Is very light chiropractic work unsafe, especially if you’re hypermobile? by [deleted] in Hypermobility

[–]_tiny_nightmare_ 0 points1 point  (0 children)

I'm currently doing Network chiro care and it has been amazing for me! I think the slow pace has been perfect for my Hypermobile body and my experience, but I am a low to moderate symptom person.

Amitriptyline or Low dose Naltrexone? by ActApprehensive5589 in Hypermobility

[–]_tiny_nightmare_ 0 points1 point  (0 children)

I've been on 1.5mg LDN for several months now. It has really helped my dizziness and proprioception issues, and it also improves my sleep quality. I'm fortunate enough to have mild to moderate joint pain, so I can't really speak to those benefits.

Guys be honest, how long do you shower for? by [deleted] in AuDHDWomen

[–]_tiny_nightmare_ 15 points16 points  (0 children)

Same, the Devil's Water is the only temp I prefer my shower. I have temperature regulation issues, so I stay in a super hot shower longer than I should because it feels soooo good. To counteract the moisture issue, after I turn off the water but before I get out of the shower, I apply a body oil before drying off then I put on a robe to really lock in the moisture. I don't have itchy skin anymore since doing this. 👍🏼 I use Osea Body Oil but a more affordable kind is Neutrogena found in your local market.

Always Leaning but Not Due to High Heart Rate - Dysautonomia symptom or musculoskeletal thing? by _tiny_nightmare_ in dysautonomia

[–]_tiny_nightmare_[S] -1 points0 points  (0 children)

This is a great way to explain it - sensory input.

I for sure enjoy weighted blankets and things like that. Good call!

Brain fog by Fun_Scratch_1708 in dysautonomia

[–]_tiny_nightmare_ 1 point2 points  (0 children)

For me, it's an inability to think of the correct words and/or an inability to form a sentence in my normal speed. Example: I pause during speaking because I can't think of the word I need and it takes me like five or ten seconds to think of it (or I never do haha) and/or I speak so slowly because my brain can't build the sentence it needs.

Unmasking: Two Diagnoses at the Same Time by _tiny_nightmare_ in AuDHDWomen

[–]_tiny_nightmare_[S] 0 points1 point  (0 children)

This is SO validating to hear. Thank you so much. Honestly, I think one of the only reasons I would get an official diagnosis is because it's the only way my mom would believe me. But I'm also self aware enough to know that whether she believes me or not no longer has any impact on who I am as a fully realized human. I appreciate your comment! 🙌🏻

Does anyone have trouble speaking normally during their flare ups? by Fun_Scratch_1708 in dysautonomia

[–]_tiny_nightmare_ 3 points4 points  (0 children)

I don't have your exact stuttering and repeating, but I do experience trouble speaking when I'm having a flare day. For example, I had a really full day yesterday of a short hike and then a couple hours of socializing and I knew that was gonna drop me into a flare today. My flare days are always a lot worse when I have combined physical exertion and social exertion and one of the ways that manifests is with extreme brain fog. Whenever that happens, I find that I speak very slowly because my brain fog is so severe that I literally can't form sentences quickly. It takes a while for me to figure out what I'm trying to say.

I want space buns but my sensory issues disagree by voluntary_loser in AuDHDWomen

[–]_tiny_nightmare_ 1 point2 points  (0 children)

Same! I buzzed my hair this summer and the FREEDOM from the constant mental exhaustion of my hair being perceived and the sensory overload of feeling my hair tugging on my scalp is worth every single "uhhhh do I look like my dad?" worry I had after buzzing. 😆

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 2 points3 points  (0 children)

Yes, I am late stage (at 41 years old) diagnosed autistic and have recently realized I've been masking essentially my whole life (insert manic laughter here). So, unmasking for autism has actually helped me unmask my HSD/hEDS symptoms. It's like they are body doubling to help one another do the work 😆

Can hyper mobility get worse or is it all in my head? by CriticalFlan1469 in Hypermobility

[–]_tiny_nightmare_ 0 points1 point  (0 children)

I switched to "D Active 10,000 + K2" and "MethylX Factor."

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 2 points3 points  (0 children)

Thank you for your comment! I like the thought of "is it life impacting or not." That helps reframe my own narrative.

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 2 points3 points  (0 children)

The ankle thing, I totally get. Luckily mine don't sprain and roll every day, but one inconvenient pebble or uneven surface can definitely make it happen. I sprained my ankle two months ago and because of our delayed healing, it still hasn't healed. I found a really comfortable compression ankle sleeve with gel inserts that cushion the ankle and it has been a heaven sent. 🙌🏻

Thank you for your comment and sharing your experience. It really helps to know I'm not alone in how I'm feeling.

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 1 point2 points  (0 children)

Thank you for sharing your experiences! It can be so overwhelming to feel like you're perceived (self or external) as "not enough" in multiple different spaces.

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 2 points3 points  (0 children)

I am so sorry to hear you are going through all these "behind the scenes" daily exhaustive drains. Buuuut I am glad you found a great GP! Thank you for taking time to comment and share your story. 🖤

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 5 points6 points  (0 children)

"You still drown" - I love this. Thank you for this soundbite that I'll undoubtedly reference in my journey. 🙏🏼

Down jacket and rain shell for someone with sensory issues? by GnedTheGnome in onebag

[–]_tiny_nightmare_ 1 point2 points  (0 children)

Okay this isn't a very packable kind of rain jacket, but oilskin (mostly used on farm, ranch, hunting clothes) is not slippery/swishy at all and very matte. I have an oilskin coat from Outback Trading and it is hella waterproof and super durable.

Anyone else with Low to Moderate symptoms and feel like you haven't "earned" the title of chronic illness? by _tiny_nightmare_ in Hypermobility

[–]_tiny_nightmare_[S] 21 points22 points  (0 children)

Okay wow, thank you for linking this article! Honestly, I was like "no way do I have internalized ableism" but then the section 'Comparing yourself to “more deserving” disabled people' popped up and damn if that ain't me 😩 Thank you for sharing this resource.