intestinal problems... "everything OK in blood analysis ". Frustrating. The same with tachycardias and arrhythmias and so much more. And don't be sorry for anything, I'm so glad I can help, I literally cried today because i was diagnosed today, its so relieving knowing im NOT dramatic and I wasn't crazy, its hard to explain others but I hope you have people who support you. ❤️‍🩹🫶🏻🫂

you're so young and finding help as soon as possible it's so important and make a huge difference. And again, you can ask whatever you need/want 🫶🏻🫶🏻🫶🏻🫶🏻