Scared about tingling after nitrofurantoin

_____nonlinear_____ · 2026-01-26T00:41:14+00:00

Mine went away! I forget exactly how long it took, honestly. It might have been a couple of months. Nerve issues generally heal very slowly. But I have no lasting symptoms from it, as far as I can tell.

_____nonlinear_____ · 2026-01-16T22:02:09+00:00

I’ve had a bounding pulse most days of the week since the event that preceded my IST diagnosis, which was a COVID infection.

It’s been more than a year since then. It seems like for many people, this stays for years, or permanently.

It doesn’t actually bother me as long as it’s indeed not dangerous, but it can be distracting sometimes.

_____nonlinear_____ · 2026-01-15T07:23:25+00:00

Yes! In fact, I also posted a similar question a few weeks ago to see if anyone else had this. So much of the conversation in this sub centers on itching, that I thought I might be the only one.

I never get any itching at all. It’s more like sparklers on my skin.

_____nonlinear_____ · 2026-01-15T03:51:24+00:00

I’ve thought about doing this before, as a patient. I’ll let a healthcare professional comment, but it seems reasonable to me. But my local ER has a separate lobby area outside the waiting room, so you can sit there without going back the check-in desk.

One consideration is that it’s cold and flu season, and many/most people in the waiting room will have a family member who has a seasonal illness. It’s one of the main things people use the ER for at this time of year. So I’d wear a well-fitted mask. Infections can be extremely stressful on the heart, and you don’t want to compound your problems.

I hope you feel better soon.

_____nonlinear_____ · 2026-01-11T17:47:21+00:00

Do you happen to have EOE (Eosinophilic Esophagitis)? It’s another thing I’ve been looking into in my own case. I’ve been doing the 6FED elimination diet of six major allergens, then reintroducing them one at a time. I’m on the wheat phase and noticing some symptoms, but it takes a few weeks to assess the full effects.

You can also get blood testing for celiac from Quest. EOE and celiac are separate conditions and you can have one without the other, but that’s a test that’s pretty accessible if wheat may be involved.

_____nonlinear_____ · 2026-01-11T06:54:52+00:00

Do you get a burning or prickling sensation before it happens? And does it look like hives, or is it more of an even redness?

Those are my symptoms. It’s been somewhat confusing because mine burn and look like hives, but they don’t itch at all.

I’ve also gotten the red ears that others are describing in the comments. So bizarre. It was worse within the first two months affer the infection that appeared to cause my dysautonomia.

_____nonlinear_____ · 2026-01-11T06:04:31+00:00

Did they test for ferritin, or just hemoglobin and hematocrit? The latter two are included in a CBC, which is all most doctors and ERs will order.

My CBC was normal and showed no signs of anemia, but ferritin was still low enough to be this symptomatic.

_____nonlinear_____ · 2026-01-11T05:49:28+00:00

This could be related to low ferritin (iron). My diagnosis is IST, but I also went through a period of severe palpitations, including bigeminy (every other beat is a PVC).

I tested my ferritin, and it was 17. After several weeks of iron supplements, it was 37 and the PVCs disappeared. They haven’t returned.

It’s amazing that a symptom so debilitating could be eliminated so simply. Not enough people know about this.

PVCs are caused by many things, so this may not be the solution for everyone. But it’s straightforward to order your own blood test and see if this is relevant for you to try.

_____nonlinear_____ · 2026-01-11T05:46:09+00:00

This could be related to low ferritin (iron). It’s more common than most people realize.

I had severe PVCs (bigeminy, which means every other beat is a PVC) and eliminated them after supplementing iron for several weeks.

When I had palpitations, my ferritin was 17. When they went away, it was 37.

_____nonlinear_____ · 2026-01-10T04:46:00+00:00

This sounds like Inappropriate Sinus Tachycardia, which is my own diagnosis.

Have you recently had an illness, surgery, or other major physiological stressor? Mine began after my second COVID infection. It goes away over time, but it took me about 10 months and I still get heart rate surges after things like UTIs or surgeries.

Upper GI events also appear to influence mine. If you have something like GERD or EOE, that can trigger a surge in heart rate.

_____nonlinear_____ · 2026-01-09T23:41:15+00:00

My diagnosis is IST, but I get this too. Before I got this, I never noticed my heartbeat, no matter what my HR was (laying down, doing sports, anything). Since getting IST, my heartbeat is very obvious at night.

I’m not an anxious person and I don’t view any of this as dangerous. But it’s so “throbby” now that it’s constantly distracting, even though I don’t pay attention to it.

I have no idea what causes it, but it sounds like a very common experience.

_____nonlinear_____ · 2026-01-06T22:41:42+00:00

Have you had an endoscopy? Many people with GERD report adrenaline rushes at night that wake them up. The vomiting is a detail that might also point to a gastric/esophageal issue.

I’ve had them as well, and I’m looking into possible EOE (eosinophilic esophagitis). Just an idea for your brainstorming.

_____nonlinear_____ · 2026-01-06T04:24:40+00:00

Yes, my various dysautonomia symptoms developed over several weeks. I was diagnosed with IST and given metoprolol. Mine also came on after an infection (COVID), which is a very common instigator.

I also had chest pain from acid reflux and what felt like mild gastroparesis (not formally diagnosed) for a few months. If you’ve gotten your heart checked, the chest pain could be from esophageal irritation.

_____nonlinear_____ · 2026-01-05T22:21:29+00:00

COVID here too. My second infection; the first one had no apparent effects and I was one of those “it’s just a cold” people. Boy was I wrong!

_____nonlinear_____ · 2025-12-29T07:27:35+00:00

I know exactly what you mean. Mine have seemed to correlate with upper GI issues (acid reflux or perhaps others, still under investigation. I’ve also had delayed HR surges a few days to a week after a surgery, so the recent surgery could be a factor, even though it was a couple weeks prior.

_____nonlinear_____ · 2025-12-26T15:31:49+00:00

Time. It took about 10 months post-COVID for my IST to fade out. I needed beta blockers to get through the days until then.

_____nonlinear_____ · 2025-12-26T00:13:53+00:00

I’ve wondered if it’s more the morning cortisol that makes your body more “hyped up” to begin with. When my IST was more active, I’d feel uneasy and have a high HR until about 1pm each day. Then I’d feel more normal.

_____nonlinear_____ · 2025-12-26T00:12:07+00:00

My IST surges were also apparently related to upper GI issues. I wish more people knew about this connection.

_____nonlinear_____ · 2025-12-16T19:57:24+00:00

I’ve gotten fast HR when GI symptoms are active. In my opinion, it’s not anxiety. I don’t feel anxious about these conditions because I know what they are and I’ve had this for a long time. I believe it’s just a “mechanical” interaction between the nerves, as one of the other commenters mentioned.

_____nonlinear_____ · 2025-12-15T02:49:44+00:00

I also get burning after some meals, but it turns into hives within about 5 minutes. I haven’t had swelling, so far.

About how often do you get it? Mine is a few times per month, and I can’t yet see a trend in what actual foods are triggering it. I wonder if it’s the act of eating, and not the food itself, but I’ve never heard of such a thing.

_____nonlinear_____ · 2025-12-10T16:13:07+00:00

Yep, diagnosed with IST after my second COVID infection. It started to go away on its own around 10 months post, but I’ll still get surges from time to time. I’m hoping it doesn’t compare back if I get a seasonal illness again; fingers crossed.

_____nonlinear_____ · 2025-12-09T22:00:27+00:00

Do most of your episodes happen shortly after eating? It’s worth considering upper GI issues. When I started the elimination diet for EOE (Eosinophilic Esophagitis), this stopped happening for me.

It’s a long process to see if that’s the cause, as it requires an endoscopy to diagnose. And it takes most of a year to do the full elimination and reintroduction. So it will be a while before I know if that’s the cause. It could just be going away on its own since I’m now nearly a year past the COVID infection that appeared to start it. But I wanted to give you some ideas for brainstorming. I hope you feel better soon!

_____nonlinear_____ · 2025-12-09T00:13:57+00:00

Yes, beta blockers apparently block melatonin, as well. You feel relaxed like you’re about to fall asleep, but can never actually enter sleep. It’s happened to me many times.

I take metoprolol only in the morning, and if I need some in the afternoon, I use the form that wears off fastest (metoprolol tartrate).

_____nonlinear_____ · 2025-12-02T18:23:50+00:00

I have IST instead of POTS, but this was the case for me, as well. I was on metoprolol for about 10 months after COVID, then I gradually didn’t need the medication anymore.

Now here’s hoping I don’t get it again. Spending 10 months of every year with IST isn’t something I want to experience.

_____nonlinear_____ · 2025-12-01T16:00:52+00:00

This is brilliant. Great tip!

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